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Looking for LLMD in Jeffersonville, Wayne, Limerick area

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Lyme Disease
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MrWright
New Member
Joined : Jul 2015
Posts : 6
Posted 7/28/2015 2:49 AM (GMT -8)
New to the forum. Looking for LLMD in Jeffersonsonville, Wayne, King of Prussia (PA) areas. Have no insurance so all is self pay and I know these docs can be costly. Just finished 5 weeks of doxy, not sure on next steps/where to go. Any help is greatly appreciated.
Thanks everyone.
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saxmar
Veteran Member
Joined : Feb 2007
Posts : 670
Posted 7/28/2015 7:51 AM (GMT -8)
You should check West Chester County Hospital for leads on a good Lyme Literate Doctor(LLMD) referral. I live in Bucks County, Pa. but go to a LLMD in New Jersey near Great Adventure. It is worth the drive!

Look for a Lyme support group near you. I will also look and get back to you. You live in an area that has a high per capita rate of Lyme Disease.

I am not a doctor. I have had major improvement to my Lyme Disease symptoms thanks to my LLMD.

saxmar
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sarahm620
Veteran Member
Joined : Feb 2014
Posts : 1808
Posted 7/28/2015 7:54 AM (GMT -8)
Why would a hospital give you leads for a good LLMD? That sounds like the wrong move.

You can get LLMD referrals from ILADS. I believe there is an ILADS doc in King of Prussia:
http://ilads.org/ilads_media/physician-referral/

 

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saxmar
Veteran Member
Joined : Feb 2007
Posts : 670
Posted 7/28/2015 8:09 AM (GMT -8)
West Chester County, Pa. Hospital is in an area with a very high Lyme rate. They are Lyme Patient friendly. I had a SPECT Scan done there that convinced Lyme doubter doctors that there was a Lyme related problem.

That said. King of Prussia is closer to the Wayne area.

I was referred to my LLMD at a Lyme Support Group at Doylestown, Pa. Hospital. Going there saved my life.

I found the cynicism of the posting above out of spirit with most postings in this forum.

I was trying to be helpful. I am not sure I will post here again.

saxmar
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Traveler
Elite Member
Joined : May 2007
Posts : 36543
Posted 7/28/2015 9:06 AM (GMT -8)
Hi MrWright!
Welcome to our community!! I"m so glad you found us!

If you haven't ​yet​, it would be helpful for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as it is packed full of important information, symptom lists, helpful links and pdf's, how to detox when one has these infections, information on probiotics and much more.​

And as Sarah has said, going to a hospital isn't the best way to find the doctors that they are fighting against. For information on finding a​n ILADS ​(International Lyme and Associated Diseases Society)​ trained​ Lyme Literate Medical Doctor(LLMD) in your area, you will need to enable your email option in your profile in order to receive any recommendations, as we don't allow doctor's names and contact info to be posted on the forum for several reasons. You can enable your email option in your profile, under 'edit profile'. Be sure to click the submit button to actually save your preference.


​You can send me an email by clicking on my screen name or the small blue envelope under my screen name. I may have contact information for some LLMD's in your area as well.​ ​Please include your state and area that you would like to find a LLMD in and I will see how close I can get to your location.​


You can start a new thread titled something like "Looking for LLMD in the (insert the nearest larger city & state) area". Members can email you about the LLMD's that they see in that area if you have your email enabled. We don't allow doctors names to be posted though.


You can also email the Tick-Borne Disease Alliance at​[​​url]​medicalinfo@tbdalliance.org​ for LLMD referrals and you can go to ​tbdalliance.org​​ to learn more about these infections.


You can also go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:
www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74​​


​ You will want to find an ILADS (International Lyme And Associated Diseases Society) trained doctor, as ID Docs (Infectious Disease Doctors) believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. Go to the ILADS site to read the new (2014) Treatment guidelines to get you started on your healing journey:
http://www.ilads.org/lyme/treatment-guideline.php
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catchscooter
Veteran Member
Joined : Oct 2014
Posts : 517
Posted 7/28/2015 10:06 AM (GMT -8)
Hi saxmar can you please email.me your llmd is it dr s? Just wondering i think mine is ok.but looking for back up just in case thankyou
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MrWright
New Member
Joined : Jul 2015
Posts : 6
Posted 7/28/2015 10:45 AM (GMT -8)
Thanks everyone! I am checking out a LLMD in Wayne and I am trying to work with the ILAD folks to get registered to see the referrals. The Wayne Dr. uses a lab in CA that I think I have heard good things about. Reading alot and trying to get work done...
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sarahm620
Veteran Member
Joined : Feb 2014
Posts : 1808
Posted 7/28/2015 10:48 AM (GMT -8)
You don't have to register to see the referrals. If you use the link I provided you just give your name and address.

"I found the cynicism of the posting above out of spirit with most postings in this forum."

My "cynicism" comes from over 10 years of doctors and hospitals telling me I did not have Lyme disease. I am only trying to direct people to a reliable source.

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vinny82
Regular Member
Joined : May 2015
Posts : 57
Posted 7/28/2015 10:53 AM (GMT -8)
I go to the doctor in Wayne you speak of, he is excellent, would highly recommend.
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MrWright
New Member
Joined : Jul 2015
Posts : 6
Posted 7/28/2015 11:01 AM (GMT -8)
Thanks vinny82!
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MrWright
New Member
Joined : Jul 2015
Posts : 6
Posted 7/28/2015 11:16 AM (GMT -8)
Thanks Sarahm620, I submitted the request to ILADS.
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