Horrible and scary. I'm so sorry for all that you and they have gone through.
The Western Blot will only catch about
50% of those that really do have Lyme disease - but, because it too only looks for antibodies to the bacteria, not the bacteria itself and
the fact that Lyme (especially when combined with Bartonella) inhibits the immune system, it won't catch very many chronic infections at all.
We actually have no tests that will work well, detecting a majority of cases including chronic infections. It took me being on very, very strong abx doses for a full year before I got a positive Western Blot. Fortunately I knew not to wait until I could get a positive test before treating.
Other conditions do need to be crossed off the list though before just assuming that it's Lyme and beginning treatment. Just be sure to know what Lyme is and causes so that you can help him understand what he is dealing with. You know what to watch for and are learning more each day, so just keep an eye on your guy - and we're here to help with any questions!!
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
Back in treatment for new Lyme case 8/2014
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