Welcome to our community!! I'm so glad you found us!
If you haven't yet, it would be helpful for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as it is packed full of important information, symptom lists, helpful links and pdf's, how to detox when one has these infections, information on probiotics and much more.
Maui has given you some very good information already, let's see if I can add to it for you.
As Maui said - band 23 is specific to Lyme - A "Lyme specific band" means specific for Borrelia Burgdorferi, sensu stricto - Lyme disease in the strictest sense. There is only one
on the over 300 known strains of Lyme that is considered Bb, ss. Nothing else will turn a Lyme specific band positive other than Lyme disease. So you can see that this is pretty significant.
As Maui also explained, the tests are only looking for the antibodies that are produced when the immune system attacks the bacteria, but with Lyme, the bacteria actually inhibit the immune system so that it can't react to the bacteria. The tests that we currently have were actually designed for tracking the disease, not for diagnosing it.
Also any equivocal or IND that you see on that test are to be counted as positives, as it only means that there wasn't a strong enough reaction to have it be a "fully" positive response - but there were antibodies to that band. Did you have any IND's or Equivocals on your test?
It's likely that you had one infection and weren't treated properly for it and you have relapsed a few times - that's how things usually go for those that don't see a doctor that is highly knowledgeable on these tick-borne infections and have training through ILADS -International Lyme and Associated Diseases Society.
For information on finding an ILADS (International Lyme and Associated Diseases Society) trained Lyme Literate Medical Doctor(LLMD) in your area, you will need to enable your email option in your profile in order to receive any recommendations, as we don't allow doctor's names and contact info to be posted on the forum for several reasons. You can enable your email option in your profile, under 'edit profile'. Be sure to click the submit button to actually save your preference.
You can send me an email by clicking on my screen name or the small blue envelope under my screen name. I may have contact information for some LLMD's in your area as well. Please include your state and area that you would like to find a LLMD in and I will see how close I can get to your
You can start a new thread (or change the title of this one) titled something like "Looking for LLMD in the Westchester/NYC area area". Members can email you about
the LLMD's that they see in that area if you have your email enabled. We don't allow doctors names to be posted though.
You can also email the Tick-Borne Disease Alliance at[url]email@example.com for LLMD referrals and you can go to tbdalliance.org
to learn more about
You can also go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74
You will want to find an ILADS (International Lyme And Associated Diseases Society) trained doctor, as ID Docs (Infectious Disease Doctors) believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. Go to the ILADS site to read the new (2014) Treatment guidelines to get you started on your healing journey: www.ilads.org/lyme/treatment-guideline.php
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15
*I can usually post a link to any info that I post. Wish to see a link? Please just ask!