Skinny hands and feet-I know sound weird

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Iheartx
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Date Joined Jun 2015
Total Posts : 337
   Posted 6/18/2015 2:55 PM (GMT -6)   
I have lost weight and I believe muscle, my hands and feet look super skinny, you can see the tendons in them worse on the left hand and I have a place that is sunk in on the top in between the tendons of my pinky and ring finger.

Has anyone else had this problem and how do I get this to come back to normal?

Thank you,

Iheartx

Girlie
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Date Joined May 2014
Total Posts : 32601
   Posted 6/18/2015 3:34 PM (GMT -6)   
I have lost weight - even muscle.

the back of my hands show tendons and big blue veins - I'm thinking it must be from lack of fat and muscle.

Same with my feet - very veiny and also wrinkly in some places.

My feet and hands make me look 90 years old.

I don't know when/if it comes back after treatment.
Moderator, Lyme Forum
Symptoms started April/13; Buhner's protocol May 15/14 to July24/14
Igenex pos. July 3/14 Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14
Amox 1000mg x3 + Probencid Aug. 29/14; added biaxin 500X2 Sept. 26/14
Disc. amox and added Ceftin Nov. 20th. Jan/15 pulsing Tindamax ; disc biaxin
Buhners bart herbs added Dec/14; ABX/Buhner herb break Apr/2015

Iheartx
Regular Member


Date Joined Jun 2015
Total Posts : 337
   Posted 6/18/2015 5:52 PM (GMT -6)   
Thank you for your response Girlie, I wonder if Trav had this experience too and if she had any resolution. Maybe after she gets feeling well I can ask her.
Can I ask around how old you are, I'll be 40 in a couple of weeks.

Iheartx

NotQuiteAntonio
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Date Joined Jan 2015
Total Posts : 1134
   Posted 6/18/2015 6:15 PM (GMT -6)   
Yup, same. I am a twig. Grossly skinny. I hate it. Thing is, it's been so hard for me to find foods that both my body can tolerate and those I can afford to eat on a regular basis. I know, there's a whole list of foods that are "safe" for us. The quotations are not to imply that they aren't in fact safe, just in my case. But, yeah, I have trouble with a big chunk of 'um.

I don't know if it's candida, mold, sensitivities brought on by the infections, or a combination, but.. really sucks, having your diet be wittled down to nothing, struggling not to starve to death.

I would just eat more, but, with how little options I have, I don't want to keep throwing the same stuff in there in mass. I'm thinking that could be how I developed issues with other foods to begin with, eating them all the time, meal after meal.

Anyway, now that I take a second look, seems you guys have sort of just slimmed down from being sick and stuff, rather than just diet alone?

I'm sure I'd be fine, if I could just eat better.

Oh well..

Hope something changes for you..
Ever the loser..

Girlie
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Date Joined May 2014
Total Posts : 32601
   Posted 6/18/2015 6:30 PM (GMT -6)   
Antonio - I lost my weight in a matter of weeks when I first got ill. But, I was eating fine and hardly moving, so i should have gained weight.

Definitely from infection, not because I wasn't eating enough.

But, I've gained some back, I'm a healthy weight now.

The fat on the back of my hands...came several months later, wasn't with the weight loss in my case.

And it's still gone...even though I have gained weight.
Moderator, Lyme Forum
Symptoms started April/13; Buhner's protocol May 15/14 to July24/14
Igenex pos. July 3/14 Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14
Amox 1000mg x3 + Probencid Aug. 29/14; added biaxin 500X2 Sept. 26/14
Disc. amox and added Ceftin Nov. 20th. Jan/15 pulsing Tindamax ; disc biaxin
Buhners bart herbs added Dec/14; ABX/Buhner herb break Apr/2015

gkamom
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Date Joined Apr 2015
Total Posts : 768
   Posted 6/18/2015 9:28 PM (GMT -6)   
I experienced the same extreme weight loss, but I was in my 40's at least 25 years after I started having symptoms.

When I was in my late 20's, I went to see a doctor about ringing in my ears. He did an exam but we never determined the cause. This was well before my diagnosis of Fibromyalgia. The doctor however did find a lump in my thyroid. I was sent for a radioactive iodine test (I think). It showed that one side of my thyroid was mostly inactive and the other side was compensating. No one was worried but they suggested if I started having symptoms of over active thyroid or things like extreme thirst, then I should have it rechecked.

Fifteen or twenty years later was when I had a very sudden and extreme weight loss. I've never been on a diet and there was no change in my eating habits. I researched and got concerned that something might have changed in my thyroid. Extreme weight loss would be a symptom of over active thyroid. Extreme weight gain would be under active thyroid. I made an appointment with my Rheumatologist (he and my primary split things up depending on who is most likely to have already talked to me about a related subject) and we discussed it. He said you want me to run a thyroid test because if you go to a specialist they will think you are a hypochondriac. Yep. Hit the nail on the head.

My numbers came back and they were abnormal. However, they leaned more towards under active than over. Under active causes weight gain. So they sent me to a specialist. He told me that he sees some patients that just when the numbers begin changing (TSH goes up, T3/T4 go down), show symptoms of over active thyroid. Thus the reason my husband was able to count the vertebrae in my spine and I was able to count my ribs. It also effected my EKG. I was so thin that the EKG leads picked up my heartbeats multiple times. This was the Cardiologist's explanation.

So the thyroid doctor put me on synthroid and my thyroid numbers normalized. There was no evidence of the lump that had been seen previously, so my primary started monitoring my thyroid levels to cut down on extra doctors. One thing we did was mess around with the amount of synthroid I took. I didn't really feel better with my numbers in the middle of the normal range, although I stopped dropping the weight. My primary said that some people feel better with the values in the higher range of normal. So we played with the dose until I saw a difference.

My weight has now flopped to me being too heavy. Again no change in diet. It never varies more than a pound or two. It doesn't matter if I stuff my self all day long or eat nothing at all. I suspect that at this point I'm retaining fluid at least in my stomach area and that is a major factor in my weight. I'm really sensitive to some foods, but haven't yet figured out what they all are. I have major digestive problems. I didn't weigh this much at my maximum pregnancy weight, but I look right now as if I'm 5 months pregnant.

It definitely won't hurt to check your thyroid hormone levels, but make sure the doctor runs the free T3 and T4 in addition to TSH. TSH by itself is sometimes misleading. TSH tells the body when to produce T3 and T4 which are the actual hormones your body needs. When you have an under active thyroid, TSH may go really high because your body is saying there's not enough T3/T4. TSH tells the thyroid to produce T3/T4. If there's not enough T3/T4, TSH is produced to say make more. TSH will continue to be raised as long as there's not enough T3/T4, so it can go way up if the right message is getting through. TSH can be really low if there is too much T3/T4. You really need all three levels to get the full picture.

Good Luck,
Kim

Riverbel
New Member


Date Joined Jun 2015
Total Posts : 11
   Posted 6/19/2015 5:29 AM (GMT -6)   
I have the same thing with my hands! No fat and sunken in and big blue veins. Fingers got crooked and sensitive. I am 69 only 113 lbs (but I'm short) but my hands never were like that until 2 years ago.
DX 2010 PMR, DX 2013 LUPUS, DX 2015 Lyme Disease

Iheartx
Regular Member


Date Joined Jun 2015
Total Posts : 337
   Posted 6/19/2015 5:44 AM (GMT -6)   
Thank y'all,
I think my feet and ankles and hands were where I truly noticed my weight loss first, an ankle bone on the right that is never noticed sticking out and my hands look so old.
Then my clothes started to get bigger and I finally weighed myself.
I come from German stock and heaviness runs on both sides of my family, I have always struggled to loose weight so all of a sudden I'm dropping weight without trying. Months ago I did have this time frame that I had loss of appetite and I then realized that I had been that way for a little while and I started forcing myself to eat. Still lost weight and even tried adding Ensure to get enough calories, again this is all abnormal for me. My appetite gets really good for awhile and I put a few lbs back on and then I drop them.
One of the many drs I saw said that around 150 is normal for a women my height and I am stick at 160 to 165 so he wasn't concerned, well when you feel like the life is being sucked out of you and there is a sudden change to unintended weight loss and you hands and feet are sickly looking then it's concerning. I wonder if some muscle milk type product will help when we are healed.
I have had my thyroid levels checked several times because I was thinking this was thyroid not lyme, and I had them all checked including for antibodies, all within range.

Thank you,

Iheartx

Iheartx
Regular Member


Date Joined Jun 2015
Total Posts : 337
   Posted 6/19/2015 5:47 AM (GMT -6)   
My mother is 63 and I look at her hands compared to mine, he hands just look older then mine because her skin is thinner but mine just as thin and can see all the tendons and veins like hers but her moms hands were like that to, because of this garbage mine just got there faster. My sister who is two years older then me, he hands are nice, not thin and bulging veins and tendons!

:-(

Iheartx

dacarte3
Veteran Member


Date Joined Feb 2016
Total Posts : 1897
   Posted 8/28/2017 10:43 PM (GMT -6)   
Bumping this old thread because this is happening to me now in a bad way.

In a matter of hours my left hand went to crap. Boney, sunken. Fat and collagen just evaporated so quickly. It first started when I got lyme but to a reasonable degree. Now it's wasting on another level.

Please tell me after 2 years, some one has some good news on it recovering with treatment.

Is this seriously lyme? I'm freaking out.

Xelaetaks
Regular Member


Date Joined Jan 2013
Total Posts : 347
   Posted 8/28/2017 11:04 PM (GMT -6)   
Yes. I don't gain weight even when I eat a lot. And I've lost body mass over the past few years. People think I look very skinny. I used to have more mass on my body.

My LLMD thinks as I treat I can regain some fat so hopefully that helps.

I suspect it's from a combination of Lyme and confections.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32601
   Posted 8/29/2017 12:24 AM (GMT -6)   
dacarte3 said...
Bumping this old thread because this is happening to me now in a bad way.

In a matter of hours my left hand went to crap. Boney, sunken. Fat and collagen just evaporated so quickly. It first started when I got lyme but to a reasonable degree. Now it's wasting on another level.

Please tell me after 2 years, some one has some good news on it recovering with treatment.

Is this seriously lyme? I'm freaking out.


Mine hasn't gotten better. Still tendons and blue veins - But it hasn't gotten any worse either.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

bluelyme
Veteran Member


Date Joined Nov 2015
Total Posts : 4715
   Posted 8/29/2017 5:08 AM (GMT -6)   
Girlie said...
dacarte3 said...
Bumping this old thread because this is happening to me now in a bad way.

In a matter of hours my left hand went to crap. Boney, sunken. Fat and collagen just evaporated so quickly. It first started when I got lyme but to a reasonable degree. Now it's wasting on another level.

Please tell me after 2 years, some one has some good news on it recovering with treatment.

Is this seriously lyme? I'm freaking out.


Mine hasn't gotten better. Still tendons and blue veins - But it hasn't gotten any worse either.


same as girlie ...i was just lamenting the loss of my hand and feet tissue.
stinging the areas sometimes makes me think its normal again..it seemed to to be a mnd nerve thing which makes me not want to let up on hd bart treatment. One guy said he stopped his through 3 years of floxies and tetracyclines and was targeting mycoplasma but could be he was treating bart too...ill stick with bees and hh2, may try prp or stem cells down the road but i am gaining weight.randy and i notice that royal jelly helped .i think its the acetylcholine

dacarte3
Veteran Member


Date Joined Feb 2016
Total Posts : 1897
   Posted 8/29/2017 5:22 AM (GMT -6)   
Girlie said...
dacarte3 said...
Bumping this old thread because this is happening to me now in a bad way.

In a matter of hours my left hand went to crap. Boney, sunken. Fat and collagen just evaporated so quickly. It first started when I got lyme but to a reasonable degree. Now it's wasting on another level.

Please tell me after 2 years, some one has some good news on it recovering with treatment.

Is this seriously lyme? I'm freaking out.


Mine hasn't gotten better. Still tendons and blue veins - But it hasn't gotten any worse either.


*sigh*.

So that's it uh? I'm just going to look like this for the rest of my life.

WalkingbyFaith
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Date Joined Aug 2017
Total Posts : 1677
   Posted 8/29/2017 11:36 AM (GMT -6)   
I don't think it's forever. You just have to get to the root of it. It could be from infections. It could also be from other imbalances and dysfunction in the body.

My parents and I were in a moldy home, which we left 11 months ago. All 3 of us lost over 20 lbs. My parents are still losing weight, partly because they are eating less and less, and they're not treating.

I started losing weight when I got sick in 2015. In Aug 2015, I weighed 113 lbs. Right after that, I got IBS (constipation only) and reflux and started trying to change my diet. I kept getting sicker and by the spring of 2016, I dropped to 87 lbs and looked anorexic. My muscles had already been slowly disappearing for several years. I thought it was just age (I'm 47).

In Oct 2016, I chucked the whole diet thing and started eating whatever I wanted. I felt like I was literally starving to death. I ate like a teenager until April of this year, when my appetite slowed down. By then, I'd gotten up to a whopping 91 lbs. A few months later, I was up to 94 lbs after going back to my hazelnut iced coffee addiction. I stopped that a couple weeks ago, and lost a couple lbs.

I also have BIG gnarly veins, especially on my hands. They've been that way since my youth. My mother's hands are the same way, so I used to think it was hereditary. Now I think it may have to do with Bartonella. I know I read somewhere that Bart can cause big veins. Can't remember now where I read it.

P.S. - After I started eating like a teenager, my body started to look normal again and my muscle tone came back. But, I kept eating bad food and eventually I started losing muscle tone again. I also am not getting the exercise (walking) I was getting.

Anyway, my body morphed and continues changing. Time will tell once I treat everything and recover. I'm hopeful. I've had signs of Bart and maybe babs since early childhood, so a lot of things I thought were normal for me probably were never normal at all.

dacarte3
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Date Joined Feb 2016
Total Posts : 1897
   Posted 8/29/2017 12:03 PM (GMT -6)   
WalkingbyFaith said...

My parents and I were in a moldy home, which we left 11 months ago. All 3 of us lost over 20 lbs. My parents are still losing weight, partly because they are eating less and less, and they're not treating.



If I'm not lying to myself then I have to admit I have mold. I'm not an mold expert so I don't know the different species and which was a very bad and which ones are more innocuous.

Good news is, I'm moving in a month from my current residence.

dacarte3
Veteran Member


Date Joined Feb 2016
Total Posts : 1897
   Posted 8/29/2017 12:07 PM (GMT -6)   
When very troubling symptoms like this happen my mind just start thinking this can't just be lyme. I know lyme can do horrible things but when it happens to you it's hard to wrap around the fact a microscropic microbe can do all this.

So I don't have cancer? So I don't have some new form of AIDs that can't yet be tested?

I guess that's kind of good to know (kind of).
Positive for Lyme (Igenex), Ehrlichia (Igenex), and Mycoplasma (Labcorp)

ABX Treatment: 03/2016-04/2016
Buhner Protocol for Lyme and Mycoplasma: May 2016 - Dec. 2016

07/2017: Enjoyed a good 6 months symptom free. Relapsed. Back on herbs and abx.

WalkingbyFaith
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Date Joined Aug 2017
Total Posts : 1677
   Posted 8/29/2017 12:21 PM (GMT -6)   
dacarte3 said...
When very troubling symptoms like this happen my mind just start thinking this can't just be lyme. I know lyme can do horrible things but when it happens to you it's hard to wrap around the fact a microscropic microbe can do all this.


I agree. It isn't JUST LYME. It's a host of things working in concert in a dynamically changing environment both inside and outside of our bodies that cripple the immune system and cause dysfunction.

RedLabel
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Date Joined Feb 2017
Total Posts : 216
   Posted 8/29/2017 12:24 PM (GMT -6)   
Ohh dacarte. I get the same feelings. Actually terrified that it might be something else, but I try to trust my LLMD as she is the only one that have found anything wrong with me at all.

There are some dark places on the internet. I try to stay away from those as panic can really take hold of you
Lyme, CPN, Yersinia, Coxsackie, CMV and Bartonella after LLMD visit.
CD57 of 0

Started treatment in May 2017

WalkingbyFaith
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Date Joined Aug 2017
Total Posts : 1677
   Posted 8/29/2017 12:35 PM (GMT -6)   
dacarte3 said...

If I'm not lying to myself then I have to admit I have mold. I'm not an mold expert so I don't know the different species and which was a very bad and which ones are more innocuous.

Good news is, I'm moving in a month from my current residence.


PLEASE learn about mold exposure. If you want any hope of full recovery, you will need to learn the facts, know how to test your environment properly, and know what lab tests your doctor can do to properly evaluate and treat you.

Mold is a lot like Lyme. The government and medical community don't believe it can cause the range of illness that it in fact does, and have seriously flawed guidelines for testing and remediation.

Please educate yourself and have an ERMI test done on any place you live, work, or regularly spend time in.

www.survivingmold.com

www.biotoxinjourney.com

[url]www.paradigmchange.me

dacarte3
Veteran Member


Date Joined Feb 2016
Total Posts : 1897
   Posted 8/29/2017 12:45 PM (GMT -6)   
WalkingbyFaith said...
dacarte3 said...

If I'm not lying to myself then I have to admit I have mold. I'm not an mold expert so I don't know the different species and which was a very bad and which ones are more innocuous.

Good news is, I'm moving in a month from my current residence.


PLEASE learn about mold exposure. If you want any hope of full recovery, you will need to learn the facts, know how to test your environment properly, and know what lab tests your doctor can do to properly evaluate and treat you.

Mold is a lot like Lyme. The government and medical community don't believe it can cause the range of illness that it in fact does, and have seriously flawed guidelines for testing and remediation.

Please educate yourself and have an ERMI test done on any place you live, work, or regularly spend time in.

www.survivingmold.com

www.biotoxinjourney.com

[url]www.paradigmchange.me


You are right and you are being very helpful and I appreciate it greatly.

But I'm already a borrelia expert, a mycoplasma expert, a candida expert, a morgellons expert, an ACA expert, a herbalist, and pretty much a license nutritionist at this point. PHD from Lyme University.

I really don't want to become an expert on mold now. There's no room left in my brain.

I just hope moving away from it in a month solves that issue.
Positive for Lyme (Igenex), Ehrlichia (Igenex), and Mycoplasma (Labcorp)

ABX Treatment: 03/2016-04/2016
Buhner Protocol for Lyme and Mycoplasma: May 2016 - Dec. 2016

07/2017: Enjoyed a good 6 months symptom free. Relapsed. Back on herbs and abx.

WalkingbyFaith
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Date Joined Aug 2017
Total Posts : 1677
   Posted 8/29/2017 1:46 PM (GMT -6)   
dacarte,

I'm laughing so hard, I'm choking on my lunch right now😂

Garion
Regular Member


Date Joined Feb 2018
Total Posts : 34
   Posted 5/14/2018 10:47 AM (GMT -6)   
Hey so bumping this thread again.

Dacarte, did you get any relief after moving? Also any solution to the skeleton hands? I've noticed that both my hands and feet, although most notable in my hands have become really skeletal, basically between my finger tendons there are now divets. I'm in my early 30s so i really don't want to believe this is just the new normal.

Do you guys believe it's muscle and fat related? So in theory if we can gain weight and muscle we could get it back? Or is it more nefarious like collagen being eaten away and it's gone for good?

Girlie
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Date Joined May 2014
Total Posts : 32601
   Posted 5/14/2018 11:51 AM (GMT -6)   
I think it's collagen. If it was fat, I think it would have come back since it came back on the rest of my body..why not the hands and feet?

I have a friend who is older (she's 64) and her hands don't look all scrawny like mine with blue bulging veins.


I have the collagen...started taking it...but then stopped.

I'm doubting that ingesting collagen will promote it coming back on my hands and feet.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

bluelyme
Veteran Member


Date Joined Nov 2015
Total Posts : 4715
   Posted 5/14/2018 6:18 PM (GMT -6)   
i think its a nerve damage thing with bart n myco ....halted mine hasnt improved trying shock wave and kilos of royal jelly with ongoing bvt ...high dose biotin and collagen may help but first the insult and injury must be addressed imho intercellular pathogens in the ganglion nerve bundles ...

some may be gut absorption...read "no more muscles" story on lymenet ...he took a lot of abx ...im 30 #s heavier than 3yrs ago at my sickest ...i went big to small pathogens, starting in gut ....on the order addressed ...

Post Edited (bluelyme) : 5/14/2018 6:21:03 PM (GMT-6)

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