How do you calm your Lyme anxiety?

New Topic Post Reply Printable Version
39 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

DazedPete1
Regular Member


Date Joined Dec 2014
Total Posts : 271
   Posted 1/6/2015 6:29 PM (GMT -6)   
Hi all,

I have terrible anxiety with lyme, it is my worst symptom by far. It isn't just mental and presents itself physically by making me feel so uncomfortable. It's like a feeling that I get in my nerves that makes me have racing thoughts and doesn't allow me to relax.

Anyone have this? It really scares me and when it's bad I have awful panic attacks. I never had any issues with anxiety before this. Anyone have any suggestions on what to take? I have valium which helps but I don't like using it all the time.

Will228
Regular Member


Date Joined Jul 2013
Total Posts : 173
   Posted 1/6/2015 7:13 PM (GMT -6)   
I had it. You're not alone. I played mind over matter with it because if I didn't I wouldn't get anything done. It went away when I started cats claw andrographis and resveritrol before starting abx.

DazedPete1
Regular Member


Date Joined Dec 2014
Total Posts : 271
   Posted 1/6/2015 7:24 PM (GMT -6)   
Unfortunately I've been treating for 1.5 years and still have it. Not sure where to turn because when it gets bad, I start having terrible thoughts.

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 5098
   Posted 1/6/2015 9:03 PM (GMT -6)   
Pete, I see you joined in December. Just so you know this topic comes up a LOT! You are NOT alone.

If you use the healing well goggle search, upper right, it just searches this site only. A lot will come up.

As in previous discussions, the anxiety is most likely from: the infection itself, the herxing dieoff, antibiotics in general, , candida, not enough detox, and weak addrenals.

So you can try calming herbs(valerian and skullcap are powerfull), adrenal adaptogens, brain basied amino acids, better detox methods, Candida herbs.

Any magnessium that ends in "ate" calms you, One is even called CALM.

I've done all in my search. Detox was part of my problem- just part though. And it appears Candida returned too, so more probiotics. The initial herxing was like super anziety .

Yogi calming teas.

And nap if you can.
Lyme symptoms late 1980's, Dx'ed 2013 by LLMD. Doxy, Flagil ABX. Felt better for a while.

skBM
Regular Member


Date Joined Jun 2011
Total Posts : 330
   Posted 1/6/2015 10:21 PM (GMT -6)   
There are many suggestions out there, and I've tried most of them. Basically none of them have worked for me except sleep and exercise.

That's just me though.

achievinggrace
Veteran Member


Date Joined Nov 2009
Total Posts : 3266
   Posted 1/7/2015 11:00 AM (GMT -6)   
Sometimes, just doing something, anything can be of help. None of the remedies seemed to completely take the anxiety and panic away, but the conscious effort to break the cycle was a good move.

It is crippling to have all this worry. And worry about what, really? I was struggling to get upstairs and all the time worrying about whether I would be able to get up all these stairs when I am eighty (I'm 54 now). What? Why on earth is that of concern to me now??

So I began to analyze each of my worries as they popped into my head and started to toss them out as needless and unhelpful. I kept telling myself that the panic and sense of doom was a symptom, not me, and not an accurate picture of the way things are. And I kept on doing things anyway: I didn't want my world to shrink in around me.

I also used yoga and some pretty simple relaxation techniques. And, to be honest, I found losing myself in stupid TV programs was very helpful. These also helped with pain management.

The good news is that all this will go away. Over the past year my anxiety and panic gradually diminished and now I'm free. I say this not to taunt you, but to give you an idea that there is a light at the end of the tunnel!!

I really hope this gets better for you.
Forum Moderator

IHL
Veteran Member


Date Joined Aug 2014
Total Posts : 2166
   Posted 1/7/2015 11:48 AM (GMT -6)   
Achievinggrace I can definitely relate to you. I kind of did the same thing. Nothing ever worked for me as far as medicine. I just made the conscience decision that every time I felt anxious I'd force it down. I repeat over and over that it's just a symptom, everything is ok, and I know it will pass. And it eventually does!

The more aware I am of the reasons behind it the better I feel. I'm way better at dealing with it now. I make myself busy when it happens. I do productive things like cook or clean. Or I'll go outside and walk around. Simple little things.

At first it didn't help at all, but as the weeks passed it started to. Your mind is powerful! I'm thankful that this worked for me, I don't think it's as easy for everyone. I struggled for years with anxiety and depression. And now I can say I never took anything for it, I thought my way out of it. And I shouldn't say it's easy because really it's not. It just is now that I've become an anxiety fighting ninja!

Hang in there dazedpete! And really next time it happens find something to clean and see if it gets your mind busy on something else. Mine was relentless at first, it really took a lot of work to get where I am today.

tbohl
Regular Member


Date Joined Nov 2014
Total Posts : 414
   Posted 1/7/2015 12:04 PM (GMT -6)   
I have anxiety before the lyme, i ended up in counseling, accupuncture, and I take zoloft very low dose 25 mg, my anxiety was so bad back in Sep. I couldnt even go grocery shopping without having a panic attack, I almost went to er because I literally thought I was going to die, it sucks! It makes healing harder. Because you dont know what is lyme and what isnt... any who, sometimes writi.g your thoughts down, meditation, counseling just to talk about it helps a lot, I havent researched how antidepressants or anti anxiety drugs affect lyme, i am afraid to, because the zoloft helps me a lot! But also, valerian root is natural and supposed to be good, check with your Dr. First and also look into self help books, good luck!

cccmama3000
Regular Member


Date Joined Jul 2014
Total Posts : 256
   Posted 1/7/2015 3:28 PM (GMT -6)   
Anxiety & panic was by far my worst symptom. Its an awful, awful feeling. I am sorry your going through this.

I used to do yoga and it would give me temporary relief. I also listened to classical music, which sometimes helped me relax. I remember also taking kava kava and chamomile tea.
2003 Found 2 ticks on me, never got a bulls eye rash
symptoms: anxiety, bone pain, joint pain, brain fog, twitching, numbness, tingling
6/2014 - diagnosed with Lyme and Babesia co-infection
08/14/14 started ABX DOXY, 9/3/14 PICC Line
acupuncture, Chinese herbs, eliminated sugar and gluten

BDL
Regular Member


Date Joined Dec 2014
Total Posts : 250
   Posted 1/7/2015 4:48 PM (GMT -6)   
I got mine under control by ignoring the bad thoughts (Easier said than done). That is until today where nothing was wrong, I was as calm as ever, and the thought of anxiety attacks just popped in my head because of this weird feeling and sure enough a wave of adrenaline goes through my body and I get a panic attack. It was weird because I usually panic about something when it happens but this time I was just sitting there with all the uncomfortable symptoms that come with a panic attack but I wasn't concern about anything.... Happened twice today and I haven't had a panic attack in weeks.

DazedPete1
Regular Member


Date Joined Dec 2014
Total Posts : 271
   Posted 1/7/2015 4:50 PM (GMT -6)   
Hmm I'm looking into adaptogenic herbs, specifically ashwagandha and rhodiola rosea. They're supposed to be good for your immune system and help calm anxiety. Chamomile tea works for a little bit as well.

skBM
Regular Member


Date Joined Jun 2011
Total Posts : 330
   Posted 1/7/2015 5:16 PM (GMT -6)   
Careful, though. They wont necessarily help. Rhodiola in particular made my anxiety worse.
Just know that it affects different people differently. If it's not helping, dont feel bad to discard it and try something else.

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 5098
   Posted 1/7/2015 8:33 PM (GMT -6)   
Ashwagonda gets me wired.

Adaptogen herbs do work on people in different ways.

I never heard of holy basil reving up anyone. Its supposed to be the mellowest of the adrenal adaptogen herbs. I used to take it, till my body got used to it. Now- eurethro.
Lyme symptoms late 1980's, Dx'ed 2013 by LLMD. Doxy, Flagil ABX. Felt better for a while.

livinginhope
New Member


Date Joined Dec 2014
Total Posts : 5
   Posted 1/8/2015 8:34 PM (GMT -6)   
I get this too... the anxiety got way worse after I was re-infected (before being diagnosed). A lot of it is social anxiety -- very frustrating.

Sometimes my hands shake, mostly in social situations. They were shaking a ton at work the other day... if anyone asked me I could blame it on the Lyme, but it mostly just happens when I'm anxious. Anyone else have these physical sick, shaky symptoms?
Lyme 15 years, months of abx didn't help. Now doing Cowden protocol, grapefruit seed extract, Sam-E, methylfolate, vitamin D, multivitamin, fish oil. (My mom and I use the same account so some of these posts may be hers.)

Katebirch
Veteran Member


Date Joined Sep 2013
Total Posts : 1265
   Posted 1/8/2015 8:39 PM (GMT -6)   
have you tried saunas yet? I haven't yet but plan to soon. I was reading about how lots of symptoms are the build up of neurotoxins and build up of die off. I know everyone on this forum says detox detox detox and we all try to do that. But I have not yet tried regular saunas- and I plan to.(by regular I mean three times a week type of thing, planning to do the infrared) Lately it seems to me like saunas can be a significant way to detox.I am wondering if that might help get some of that stuff out? So whatever protocol plus saunas- may help. I will let you know!

Post Edited (Katebirch) : 1/8/2015 6:42:30 PM (GMT-7)


astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 5098
   Posted 1/8/2015 10:46 PM (GMT -6)   
The best for me is to resume physical activity - on MY time, doing something I like. And being careful to not over do it. When your doing something you love, your mind is at ease. BUT, it wont last long, the easy feeling that is.

So obviously this does not work for me on the job. I love weekends off. No pressure. No A hole boss. Do what I want. Lyme and stress do not mix at all!!!!!

I've tried many, many supplements, some help, most do nothing. But I had to try them to know.

So I think the best cure for anxiety from lyme or other, is to win the lottery and dont blow it!

Before ABX I was almost lethargic, now on ABX, I'm wired like so many here...............it sucks hu??
Lyme symptoms late 1980's, Dx'ed 2013 by LLMD. Doxy, Flagil ABX. Felt better for a while.

Pirouette
Veteran Member


Date Joined Mar 2014
Total Posts : 6201
   Posted 1/9/2015 7:47 AM (GMT -6)   
It's probably not a surprise to some of you that you're having neurotransmitter imbalances. Caused by toxins or simply a DNA mutation that is more obvious when your body is under siege.

I was just reviewing my NutraHacker report and one of the neurotransmitter mutations I have specifically affects dopamine, others specifically lower GABA:

Neurotransmitter Levels

RSID: rs4680

Gene: COMT

Mutation: AG

Heterozygous

Genotype Frequency: 48.2074%

Gene Function: Degrades catecholamines, Phase
II, inactivates hydroxy-estrogens

Consequences: Slower breakdown dopamine, estrogen, worrier, prone to anxiety, more sensitive to green tea

Recommendations encourage: Hydroxy B12 (hydroxycobalamin)

Avoid: Methyl B12, Methyl donors, Cannabis

So, no pot for me, I guess… ;)

-p
Chronic late-stage lyme—likely infected in 2000; Clinically dx 3/2014 w/ Babesia, tested positive for Bartonella, CDC-positive for Borellia. Multiple viruses and GI/immune treated first; started AL-Complex in May; started A-Bart and A-Bab in July; have IV port installed and started on Rosephin.
Detox: Pinella, Burbur, Parsley, Milk thistle seed, Burdock root tinctures; japanese knotwee

Pirouette
Veteran Member


Date Joined Mar 2014
Total Posts : 6201
   Posted 1/9/2015 7:50 AM (GMT -6)   
astro—

I spent $20k+ with an ND trying to balance my neurotransmitters… nothing worked and every time I took something it would shift the levels to the opposite extreme. NOW I know why. I haven't started supplementing according to the mutation report but I sure hope I finally have some answers.

-p
Chronic late-stage lyme—likely infected in 2000; Clinically dx 3/2014 w/ Babesia, tested positive for Bartonella, CDC-positive for Borellia. Multiple viruses and GI/immune treated first; started AL-Complex in May; started A-Bart and A-Bab in July; have IV port installed and started on Rosephin.
Detox: Pinella, Burbur, Parsley, Milk thistle seed, Burdock root tinctures; japanese knotwee

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 5098
   Posted 1/9/2015 9:07 AM (GMT -6)   
P-

So nutrahacker (aka nutcracker) tells you whats wrong (from 23Andme), and tells you what to take for it?

Its that easy?

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 5098
   Posted 1/9/2015 12:28 PM (GMT -6)   
So many here have this anxiety while treating lyme. This has almost been newly posted bi-weekly for 2 years on this site.

Suprised not to see any good solutions from the well known LLMDs- besides waiting.


Is this pointless - do we have to cave in and go on anxiety meds? Or are they not effective since the cause is different?

Pirouette
Veteran Member


Date Joined Mar 2014
Total Posts : 6201
   Posted 1/9/2015 12:59 PM (GMT -6)   
astro-

Yes, nutcracking is that easy. ;)

Now, doing something with the results is an entirely different ballgame.

I don't do psychotropic drugs—plus, according to my report, I'm also hypersensitive to (some of) them, which is really interesting info… So I am determined to find a solution. And the info in the report seems like a great place to start but based on everything I've read, I'm also anticipating that the more control I get over the hormonal issues and the GI issues and all the other damage from the lyme & co… and the more I eliminate the lyme & co infection the easier this neurotransmitter problem will be to solve.

Again—peeling the onion… That is not what anyone wants to hear but I do believe it is the key. That, and patience. Patients during an anxiety attack. Good luck with that.

-p
Chronic late-stage lyme—likely infected in 2000; Clinically dx 3/2014 w/ Babesia, tested positive for Bartonella, CDC-positive for Borellia. Multiple viruses and GI/immune treated first; started AL-Complex in May; started A-Bart and A-Bab in July; have IV port installed and started on Rosephin.
Detox: Pinella, Burbur, Parsley, Milk thistle seed, Burdock root tinctures; japanese knotwee

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 5098
   Posted 1/9/2015 3:11 PM (GMT -6)   
P -

Have you looked into ammonia detox? Ammonia brain = anxiety.

I was thinking of getting some of Dr Jergans stuff for amminia (since I can smell it on me) - was a thread hear before the holidays on it. I might have started the thread.

borderlyme
Veteran Member


Date Joined Jul 2011
Total Posts : 1486
   Posted 1/9/2015 4:51 PM (GMT -6)   
This was the first glaring symptom when my lyme progressed to kinda crappy to terrible - for almost a year I had several hour-long panic attacks every single day it was insane...

I do still have a prescription for ativan which I take from time to time but I usually try something else first - passionflower (tincture) works pretty well for me - I use a mix of hops and passionflower at night to help me sleep...

Meditating regularly helps too.

You might want to look into tapping - my doc recommends it for me for my anxiety but I have to admit I've been lazy/forgetful about it - but in general I've heard really good things about it!

Just try to remember you will be less anxious someday!

mibella
Regular Member


Date Joined Nov 2014
Total Posts : 58
   Posted 1/9/2015 5:27 PM (GMT -6)   
this time my symptoms started withe severe anxiety after being sick 3 days, I started nortriptyline which was given to me before and it got better. No I have been 1 month on cowden but the last 2 days had anxiety that is bothering me. Today I took 1/2 5 hr energy when I was anxious and it gave me horrible feelings and palpitations.
Does anybody has had any problem with cowden, anxiety and palpitations?

Pirouette
Veteran Member


Date Joined Mar 2014
Total Posts : 6201
   Posted 1/9/2015 9:50 PM (GMT -6)   
astro-

One of my mutations indicates I'm predisposed to higher levels of ammonia. But when we've tested for it, levels were normal. Can you really smell it on you? Like through your pores?

-p
Chronic late-stage lyme—likely infected in 2000; Clinically dx 3/2014 w/ Babesia, tested positive for Bartonella, CDC-positive for Borellia. Multiple viruses and GI/immune treated first; started AL-Complex in May; started A-Bart and A-Bab in July; have IV port installed and started on Rosephin.
Detox: Pinella, Burbur, Parsley, Milk thistle seed, Burdock root tinctures; japanese knotwee
New Topic Post Reply Printable Version
39 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Tuesday, August 21, 2018 3:15 AM (GMT -6)
There are a total of 2,995,014 posts in 328,184 threads.
View Active Threads


Who's Online
This forum has 161310 registered members. Please welcome our newest member, csorthofeet.
200 Guest(s), 4 Registered Member(s) are currently online.  Details
bluelyme, Bloodyhell, F8