Help..I think My 4 year old has Lyme

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

cccmama3000
Regular Member


Date Joined Jul 2014
Total Posts : 256
   Posted 6/5/2015 5:09 PM (GMT -6)   
I have a strong suspicion my son has lyme. I have had it since 2002 (did not get diagnosed until 2014) and both of my children were born before I started treatment. Well now my older son has a huge lymphnode on his neck, complaining of headaches and his labs came back normal with the exception of the following...elevated SED Rate, CRP and Vitamin D levels were low. His ped referrered us to a ENT specialist, but I will also be giving him a lyme test and going to my LLMD doc next week.

Do those labs results seem like lyme? The reason I think it is, I remember years ago before I even knew I had lyme, I was getting these strange headaches and I went to the doctor and the only thing that came back abnormal was and elevated SED rate. I also used to always have low Vitamin D as well.
2003 Found 2 ticks on me, never got a bulls eye rash
symptoms: anxiety, panic, bone pain, joint/muscle pain, brain fog, twitching, numbness, tingling
6/2014 - diagnosed with Lyme, Bart and Babesia
08/14/14 started doxy, 9/3/14 IV Rocephin, bactrim, tindamax
5/13/15 PICC removed
acupuncture, Chinese herbs, juicing, supplements, dry brushing, detox baths, detox foot patches.

BarnGurl
Veteran Member


Date Joined Sep 2013
Total Posts : 1426
   Posted 6/5/2015 5:27 PM (GMT -6)   
Hi

I have an enlarged neck node and I was negative with elevated SED rate only. I have chronic Lyme and responded to tx immediately. I had severe symptoms and was around livestock at my home for ten years.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33872
   Posted 6/5/2015 5:35 PM (GMT -6)   
CCCmama - Sorry you have this to worry about now!

I had a swollen, sore clavicle lymph node along with low Vit. D...even though I was supplementing 2-4000 daily. (Prior to diagnosis) My SED rate was fine, though.

I would have an Igenex WB done...see what it shows.
Moderator, Lyme Forum
Symptoms started April/13; Buhner's protocol May 15/14 to July24/14
Igenex pos. July 3/14 Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14
Amox 1000mg x3 + Probencid Aug. 29/14; added biaxin 500X2 Sept. 26/14
Disc. amox and added Ceftin Nov. 20th. Jan/15 pulsing Tindamax ; disc biaxin
Buhners bart herbs added Dec/14; ABX/Buhner herb break Apr/2015

cccmama3000
Regular Member


Date Joined Jul 2014
Total Posts : 256
   Posted 6/5/2015 5:44 PM (GMT -6)   
I got a message stating Girlie responded, but I cant see what she wrote?
2003 Found 2 ticks on me, never got a bulls eye rash
symptoms: anxiety, panic, bone pain, joint/muscle pain, brain fog, twitching, numbness, tingling
6/2014 - diagnosed with Lyme, Bart and Babesia
08/14/14 started doxy, 9/3/14 IV Rocephin, bactrim, tindamax
5/13/15 PICC removed
acupuncture, Chinese herbs, juicing, supplements, dry brushing, detox baths, detox foot patches.

bluebyyou
Veteran Member


Date Joined Nov 2006
Total Posts : 1952
   Posted 6/5/2015 5:57 PM (GMT -6)   
Hi Cccmama,

A Western Blot test sounds like a great idea. Glad you are going to take him to your LLMD. Low Vitamin D can sometimes indicate an infection.

Keep posting, okay? We are here for you and your son!
"If you can't fly then run, if you can't run then walk, if you can't walk then crawl, but whatever you do, you have to keep moving forward." -Martin Luther King

"Be kind, be brave, be well."

Lyme Disease Forum Moderator

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33872
   Posted 6/5/2015 7:40 PM (GMT -6)   
Ignored my posts! - I won't take it personally. :-)
Moderator, Lyme Forum
Symptoms started April/13; Buhner's protocol May 15/14 to July24/14
Igenex pos. July 3/14 Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14
Amox 1000mg x3 + Probencid Aug. 29/14; added biaxin 500X2 Sept. 26/14
Disc. amox and added Ceftin Nov. 20th. Jan/15 pulsing Tindamax ; disc biaxin
Buhners bart herbs added Dec/14; ABX/Buhner herb break Apr/2015

Proverbs356
New Member


Date Joined Mar 2018
Total Posts : 4
   Posted 5/15/2018 1:21 PM (GMT -6)   
Hi ccmama3000,

How is the bee venom working for you still. I know you haven't been online in a while and I can't seem to message you privately. We too have young kids who got Lyme in utero. Would it be possible for you to private message me, would love to hear how your kids are doing and if you can help us as we try to figure out the right treatment. Thank you so much.

Jasperilla
Regular Member


Date Joined Jan 2015
Total Posts : 229
   Posted 5/15/2018 1:47 PM (GMT -6)   
I think it's good that you're taking him to your LLMD. When I was going through diagnosis, most of my labs were normal with the exception of an elevated CRP, SED, and low vitamin D. I also had Lyme while I was pregnant (but didn't know it), and have learned that all 3 of my kids have congenital Lyme. It's good to find out and get him started on treatment!

goshawk
Forum Moderator


Date Joined Sep 2016
Total Posts : 2299
   Posted 5/15/2018 5:58 PM (GMT -6)   
Hi Proverbs356 and welcome to our forum,

You have posted on an older post so I am not sure if ccmama3000 is still active on our forum or not.

We do have other members that have children with congenital Lyme just like Jasperilla has mentioned.

Feel free to start a new post on our main page and ask any questions you want to.

We also encourage all new members to read our "New to Lyme" start here thread at the top of the page.

It has good and useful information on Lyme, detoxing, symptoms and more.

Sorry for what your family is going through and I wish you all the best of healing.

Take care.
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, August 17, 2018 5:52 PM (GMT -6)
There are a total of 2,993,865 posts in 328,086 threads.
View Active Threads


Who's Online
This forum has 161248 registered members. Please welcome our newest member, RJS321.
291 Guest(s), 7 Registered Member(s) are currently online.  Details
Nick_69, KitKat880, InTheShop, ShinytopPC, ltc1225, Aerose91, borborygmi