Posted 8/12/2015 6:37 AM (GMT -6)
Hi All, with my vision issues and brainfog its been difficult to do all the required reading on Lyme and co-infections due to inability to focus visually... but I think I got there. If anyone would be so kind as to give me feedback that would be great.
I'm very frightened right now. I got a clinical diagnosis of Lyme from the only clinic in the UK that seems to recognise that it can be chronic. They basically told me after carefully going over my history that it was a classic case of Lyme and co-infections. They started me on abx before the test results came back- just doxycycline at 200mg a day (I have doubled the dose as I have read online that 200 probably isn't enough.) I'm still waiting for the test results - for Bartonella, tick borne encephaplitis, Rickettsia and Lyme. they should be back any day now. But the clinic was certain enough of my symptoms being Lyme to recommend I start taking antibiotics. It seems very clear that I was probably infected 2.5 years ago when I was living in the county with the highest rates of Lyme infection in the UK - I wish I'd understood about that bite/rash. I thought nothing of it.
My vision problems are the most difficult to deal with. My vision disturbances started about eight months ago. Jiggly/wavy vision in the extreme... cannot focus on any single part of the image.It is as if my brain cannot put the image together at all. increasing floaters... some static in my vision and halos. there were six months of psychological despair watching these symptoms increase and increase without knowing why. Finally the Lyme realisation felt like a tremendous relief and I managed to stay much more positive for a while - but have just fallen into fear and despair about it again. It's like being stuck in a body with senses that are just not working at all. I have found a ton or info online in forums and such that gave me the much-needed explanation for my vision issues. i have seen identical case histories, identical descriptions of visual symptoms - and hearteningly, stories that they improved or finally went away... but it i still scary when it's this severe.
All the other aches and pains, which are at times quite extreme, seem like nothing compared to the vision stuff. Ive got quite a high tolerance for pain.. it is my vision that is testing my santity.
Anyway... heres the part where any feedback would be appreciated.
400mg doxy - i intend to add Tindazole on the bases of Sapi's research as I hear that doxy on its own can be counter productive
Samento and Banderol and Japanese Knotweed
Cistus Incanus Tea - biofilms
Keifer and home made probiotic yoghurt
CoQ10, Lithium, Alpha Lipoic, the usual Vitamins
Later some brain helping stuff llike Vinpocetine Acetyl L-Carnitine N-acetyl-cysteine
My mother is a homotoxicologist - something I was never quite sure of - but in fact it was her that found I was infected with Borellia and that led me to getting the proper tests and to the Lyme clinic in Winchester. Her remedies (which are only water infused with an energetic signature) brought out an extreme herx. Im still not entirely convinced about homeopathy yet its effects on me are undeniable. She also found mycoplasma, bartonella as well as borellia and we are trying too get the testers for babesia and anaplasma. So this is a another thing I'm trying in tandem with the above.
Anyway any feedback on the abx and supplements would be great if at all possible.
I hope you're all making progress and getting there as I hope to do.