I think you have a good strategy. You have to cover your bases, which you are doing. You have to feel this doctor out and you have to be smart about
the context for the issues (insurance coverage) and dance around pushing him, which I love that you are prepared to do. Remember HE WORKS FOR YOU. And yes, it does take awhile to learn how to communicate better w/ doctors and nurses in order to figure out how they can best help you. I think we all struggle with that. I'm still learning and I literally have to prepare myself before each appt… not only to organize my thoughts (I write everything down beforehand, which takes a couple of days so that I make sure I remember everything and determine the best approach for sharing) but to also position myself, coordinate my brain and my thoughts for how to be bold, assertive, gentle but determined… in order to get the most out of the appts. I suck sometimes, other times I've succeeded.
One thing that makes us lymees unique is that most of our LLMDs "feel" their way through our care. When I mentioned they rely entirely on our communication, it's because there is no one protocol for us. We have such an insanely complex condition and they are reacting to how we react… a ping pong game. So, if they are not receptive to the information we're giving them, it's because either we are not delivering the info effectively or they are not going to receive it. It is so critical that this exchange is effective.
Yes, some conversations are better in person. I like your approach, please let us know how it goes. Keep in mind you could have both SIBO specific issues and y/f issues simultaneously. Also, you can explore the powder on your own, w/out his knowledge (for awhile, then I would share w/ him if you're finding it effective).
I love your mom. She is an angel. And introducing a nutritionist is genius. I'm still searching for one myself. For those of us w/ GI and immune issues, we are not getting near enough nutrition, which is a nasty cycle. Please let us know how that goes as well.
Regarding your letter:
Looks great LOL. I would restate the sentence that begins w/ "Are you aware" and change it to "I have recently learned the difference between the PURE…. and I want to ensure we are keeping this in mind."
And then in closing, I would restate that you are looking forward to seeing him next thurs, to reiterate that you are committed to your partnership and not just angling for him to write an Rx and run.
Let us know how it goes! May the force be with you... Fingers crossed!
Post Edited (Pirouette) : 6/9/2015 12:59:36 PM (GMT-6)