I'm so very sorry, Sweetpea. I know how hard this is. But honestly, if someone had come to me and told me all the things I would deal with once I had Lyme and company, I surely wouldn't understand it either. I mean how can someone understand it if they didn't have to live it?
Those that are closest to us seem to hurt us the most, but I suspect it's because we expect so much more from them - at least this was the case in my own relationships. I did have some that were just cold to my issues (My Mom when I was young), but mostly those around me just couldn't comprehend that I was still
so sick - constantly - whether I looked like it or not.
They get the impression that we are doing okay when we force ourselves to do things that we do - like taking care of a garden, or a child - without realizing how much we pay for it. It took my best friend and husband years to understand how much I pay for things, and yet he still was absolutely amazed at how horrible he felt in the first week of a Lyme infection and realized that I had lived that way all my life. The look of shock actually made me feel kind of bad - LOL!
The best thing you can do is to get them educated. I know how hard that can be for some, but keep trying. Here are a few things that may help:
So you know someone with Chronic Lyme disease: www.tiredoflyme.com/so-you-have-a-friend-or-family-member-with-chronic-lyme-disease.html#.U3dTc3bbS1t
" Dear Family of a Lyme Disease patient"goo.gl/vujRB6
And of course, the movie: Under Our Skin can be seen for free on Hulu.com and Netflix.
Hang in there and come here to vent instead of taking it out on your family. They simply can't understand what you are dealing with or how you get through your days.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15
*I can usually post a link to any info that I post. Wish to see a link? Please just ask!