Hi Babi - welcome to our community!
I'm so sorry that this is taking such a toll on you. Have you been to a LLMD yet? It's possible that you also have Bartonella, as it is also known for those types of symptoms and when combined with Lyme disease, it makes the symptoms a lot worse.
While I've experienced most of the same symptoms and have recovered, there are others on here that are in the process of recovering - Lovemychildren Mom has a son that has had mostly psychiatric symptoms, and he is recovering as well.
It can be a long road, but hang on tight! You can make it! Don't be afraid of using whatever meds you need to in order to get through this either.
Are you detoxing all you can? This can ease the symptom severity for most of us. Be sure to use many different methods of detoxing to utilize as many of the different detox pathways you can to eliminate as many toxins as possible.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
Back in treatment for new Lyme case 8/2014
*I can usually post a link to any info that I post. Wish to see a link? Please just ask!