Welcome to our community!! I'm so glad you found us! I agree with Girlie that Fibro is often a diagnosis that is given when no explanation can be found - according to the doctors. I had that diagnosis myself for a long time.
You have a very positive test result for Lyme disease! Congratulations! There are many that have Lyme that only wish they had those results! Include me in that group too!! I've never had more than band 23 and 41 show up positive - and that was a full year of Lyme abx!
The multiplex is a PCR test, which looks for DNA of the bacteria, unfortunately, it's not as accurate as one would think, as there has to be a large number of bacteria in the blood at the time in order to get enough to be able to turn the test positive.
And even though your test is considered negative for IgG (indicating late stage), you have Lyme specific bands showing up as positive or IND, which only means that although there was a reaction to that band, it wasn't quite strong enough to be considered "fully positive" - but you have Lyme specific bands showing up, and the only thing that makes Lyme specific bands react is Lyme bacteria. So this shows that your body has been fighting this for a while!
I can explain what the positive bands that you had mean if you would like, or you can go to this link and read it for yourself: www.reocities.com/HotSprings/Oasis/6455/western-blot.txt
You can go there to find supporting Pubmed articles showing what these bands represent.
And I second the suggestion for you to read through the "New to Lyme? Start here!" thread, as it really is packed with helpful and important information!
While Doxy works on new Lyme infections, if used for long, or by itself for an older infection, it only creates more of the cystic forms of the bacteria. When Lyme goes into the cystic form, abx can't harm it, so the Doxy has to be combined with other abx or you have to just not use it.
As Girlie was saying, you really need to see a LLMD - Lyme Literate Medical Doctor to be properly treated for these infections. It's like going to see a brain surgeon instead of a GP when you need brain surgery. Does the GP understand the brain? Well sure, but the brain surgeon specializes in it, so they know more!
For information on finding an ILADS (International Lyme and Associated Diseases Society) trained Lyme Literate Medical Doctor(LLMD) in your area, you will need to enable your email option in your profile in order to receive any recommendations, as we don't allow doctor's names and contact info to be posted on the forum for several reasons. You can enable your email option in your profile, under 'edit profile'. Be sure to click the submit button to actually save your preference.
You can send me an email by clicking on my screen name or the small blue envelope under my screen name. I may have contact information for some LLMD's in your area as well. Please include your state and area that you would like to find a LLMD in and I will see how close I can get to your
You can start a new thread titled something like "Looking for LLMD in the (insert the nearest larger city & state)
area". Members can email you about
the LLMD's that they see in that area if you have your email enabled. We don't allow doctors names to be posted though.
You can also email the Tick-Borne Disease Alliance at[url]email@example.com for LLMD referrals and you can go to tbdalliance.org
to learn more about
You can also go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74
And ILADS has their own referral system as well:ilads.org/ilads_media/physician-referral/
You will want to find an ILADS trained doctor, as ID Docs (Infectious Disease Doctors) believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. Go to the ILADS site to read the new (2014) Treatment guidelines to get you started on your healing journey: www.ilads.org/lyme/treatment-guideline.php
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15
*I can usually post a link to any info that I post. Wish to see a link? Please just ask!