I posted Julie's link in one of my previous responses:
Julie is not an LLMD (Lyme Literate Medical Doctor), but is an herbalist who uses Buhner's herbal protocols, and other herbs as well, to help people recover from lyme and the coinfections.
On his facebook page:
Buhner also recommends these other herbalists who are trained in his protocols if Julie is not available - she is getting busier all the time:
"I no longer see clients for herbal consultations. I recommend the following people:
Julie McIntyre in Silver City, New Mexico (Julie@gaianstudies.org);
2) Tommy Priester in Lincoln, MA (firstname.lastname@example.org);
Gordon Medical Associates in Santa Rosa, CA ((707) 575-5180);
and Tim Scott in Brattleboro, VT (Toll free: 877.591.1874 In VT: 802.246.1090)
2) In the EU/UK try: Peter Conway
The WellSpring Clinic
1 Clanricarde Gardens
Kent TN1 1PE
3) I do not sell herbs or protocols. I recommend woodlandessence.com; sagewomanherbs.com; elkmountainherbs.com; 1stchineseherbs.com; greendragonbotanicals.com, and MontanaFarmacy.com."
We are Canadian (Niagara region of Ontario) and saw a pediatric LLMD in Buffalo who also treats adults. She was very good with her clinical diagnoses and antibiotic prescript
ions, but didn't use much in the way of herbs other than BW and the basic Cowden samento/banderol.
We did try weaning to samento/banderol after 8 months of abx for a positive bartonella infection, but K relapsed within 2 months. In hindsight, these herbs are only used to treat lyme and are not sufficient to kill bartonella, but I didn't understand that at the time. He has other herbal tinctures available which address the other specific coinfections, but I didn't think to ask about
them. I trusted that the LLMD was all-knowing.
During the entire last year of abx treatment, K was also taking the BW A-L (for lyme) and A-Bart (for bartonella) supplements. She had no response, good or bad to A-L and herxed horribly with A-Bart. Every time I increased her dosage by 1 drop she would herx (shin/forearm pain, headache, motor ticcing, raging, fatigue), but increase we did. After a couple of months I got her to the point where she was taking 25 drops 3x daily and she kept up this dosage for 8 months until she was weaned from abx.
When the LLMD suggested it was time to discontinue abx, I was concerned because K was still symptomatic. We had never reached that magic point of "3 months past symptom resolution" that LLMD's usually try to attain. We hadn't gotten resolution with Cowden, BW or abx, so I was forced to look elsewhere.
When I suggested starting Buhner's herbs, the LLMD gave me the OK, but said that K's treatment would now be up to me because she knew nothing about
the protocols. So I purchased the books, read them all and started the bartonella protocol.
It took a while because I was overenthusiastic which resulted in herx reactions, but after a couple of months I had gotten the entire bartonella protocol going at low doses. I started treating myself with herbs at the same time because 1) our LLMD thought K's infections were congenital which meant I had the infections as well, and 2) because I wasn't going to experiment on K with something that I was unwilling to take myself.
The interesting thing was that I herxed right along with K - same dosages, same reactions (although I don't have the motor ticcing (Tourette's symptoms) she has).
I wasn't until I (on a whim) ordered CSA (a combination tincture created by WoodLandEssence for Buhner's babesia protocol) and trialed it that we found out that K had babesia as well. She had tested negative for both microti and duncanii and was asymptomatic for the infection.
A trip back to the LLMD resulted in a clinical diagnosis for babesia based of the herx reaction to CSA and we then started on Buhner's babesia protocol as well. This is when we really began to see resolution of the final 20% of her bartonella symptoms and a huge improvement in cognitive and executive function (mine as well). I didn't start consulting with Julie until we began the babesia protocol. The babesia coinfections book is just being published now, and I wasn't confident trying to treat just using the information on the website.
So to be fair to Cowden and BW, we obviously weren't using the proper herbs to address our complete infection picture. Perhaps A-Babs would have helped K turn the corner, we just didn't think to try it.
13 yo daughter:
2010 - Dx ADHD, Tourette’s, Aspergers, motor delay, PANS/PANDAS
June 2011 - Igenex PCR positive bartonella, IND lyme. CD57 18. Positive ANA (speckled type), heterozygous A1298C MTHFR. Multiple Abx, herbals/homeopathics
April 2013 - ANA titers negative. Weaned abx. Start Buhner bartonella protocol, methylation/detox protocols, organic PerfectHealthDiet gf/cf/sf. Minimize EMF exposure
Nov 2013 – Clinical babesia diagnosis. Start Buhner babesia protocol
Sept 2014 – Symptoms 99% resolved
Post Edited (rowingmom) : 2/7/2015 6:11:53 PM (GMT-7)