I wish that I would be able to tell you that I am "cured" and busy living a full and happy, healthy life. But that is Not the case for me yet. I am currently not as sick, as when I first posted this thread; but I am still looking for answers to be well.
I took antibiotics, herbs, supplements, detox daily for over 1 year and 4 months. I tried getting rid of Lyme, Babesia,and Bartonella. I personally didn't have any luck. The only thing that helped me was Byron White A-Inflam. This helped me with my daily stuttering (I stuttered every day for over a year, except for the days that I was unable to speak). I still have episodes of stuttering for a day, but it now only happens a couple of times a month and Not every day.
Since I was getting nowhere with treatment for Lyme, Babs, Bart, my LLMD and I decided to stop treatment and try Byron White AP. This herbal supplement is used for Parasites, Candida, and mold. I started the AP in July, 2016 through December 2016. I broke out with severe acne on my back, abdomen, shoulders, thighs, and buttock. I would get clear bumps that would form on my left eyeball. I would cough up oblong jelly like mucous things. I had a couple of episodes in my sauna that my husband said that I smelled like a moldy gym shoe. I even smelled like this after showering. I had one episode in the sauna that my body was sweating out a lot of ammonia. It smelled like a bunch of cats urinated in the sauna. I was unable to stay in the sauna for my usual time. My eyes and nose were burning and watering so much because of the smell.
January 2017, I started Dr. Klinghardt parasite protocol. I did two rounds of the protocol. The only thing that was consistent was that I didn't stutter at all during the treatment.
A couple of months ago I made an appointment with another Dr. who is also Lyme friendly. After listening to my story, he suspected that mold might be what is holding me back. Through some lab testing, I found out that I have a mold sensitivity pattern. My MSH is too low and my TGF-beta1 is too high. Supposedly, my Dr. told me that these are cardinal symptoms of a damaged immune system. And explains my relapsing.
So, currently I am taking Cholestyramine. This kind of turned into a mess. The Dr. wanted me to get this med from a compound pharmacy. The pharmacy contacted me and said that it would cost me $425 for 1 month supply. This is too much money to be spending on something that I don't know if it will help me or not. My spare bedroom looks like a pharmacy already from ALL the meds, herbs, supplements that I have tried over the last several years. I really don't need to add to the collection.
So, I called the Dr. and said that it costs too much. He then called me back and told me about
goodrx.com. I looked up Cholestyramine and was able to get a canister for $40. I was so happy! My Dr. said that the canister would last me through the whole month.
The thing that nobody knew of was that the canister was full of worthless additives!! It says on the canister, "4 grams Cholestyramine resin per scoop full." On the side of the canister says,"Each scoopful (9grams) of Cholestyramine powder contains 4 grams of Cholestyramine resin." So, what is in the other 5grams of powder in the scoopful???
So instead of this canister lasting me for a month, it only lasted for 10 days. I don't know if it is helping or not.
Sorry, I wish that I had the answers. I am so sick of being a human lab rat.
I hope that you have better luck with figuring this out than I have had.
Misdiagnosed for 27 years. Below is my first thread.www.healingwell.com/community/default.aspx?f=30&m=3509506
Homozygous MTHFR a1298c
Started to talk normal again May 2016
Still dealing with other symptoms
Lyme Disease is a real MTHFR!!!