So Jackie - you developed resistance by just lowering your dose of Rifampin for awhile? You didn't even stop it?
Yikes! i think if i go on Rifampin, I will start low for awhile and then go to full dose...hopefully I won't have to back down from herxes.
Probably a good idea.
Frankly I don't know how any doctor can say 100% for sure the bacteria is "resistant" to a certain medication?
It is speculation.
I have stopped meds. I get much worse with all Bart symptoms. Rifampin is DEFINITELY suppressing the bugs for me. But on meds I am also not getting "better." So Rifampin is not killing the bugs anymore. I did have a big die off for the first 3 months of Rifampin. All Bart symptoms with Bart rash and everything. No more die offs anymore.
Sigh... Stuck in limbo.
I found Dr. Burrascano from ILADS talks a lot about
this happening. Tick born Bartonella is different than regular Bartonella. That is why he calls it a BLO ( Bartonella-LIKE Organism ). He recommends trying a couple other drug combinations if rifampin isn't working and possibly herbals.
At least I know I still have options