Posted 8/28/2015 1:39 PM (GMT -6)
I'd call myself a success story, though I'm still in the process of getting to the "therapeutic dosage". (While my doctor does say that it operates at even 1.5, the so-called beginning therapeutic dosage for lyme is 4.5).
It's hard to know for sure, but I think it has helped me.. I believe it took my pain down a notch. Dr. Horowitz says LDN is for those patients who herx if you say the word antibiotic. It doesn't cover symptoms, what it effectively ends up doing is "turns on the lights of the immune system"... In the situation of lyme disease the immune system is often both overactive in some ways and underactive in some ways. In particular, the ways our immune systems are overactive causes inflammation. The idea with LDN is that it allows the immune system to self-correct. You can check out the low dose naltrexone website for a full description of the science :)
Again, I had wild insomnia and dreams for a little while, and then I was adjusted. It was a rough few days but even those days I also felt better! For me worth it.
My plan has been to increase to 4.5 as I can tolerate it and then hang out there for a while.. maybe try more than that at some point, but as I'm highly affected by drugs I figured this much would do the trick. Just don't increase too quickly, to let your body adjust and also to make sure that you're locating your "sweet spot" rather than breezing by it to an unhelpfully high dosage.
In my experience there are some serious price differences between different compounding pharmacies.... I price checked about 6 before I went with mine.