Welcome to our community!! I'm so glad you found us!
First of all, I'm so terribly sorry for your loss of your mother. I'm sure that it hit you hard both physically and emotionally.
If you haven't found a LLMD to work with yet, I actually have names and contact information of a few doc's in Nevada that might be able to help - they aren't LLMD's as far as I know, but they are Lyme friendly and may be willing to work with a LLMD to help you get well. You can send me an email to request this information - just be sure to include your state so that I know what area you need.
I also wanted to mention that doc's that don't know what they are looking at when it comes to these infection frequently diagnose things like Lupus or MS - it has a lot to do with the inflammation that is in our bodies, but it's still a misdiagnosis.
Testing for Lyme and any of the other infections that are frequently present are really quite inaccurate in that they miss a lot of those with the infection. Part of the reason why is because Lyme inhibits the immune system - so it can't respond by producing the antibodies that these tests rely on - so we get a lot of false negative, but rarely see a true false positive.
We are here to help you find your way through this whole thing!!
And by the way - you should know that I healed from a 40 yr old Lyme infection with herbs only - so the LLMD that said you can't heal with alternative medicine just doesn't understand.