Raynaud's Anyone?

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ValentineBaby
Regular Member


Date Joined Dec 2013
Total Posts : 95
   Posted 2/23/2015 4:23 AM (GMT -7)   
When diagnosed with Lyme back in 2011 I was having a lot of pain in hands when holding anything cold. The other day (I currently live in FL) it went down into low 30's here. Went outside and within minutes both hands and both feet had lots of pain, stinging, stabbing and color changes. Happened again a couple of days later in cold again. Does anyone have Raynaud's as a result of Lyme?

summer16
Veteran Member


Date Joined Jul 2012
Total Posts : 1284
   Posted 2/23/2015 4:48 AM (GMT -7)   
Yes. Raynaud's type symptoms started in my feet and then a year later it happened to my hands. The redness extends about 2 1/2 inches past my fingers and toes. I love my sandals in the summer and now I wear flats in the warmer months. I have noticed that my feet look much clearer when I am not in a herx.
toxic effects from 2 doses of Levaquin in 2008.....Xanax for 4 monrhs in 2008 (horrific withdrawal effects)......CDC positive for Lyme's in 2009 (prescribed 200 mg daily of doxycycline for 2 months........extreme fatigue, anxiety, decreased cognition, etc. and was becoming worse in 2012......tested for Lyme's through Igenix and was CDC positive.....treatment started 9/2012

springsjean
Forum Moderator


Date Joined Mar 2009
Total Posts : 2154
   Posted 2/23/2015 5:12 AM (GMT -7)   
Try supplementing with magnesium. I feel like a broken record but magnesium plays such a major role with lyme. my one hand turns slightly blue in the shower all the time but one morning the palm literally turned black. Went to my LLMD with a picture and she told me it was spasms from low magnesium. Just make sure you research and get an easily absorbable one.
Prior moderator
Lyme, HME, HGE, bartonella. 4+ years undiag. despite 10 drs.
Current meds: neurontin, cymbalta, Prior meds: bactrim, doryx, amantadine, amox, minocycline, tetracy, roxithyromycin. IV refused by ins. Supplements: boluoke, alpha lipoic acid, AG immune, magnesium, milk thistle, resistant microbes, cats claw
FEELING GREAT THESE DAYS! Hang in there - it does get better.

DaveNJ41
Veteran Member


Date Joined Feb 2015
Total Posts : 649
   Posted 2/23/2015 8:00 AM (GMT -7)   
Hey all, I hope I can help add my two cents :). My mom is a health coach and in the recent years through her and with my own health struggles (as I know we all have!) learned a great deal about homepathic/holistic/herbal nutrition and the role certain parts of our body play in our health. With any autoimmune disease, Raynaud's included, it typically, if not always starts with an inflammed gut. We now know that inflammation of the GI system can cause a plethora of diseases and health issues. The functional medicine doctor in the city who is helping to heal my gut works with a health coach who has 5 different autoimmune diseases, one of them being Raynauds (yikes!). She was able to reverse and in some cases cure her autoimmune diseases by healing her gut, so it may be worth while for those of us on the forums with any autoimmune disorders to take a look at our gut health and how we can help heal it. I have a few really great remedies, supplements and protocols I've used to start the gut healing process if anyone is interested :).

summer16
Veteran Member


Date Joined Jul 2012
Total Posts : 1284
   Posted 2/23/2015 6:41 PM (GMT -7)   
I am interested, Dave.
toxic effects from 2 doses of Levaquin in 2008.....Xanax for 4 monrhs in 2008 (horrific withdrawal effects)......CDC positive for Lyme's in 2009 (prescribed 200 mg daily of doxycycline for 2 months........extreme fatigue, anxiety, decreased cognition, etc. and was becoming worse in 2012......tested for Lyme's through Igenix and was CDC positive.....treatment started 9/2012

orchid_rain
Veteran Member


Date Joined Apr 2014
Total Posts : 582
   Posted 2/23/2015 8:44 PM (GMT -7)   
DaveNJ41 said...
Hey all, I hope I can help add my two cents :). My mom is a health coach and in the recent years through her and with my own health struggles (as I know we all have!) learned a great deal about homepathic/holistic/herbal nutrition and the role certain parts of our body play in our health. With any autoimmune disease, Raynaud's included, it typically, if not always starts with an inflammed gut. We now know that inflammation of the GI system can cause a plethora of diseases and health issues. The functional medicine doctor in the city who is helping to heal my gut works with a health coach who has 5 different autoimmune diseases, one of them being Raynauds (yikes!). She was able to reverse and in some cases cure her autoimmune diseases by healing her gut, so it may be worth while for those of us on the forums with any autoimmune disorders to take a look at our gut health and how we can help heal it. I have a few really great remedies, supplements and protocols I've used to start the gut healing process if anyone is interested :).



Im also interested Dave! I think my gut is all jacked up currently :-//

Thanks in advance :)

-Courtney

teragram
Veteran Member


Date Joined May 2013
Total Posts : 4039
   Posted 2/24/2015 1:01 PM (GMT -7)   
Yes, very important to wear mittens as opposed to gloves. I wear thick insulated mittens. You can also use charcoal heat packs to put in your mittens or pockets. Wear socks and gloves (you can get thin ones at the drug store) at night. Place a hot water bottle at the bottom of the bed.

Wear leather gloves or something similar when you hold a cold thing.

Biofeedback helps.

M
HELLO!! :) :)

Margaret, 53, Lyme, relapsing remitting c. diff., complete thyroidectomy, remote breast cancer, Interstitial Cystitis, Babs, Bart, Fibromylagia, Immuneglobulin Deficiency, depression, asthma and allergies, migraines, myoclonous and remote seizures, orthostatic hypotension and dysautonomia

Medication, herbs, vitamins, probiotics.

AML94
Regular Member


Date Joined Jul 2014
Total Posts : 323
   Posted 2/25/2015 11:51 AM (GMT -7)   
I'm lying here right now with my cold white toes on a heating pad. I never had a problem until Lyme and company showed their ugly heads a year ago.

orchid_rain
Veteran Member


Date Joined Apr 2014
Total Posts : 582
   Posted 2/25/2015 2:06 PM (GMT -7)   
AML94 said...
I'm lying here right now with my cold white toes on a heating pad. I never had a problem until Lyme and company showed their ugly heads a year ago.


...Yup AML94, my feet/toes (& hands) have been freezing and going numb for last few weeks and the heating pad has been SO handy! Idk what the deal is between this and the tinnitus that has me feeling insane lately. A whole new array of symptoms :-// ....but ya'll are not alone.....


-Courtney

ValentineBaby
Regular Member


Date Joined Dec 2013
Total Posts : 95
   Posted 2/26/2015 6:50 AM (GMT -7)   
Thank you all for responding. The stinging, tingling and throbbing in hands and feet is crazy. I could not figure out why my feet hurt so bad when standing on a cold tile floor, but this certainly answers that question. It is weird that it decided to show up in "full color" after all this time. I guess having patriotic hands and feet is just another delightful "gift" from the bugs.

Lymie Girl
Veteran Member


Date Joined Jan 2015
Total Posts : 1332
   Posted 3/3/2015 11:08 AM (GMT -7)   
If you think you might have Reynaud's, please check out the possibility of ACA, which is much more common in European strains of Lyme. Although it is considered fairly uncommon, I think it goes underdiagnosed both in Europe and in the U.S. There have been cases reported in the U.S. It looks very similar to Reynaud's and could easily be mistaken for Reynaud's. Even some LL doctors are not familiar with it. I would like to raise awareness on this condition.

It can cause a lot of nerve issues, especially peripheral, numbness, tingling and pain.



https://kimmiecakeskickslyme.wordpress.com/2013/09/23/lyme-and-aca-the-herx-rash/





http://www.lymeneteurope.org/forum/viewtopic.php?f=5&t=3592&sid=d782d8da1646b68477e79c2ce8d9ea15




http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/3695166-acaskin-manifestations-of-lyme-disease



(See page 2 for reference to Reynaud's, but the whole thread is excellent)



http://emedicine.medscape.com/article/1051695-clinical#showall



https://picasaweb.google.com/AfterTheBite/LymeTBDRashes

Post Edited (Lymie Girl) : 3/3/2015 11:17:33 AM (GMT-7)


Willowgal
Regular Member


Date Joined Feb 2015
Total Posts : 21
   Posted 3/3/2015 11:42 AM (GMT -7)   
I've had Reynaud's for over 25 years. I've only had Lyme and co infections for the past 5-7 years. The gut thing makes a lot of sense though. I've had a lot of those issues my entire adult life.

IHL
Veteran Member


Date Joined Aug 2014
Total Posts : 2166
   Posted 3/3/2015 12:00 PM (GMT -7)   
I've had so many issues with my hands. I've been told everything from raynauds to ACA to I'm just insane. The skin was cracking and sloughing off. My hands stayed a blueish color for a long time. Now whenever they get wet they turn "black". They HURT. SO BAD!

Right now I'm just happy that my bed isn't being stained with blood every night. My joints arent near as swollen as they used to be etiher.

ArkansasLyme
Regular Member


Date Joined Nov 2014
Total Posts : 79
   Posted 3/3/2015 5:49 PM (GMT -7)   
Reynaud's can also be a sign of hypercoagulation which Lyme causes. Have you tried a biofilm buster like Lumbrokinase? It might improve circulation to your hands and feet, and it definitely helps the antibiotics do their work since the spirochetes like to hide out in biofilms.

Lymie Girl
Veteran Member


Date Joined Jan 2015
Total Posts : 1332
   Posted 3/3/2015 6:25 PM (GMT -7)   
Willowgal, I just wanted to raise awareness because Reynaud's and ACA can look very similar.

IHL, you're definitely not insane! ACA depletes the fat in your hands (and elsewhere in the skin) and the veins can stick out more. There can be a lot of reddish / reddish purple / reddish pink and reddish blueness to the ACA rash. The rash can look somewhat different depending on where it is located. It can appear somewhat shiny or luminescent. It can also look like psoriasis or eczema. It can cause nodules and swelling. It can make the hands and feet numb, tingly or painful-causes neuropathy. It can be very painful. You should ask your LLMD about it if you have not already. Anyway, maybe this will help someone out there.
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