Lyme/Bart and Stomach

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RunnerGirl82
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Date Joined Oct 2014
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   Posted 3/4/2015 11:36 AM (GMT -6)   
What kind of GI problems have you all experienced from Lyme (or Bart specifically since it's known for attacking the gut)? What eventually solved it (if anything did)?

Anything and everything...I'm really curious to compare to others who have experienced it.

Traveler
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Date Joined May 2007
Total Posts : 36310
   Posted 3/4/2015 3:29 PM (GMT -6)   
I have had a lot of GI issues, as that's been my weakest point in my body. I have severe intestinal cramps if I'm not careful to control them, motility issues (psuedo blockages & such), severe constipation, and other issues.

I've lost the actual "Hey I'm hungry" feeling, and only get a burning and nausea when I need to eat - so I rare crave foods- but in a cruel twist of fate, I also can't loose weight due to Lyme and thyroid issues.

When I was infected, I had nausea almost constantly to varying degrees. Also bloating every time I ate anything.

So I think that covers most of it.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
Back in treatment for new Lyme case 8/2014
*I can usually post a link to any info that I post. Wish to see a link? Please just ask!

RunnerGirl82
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Date Joined Oct 2014
Total Posts : 523
   Posted 3/4/2015 4:46 PM (GMT -6)   
Traveler-

Thanks for sharing. When I first became infected, one of my first very noticeable symptoms was sudden, severe nausea (so bad that I would run to the bathroom thinking I was going to throw up, but I never actually would). At the same time the nausea started, I also developed bloating like you mentioned, and other GI issues like minor reflux, belching, etc. None of these issues could be traced to any cause (no allergies, not food-related, had EVERY GI test in the world and everything was "perfectly normal")! Finally, when I found out I had Lyme and had my first LLMD appointment, he said yep...lyme (and specifically Bartonella) will cause those GI issues.

Do you remember an old member from a few years ago? Her name was "Mystery Illness". I am so thankful for her and that she posted about her symptoms. During the year I had no idea what was wrong with me, I started googling all kinds of my symptoms and started looking into Lyme. One day, Google pointed me in the direction of one of Mystery Illness's posts where she described her symptoms in lots of detail. She literally had almost all the same GI issues as me (down to the very specific issue of reflux & belching). She said it would happen to her hundreds of times a day...and eventually found out it was Bartonella.

I contacted her out of the blue, even though she was then inactive on the forum, and she emailed back and forth with me and helped me realize I may have Lyme and that I should get tested. I'm so thankful for finding her posts and for this forum where people are so open about what they are going through.

Ok...I just realized I went off on a huge tangent!!! Sorry!

BDL
Regular Member


Date Joined Dec 2014
Total Posts : 250
   Posted 3/4/2015 4:46 PM (GMT -6)   
Reccuring cramps when running.
abdominal cramps, tender to touch
nausea
constipated/diarrhea
bloating
Loss of stomach sensations ( before anything was seriously wrong I discovered I no longer could feel full, I ate 19 pancakes to show off to my friends!)

Dancingbear*
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Date Joined Oct 2014
Total Posts : 556
   Posted 3/4/2015 5:05 PM (GMT -6)   
BDL-LOL 19 pancakes to show off. Ha ha!

My stomach issues were my first symptoms that really stood out. I have lots of acid reflux, heart burn, bloating, no hunger feeling, rotten feeling in stomach, cramps, gas/burping, tender (could not wear tight pants even if they fit fine), nausea, sensitive to mostly everything.

Years ago I thought it was dairy intolerance. I wish that was all it was. I went on an autoimmune protocol diet and cut out most of the foods. I was down to about 5 foods I could eat and still didn't feel good. I was finally diagnose with SIBO just before finding out I have Lyme. SIBO was treated with a certain kind of abx that is supposed to stay in your digestive track. It worked as long as I stay away from sugar and carbs/starch. Not really a fun way to live, but my stomach feels better and actually I really don't care about food any more. I really miss a drink now and then more than I miss cake or pizza. Food is more of a pain at this point.

Also, every morning I start my day with L-Glutamine. I know that this has helped rebuild the mucosa lining in my stomach. I also take a doctor prescribed probiotic. I am very careful of what I put in my mouth. I should be grateful, my stomach is manageable at this point. I feel that it has healed a great deal since I have started treatment for lyme.
diagnosed October 2014. I am pretty confident that I have been infected since the summer of 2006. I also have hashimoto's/hypothyroid and SIBO.
IgM 18+ 23-25 IND 28+ 30- 31++++ 34IND 39++ 41+++ 45- 58++ 66- 83-93++
IgG 41 IND

RunnerGirl82
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Date Joined Oct 2014
Total Posts : 523
   Posted 3/4/2015 6:47 PM (GMT -6)   
Congrats on the 19 pancakes BDL! :)

Dancingbear*
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Date Joined Oct 2014
Total Posts : 556
   Posted 3/4/2015 10:38 PM (GMT -6)   
I forgot to add. I sometimes take bitters before my meals if needed. I always take a digestive enzymes with my meals to.
diagnosed October 2014. I am pretty confident that I have been infected since the summer of 2006. I also have hashimoto's/hypothyroid and SIBO.
IgM 18+ 23-25 IND 28+ 30- 31++++ 34IND 39++ 41+++ 45- 58++ 66- 83-93++
IgG 41 IND

Jackie Moon
Regular Member


Date Joined Apr 2014
Total Posts : 406
   Posted 3/5/2015 1:24 AM (GMT -6)   
My stomach symptoms are very similar to travelers except I have bouts of LOSING scary amounts of weight in short periods of time when I am just not "hungry" at all. I felt like throwing up all the time and never did. Also I had the worst anxiety of my life. I call it bacterial anxiety because regular anxiety doesn't hold a candle to it. Regular anxiety for me usually proceeds / follows stressful life events. This kind of bacterial anxiety shows up for no life event what so ever. Completely random and out of the blue. No anxiety meds touch it even previous effective ones at higher than normal doses. I have had the full work up like Mister Mike had and also show nothing in my lower GI. Colon cancer runs in my family so my regular doctors where very concerned. As odd as it sounds, what definitively caused my intense stomach / GI issues and bacterial anxiety to go away is being on antibiotics. Period. It's like night and day different. I say " odd" because I am a person who has terrible time taking antibiotics in the past (before infections). They were really hard on my stomach and made me sick almost always. This time it was completely opposite. It's a good thing I didn't listen to regular DRs and followed my "gut" to see a LLMD. I have read your gut and nervous system are connected. Bart is known to wreak havoc on your nervous system so I guess it would only make logical sense it includes issues with your GI.

Post Edited (Jackie Moon) : 3/4/2015 11:29:50 PM (GMT-7)


Simela1
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Date Joined Dec 2014
Total Posts : 1224
   Posted 3/5/2015 2:42 AM (GMT -6)   
Interesting, but how do you guys know that the GI issues are Bart related and not caused by Lyme? All 3 kids have GI issues but I never did! Oh, there we go! I feel like I don't fit in anywhere LOL
Healed 95% after 1 yr of 3 abx cocktails for Lyme and Bartonella.
No treatment for the past 5 years
Sympoms returned. 1 mo of Propolis is bringing me up to 98% symptom free
I was sure I was going to die and I made my funeral arrangements.
Love God, trust Him, and He will heal you.
I felt I was slipping down fast, and He caught me by my hand.
"I can't do it... I must do it... I will do it

RunnerGirl82
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Date Joined Oct 2014
Total Posts : 523
   Posted 3/5/2015 9:22 AM (GMT -6)   
Hey Simela,

I guess you don't know 100% that GI issues are related to Bart every time, but from what I've learned, Bart is notorious for causing stomach problems, so often times that's the cause. Maybe if Lyme meds haven't solved somebody's GI issues, you can start to assume maybe it's Bart and that needs to be treated?

None of my issues at all have been solved by Lyme meds, and I'm starting to doubt everything. That's why I'm hoping my new Bart meds will do something.

MarieLS
Forum Moderator


Date Joined Dec 2012
Total Posts : 2690
   Posted 3/5/2015 10:30 AM (GMT -6)   
I've been showing symptoms for about 20yrs, and have had gastro-intestinal issues for about 13yrs.

It started with reflux, GERD, gastritis - then I developped intestinal issues. For many years, I had severe and sudden intestinal cramping with diarrhea during the night. I had to get up 3 times a night (about 4 days a week) with cramps/diarrhea that made me cry. They were so severe that I had to take off all my clothes cause they were drenched in sweat after 2 minutes of cramps, my hair totally wet...
Then I started to react on food. I would eat something (a few years back, my dr discovered this was caused by histamine intolerance) and 10mins later (stopwatch puntual) I had to run to the bathroom with heavy cramps and diarrhea. I still have this when I eat something I shouldn't...
I was diagnosed with IBS, inflamed bowel, leaky gut, total intestinal dysbiosis (complete strep overgrowth).
During Lyme treatment, they discovered that my stomach isn't working enough. Gastroparesis.

I have both Lyme and Bartonella. But my dr is convinced that the gastric issues are caused by Bartonella.
This is btw how my sister was diagnosed with Bartonella: our dr was convinced she had Bartonella, but the tests kept on coming back negative. At the end, he dicided she should have a stomach biopsy. He then tested (PCR) that sample for Bartonella, and it came back positive! Stubborn doctor :-)
Moderator, Lyme Forum

Borrelia/Bartonella/Yersinia/Chlamydia Pn.

Started getting sick about 20yrs ago, diagnosed 2,5yrs ago.

Started treatment August 2012: 15 months of abx, followed by a modified Cowden Protocol since December 2013. On LDN for pain.

~The wound is the place where the Light enters you~

Traveler
Elite Member


Date Joined May 2007
Total Posts : 36310
   Posted 3/5/2015 1:26 PM (GMT -6)   
Actually, Bart is not solely responsible for GI symptoms, Lyme is very much involved in that. What it depends the most on is what condition the person's GI tract is in. I had Lyme only this last time, but because of the nerve damage that I had from my last go round with these infections, I had one heck of a roller coaster ride with my gut!!

And look at what happens to Neuro issues when Lyme and Bart are combined? Why would it leave out the nerves in the gut?

And look at the list of GI issues that Lyme can cause:
Bloating; intestinal gas
Decreased appetite
Digestive chemicals (acid, enzymes) reduced or absent
Esophageal reflux; heartburn
Frequent constipation
Frequent diarrhea
Food cravings (especially carbohydrates, sweets)
Food/Substance intolerance
IBS
Liver function impaired; mild abnormalities
Increased appetite
Nausea
Spleen tender or enlarged
Stomach ache, cramps
Vomiting
Weight gain or loss

I think it has a LOT more to do with how each body reacts to the bacteria, and how the infections progress, rather than it's one or the other bacteria. But having both Lyme and Bart is definitely a lot worse on the GI than just having only one of them! eyes
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
Back in treatment for new Lyme case 8/2014
*I can usually post a link to any info that I post. Wish to see a link? Please just ask!

RunnerGirl82
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Date Joined Oct 2014
Total Posts : 523
   Posted 3/5/2015 3:48 PM (GMT -6)   
Thanks, Traveler. Your post makes sense and is helpful.

I never really think of GI problems as having to do with the nerves, but it really makes sense if you think about it. I'm now wondering if some of my GI problems are because of nerves in my gut reacting differently than they used to. Hmmm...

Traveler
Elite Member


Date Joined May 2007
Total Posts : 36310
   Posted 3/5/2015 3:54 PM (GMT -6)   
I happen to believe we waste time trying to attach each symptom with a specific infection - unless we are trying to identify which infections we may have so that they can be treated properly.

To me, the real trick is finding ways to live with symptoms while we heal, not which infection to causes what symptoms and thinking that the symptoms don't overlap - especially with Lyme and Bart.

But that is my own personal opinion. I too wanted to know what infections I was dealing with!!
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
Back in treatment for new Lyme case 8/2014
*I can usually post a link to any info that I post. Wish to see a link? Please just ask!

RunnerGirl82
Veteran Member


Date Joined Oct 2014
Total Posts : 523
   Posted 3/5/2015 4:54 PM (GMT -6)   
You're probably right about wasting time trying to attach each symptom with it's specific infection. It can be hard just living with the symptoms until we heal and not fully understanding why they happen (or which infection is causing them). I should work on that...until then, I question everything :)

Traveler, what you said about the nerves in the gut made me think about one of my symptoms. One of my earliest symptoms that popped up when I first got sick was belching. Within about 2 weeks I had developed unexplained belching, nausea, constant muscle twitching, numbness in my arms, internal vibrating, blurry vision, floaters, shooting pains, weight loss, the list goes on! So it's obvious when I look back, this was the beginning of my Lyme Disease showing up.

There is no cause to the belching (or nausea) that any GI doctor could find. I do not have yeast, no mold, etc. It's not related to food either or allergies. It's almost like a different reaction my gut is having. It appeared with all my other symptoms at the exact same time. Even if I drink something (water included), I belch from it. It's like a quick gas build up or maybe the nerves in my gut just react differently now because of nerve damage from the Lyme or something.

I've met others with Lyme/Bart who have this same symptom. My LLMD has also seen it. It doesn't seem to be one of the most common symptoms, but it's out there. Others who have experienced this symptom said after Bart treatment, it went away. So maybe it's that.

I wonder if this is related to nerves in the gut acting up?

Traveler
Elite Member


Date Joined May 2007
Total Posts : 36310
   Posted 3/5/2015 5:34 PM (GMT -6)   
Something else that I've noticed is a lot of Lyme patients have "altered" amounts of stomach acid. I don't have enough, and some have too much. Those that have too much need to use tings like prevacid or other acid neutralizer, while I have to use digestive enzymes, ginger tea and other things to make sure that I have enough stomach acid to properly break down my food and it gets digested well.

Might be something for you to check into as well?
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
Back in treatment for new Lyme case 8/2014
*I can usually post a link to any info that I post. Wish to see a link? Please just ask!

RunnerGirl82
Veteran Member


Date Joined Oct 2014
Total Posts : 523
   Posted 3/5/2015 5:36 PM (GMT -6)   
Could be! I've looked into that, though it doesn't really explain why the act of putting even plain water into my stomach would result in gas. That's why I was thinking of a nerve issue or bacteria causing the strange reaction. Weird...

Traveler
Elite Member


Date Joined May 2007
Total Posts : 36310
   Posted 3/5/2015 6:10 PM (GMT -6)   
I wouldn't put much past these infections to be honest!!
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
Back in treatment for new Lyme case 8/2014
*I can usually post a link to any info that I post. Wish to see a link? Please just ask!

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 1988
   Posted 4/5/2018 3:32 PM (GMT -6)   
This is a really old thread I came across while searching for bartonella GI symptoms. Those who read my posts know I have Lyme and bartonella and gut dysfunction with IBS-C or recalcitrant constipation. I've had a lot of worsening symptoms for weeks to months now, as I've continued plugging along trying to treat the 3 B's with Buhner's herbal protocols. Last night I had bloating so bad I looked 6 months pregnant!!

I see the doctor tomorrow and will ask about more GI testing for Candida overgrowth, SIBO, leaky gut, and food allergies/sensitivities to see if any of those are involved. I recently had comprehensive stool analysis and stool culture that tested for parasites, bacteria, viruses, H. Pylori, and some other indirect lab markers. All normal. Not a thing was found. I'm also going to ask about hormones and neurotransmitters. I'm sure they're all depleted and likely contributing to all my dysfunction.

My gut has been worse along with most everything else. If I eliminate all the other stuff, then I'm left with Lyme and bartonella and having to hope that eventually, I'll turn a corner somewhere up the road and these symptoms will resolve. The constipation and gut issues worry me the most because they have been constant for 2.5 years now and haven't really responded to anything all this time, while other symptoms have fluctuated more or only occur occasionally or have responded somewhat to the herbs.

Has anyone had long term gut issues that eventually resolved by treating Lyme or Bart?

__________________________

Here are all the gut symptoms I've had thus far:

- Lifelong tendency toward constipation
- Unexplained belching (early symptom)
- Bloating off and on over the years
- Silent reflux symptoms
- Sudden onset of IBS-C that responded to nothing but magnesium citrate 2.5 years ago
- intestines felt like they were being squeezed flat by a vice
- bizarre shapes and formations of stool revealing that intestines were constricted
- poo that smells like a sewage plant
- Not feeling movement (peristalsis) from onset of IBS-C until I took a single capsule of S. boulardii last Nov
- since Nov: occasional intestinal pain; gurgling, bubbles in lower intestines especially after taking magnesium; passing lots of gas; crazy bloating starting under breasts down to pelvis, especially at night after taking magnesium; sometimes stomach or intestinal pain when eating; sore places in intestines

Checked out with multiple tests by GI doctor in late 2015. All was normal, thus the IBS diagnosis.

Donjr
Regular Member


Date Joined Apr 2018
Total Posts : 182
   Posted 4/5/2018 9:15 PM (GMT -6)   
Believe me this will sound weird but it works for me. Burping and hiccups use pickle juice dill. For muscle cramps too only about 2 ounce drink it. For gas and pain use italian dressin regular wishbone take it on a salad or eat a full tblespoon and if needed one more if not relief in 10 mins. Also delmonte green beens or green limas eat them three times a week when gut issues and in few days gone. But believe me i can not figure why but it all works. Use a few times and your gut gets better fast. Green beans is a must id you take probiotics because some good probiotics cause gas bad

Notime4lyme
Regular Member


Date Joined Dec 2017
Total Posts : 382
   Posted 4/6/2018 12:29 PM (GMT -6)   
I've had bartonella for a long time, and I've had most of the same symptoms. I've been slowly getting better in the last couple years. I no longer have constipation, and the bloating is manageable at least.

I'm trying to remember what seemed to help.I think artemesia annua and garlic helped my stomach feel better in general. I did a parasite cleanse, and it seemed to help some, even though I didn't really have that bad of a parasite problem. For some reason taking azithromycin seemed to help the bloating.

I think over the last couple of years, I've taken so many herbs and antibiotics that are supposed to give you diarrhea as a side effect that somehow the constipation went away. Also they probably got rid of the bartonella in my stomach. Andrographis and cat's claw seemed to be especially good. I also started taking boneset and it seemed to help.

I still get a bad episode of bloating once in a while. It is strange that is usually happens during the night or right after I get up and before I eat anything or take any herbs. When I get a stomachache I usually drink ginger tea, but sometimes it doesn't help much.

tommymama
New Member


Date Joined Jan 2018
Total Posts : 9
   Posted 4/6/2018 1:12 PM (GMT -6)   
i dont know what i have yet, or if i have lyme or something else but my digestive issues are that often i have no appetite....then other times im starving. lots of burping, constipation, and sometimes nauseaus. there was a while i could only eat toast and butter anything else made me feel sick. now i can eat most things but for some reason i cant eat sugary things they still make me feel sick, including chocolate sad...my doc thinks i have reflux so gave me medication to reduce stomach acid.

Notime4lyme
Regular Member


Date Joined Dec 2017
Total Posts : 382
   Posted 4/6/2018 2:33 PM (GMT -6)   
That sounds a lot like mine. Sugary things always make me sick. I'm not sure if digestive issues like that could be caused by anything else, but it sounds like you could possibly have Lyme, bartonella or parasites. I don't think what you are having is reflux, especially if you don't have heartburn, I'm not a expert though, so I don't really know.
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