So sorry to hear about
Some people get treated right away....others get treated right away but not adequately (that's my story as outlined in my signature).....others wait years for a proper diagnosis. It all depends on whether or not the person has consulted a Lyme-literate doctor.
What type of Lyme test(s) did your daughter have? The only reliable test is the Western Blot....and it needs to be done by a lab that knows to check ALL of the bands - not just the ones the CDC requires for surveillance purposes. IGeneX in Palo Alto, CA is a reliable lab for Lyme testing.
And, even if the IGeneX test comes back negative, that doesn't mean she doesn't have Lyme. You see, Lyme has the unique ability to suppress the immune system. The Western Blot measures antibody responses. Well, if the immune system is suppressed, there will be no measurable antibodies.
The CDC website indicates that Lyme is a clinical diagnosis - based upon symptoms.
Please consider taking your daughter to a LLMD (Lyme literate MD) and not an ID doctor. ID doctors are trained to think that Lyme is hard to catch and easy to treat which is the farthest thing from the truth.
The Internal Lyme and Associated Diseases Society (ILADS) is cutting edge for Lyme diagnosis and treatment. It's best to see a doctor trained by them.
They have a physician locator service on their website:ilads.org/ilads_media/contact/
Another way to find a LLMD is to start a new thread titled something like this: looking for a LLMD in (insert your city/general geographical area).
Hope you get some answers soon!
Moderator - Lyme Forum
Jul 14 started what proved to be inadequate treatment ala PCP day after nymph deer tick bite
Sept 14 met LLMD - clinically dx'd with Lyme due to Bells Palsy - confirmed via CDC positive WB
Feb 15 transitioned off abx and started full Cowden protocol along w/LDN
July 15 transitioning to Buhner's Lyme protocol and trialing babesia herbs
mild PNS symptoms except when herxing
Post Edited (cd3764) : 8/20/2015 11:13:12 AM (GMT-6)