Center upper chest pain when breathing in/ bending over

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Cdavislyme
Regular Member


Date Joined Dec 2014
Total Posts : 110
   Posted 10/12/2015 11:24 AM (GMT -6)   
I have been having the worst chest pain for about a week, right in the center of my chest. At first, I thought it was gas because it came and went, but it has been constant now for about 24 hours. :/

I HATE going to the ER and my GP. I saw my Lyme doc on Tuesday and mentioned it because it had started the day before. She says it's diet related. However, how is it like this constantly?!

Could this be a really bad herx? Or babesia presenting itself? I also have had a raging headache for 2 days and have gotten to full doses of the Byron White formulas. Maybe I just haven't detoxed enough and am killing way too much?

If this is something I should be concerned about, please let me know! The pain is right in the center, upper chest area (slightly above and in center of breasts). Again, it comes with deep breath and when bending over.

Thanks, everyone, for being so supportive!!

Cdavislyme
Regular Member


Date Joined Dec 2014
Total Posts : 110
   Posted 10/12/2015 11:29 AM (GMT -6)   
Also, I am on minocycline, if that helps. I used to do detox baths, but CA is in a super bad drought, and I have been using other detox methods (circumin/turmeric, lemon water, plenty of leafy greens, detox teas-dandelion and ginger, dry skin brushing, milk thistle).

One more thing, I was exercising for a month, had to stop because I was overdoing it and the chest pain flared. The week before last, I cheated on diet for a few days in a row (I know, not good, but I'm human).

Maybe detoxing the toxic food and the bugs in combination is giving me these symptoms?

I just don't want it to be something serious, like clots in my lungs. 😭

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9729
   Posted 10/12/2015 12:38 PM (GMT -6)   
As a used to be athlete, when I got that pain it was costochondritis. Of course that was pre-Lyme. Costochondritis is when the cartilage of a breast bone gets stretched. Did you do "chest" at the gym? Coughing really hard can do it too. If that is it, it will take time and an anti-inflammatory.

Now being a Lyme newbie I have found that there isn't much on my body that can't hurt. The duration is always weird too. Some pains last maybe an hour, some days. I have found no rhyme or reason in my lyme pain. Any pain I get now, I chalk it all up to lyme and hope it quits sooner than later.

A girlfriend just had a knee replacement and she got a blood clot in her lungs. She could not breath even being super still and her back hurt one heck of a lot.

Still, maybe even a trip to an urgent care center will make you less apprehensive. Either one of those I have mentioned are a quick diagnosis by a doc.

Dancingbear*
Veteran Member


Date Joined Oct 2014
Total Posts : 556
   Posted 10/12/2015 12:57 PM (GMT -6)   
HI, I am sorry you are feeling bad. If I were you, I would give myself a time line. Like if this is not gone or improved by a certain date, I will go check it out. That will, hopefully, allow yourself to relax! You need to relax about this. I have had chest pain thru out my sickness and stress made it worse.

I have come to think my chest pain is/was acid reflux. If this is your problem you can try HCL with pepsin. There is another thread about HCL on this forum. Also, check out this sight

http://scdlifestyle.com/2012/03/how-to-supplement-with-betaine-hcl-for-low-stomach-acid/

you have to slowly increase your dose to get to the right dose for your body.

sense you get worse pain when bending over, I think this may be your issue.

Good luck and I agree with your LLMD that this is digestive.
diagnosed October 2014. I am pretty confident that I have been infected since the summer of 2006. I also have hashimoto's/hypothyroid and SIBO.
IgM 18+ 23-25 IND 28+ 30- 31++++ 34IND 39++ 41+++ 45- 58++ 66- 83-93++
IgG 41 IND

Rikky1
Veteran Member


Date Joined Jun 2015
Total Posts : 2925
   Posted 10/12/2015 1:51 PM (GMT -6)   
Sounds like classic babesia to me. I know because I've had it in that exact spot. Have you tried any new or upped any medicines of late to cause a reaction? I remember before I started heavy abx that I took an epson salt bath and caused that chest pain for 4 days straight. If you want to test it try taking an epsom salt bath with 1-2 cups of salt in a semi-hot bath for 10-15 minutes. If the pain intensifies you can be sure its the babs acting up.

Cdavislyme
Regular Member


Date Joined Dec 2014
Total Posts : 110
   Posted 10/12/2015 2:33 PM (GMT -6)   
Yes I tried an Epsom salt bath and felt so dizzy and the pain was awful when getting out of the bath! I went straight to the ER (currently waiting) to be sure. The family and boyfriend were concerned, as was my boss.

sarahm620
Veteran Member


Date Joined Feb 2014
Total Posts : 1808
   Posted 10/13/2015 8:36 AM (GMT -6)   
For me, that is babesia. "Air hunger." Are you treating for babesia?
Sarah
-positive IGM Western Blot- 39, 41 in January 2014// Igenex & CDC positive 11/14
-positive ANA and very low CD57
Chronic daily headaches since 2005

B777
Regular Member


Date Joined Jul 2015
Total Posts : 81
   Posted 10/13/2015 8:37 PM (GMT -6)   
It is good that you went to the ER.... you just have to know for sure that you aren't ignoring something serious. Please let us know how you are doing...

My first and most prevalent symptoms have always been in the upper back, shoulder and chest area. I agree with PeteZa that costachondritis causes shooting nerve pain into the chest that culminates at the sternum. That being said, I can't begin to tell you how many times I convinced myself that this time it was truly a heart issue. At one point it became so bad that I ended up in the ER as well. That visit lead to a cardiologist appointment and all kinds of heart tests. The conclusion was that my heart was fine.
I hope you discover the same about your heart.

Rikky1
Veteran Member


Date Joined Jun 2015
Total Posts : 2925
   Posted 10/13/2015 9:18 PM (GMT -6)   
sorry you're in such pain cdavis maybe that advice to take the salt bath was a bad one but it pretty much confirms its babesia acting up. i had a chest attack tonight that lasted a few hours. babesia loves to sit in your chest. i'm on cefdinir/tinidazole MWF pulse and its definitely helped my main issues (head/chest) for what its worth.

Cdavislyme
Regular Member


Date Joined Dec 2014
Total Posts : 110
   Posted 10/14/2015 11:07 AM (GMT -6)   
I'm okay now everyone! Chest pain and stabbing leg pains have been coming and going (scary!).

These were my VERY FIRST Lyme symptoms after being bitten (almost exactly one year ago), and I, having no clue about Lyme, thought these symptoms were blood clots prior to diagnosis.

It's strange because the symptoms all lead to clots (stabbing pain behind knee, larger, more visible surface veins, swelling), but I got several ultrasounds and they were all fine.

I think the stress of the chest pain and the PTSD from being in the ER (I was in ER daily prior to diagnosis with crippling anxiety) probably made my Lyme flare again. It's crazy because my mind totally went to blood clot AGAIN!

Ugh. I wish Lyme & Co. would just stop messing with me. :/

CSFunk
New Member


Date Joined Feb 2018
Total Posts : 7
   Posted 2/6/2018 3:04 PM (GMT -6)   
You may have minocycline sensitivity. My daughter had the same exact issues and blood testing confirmed this as the cause. See a rheumatologist.

Traveler
Elite Member


Date Joined May 2007
Total Posts : 36310
   Posted 2/6/2018 3:51 PM (GMT -6)   
Hi CSFunk!
Welcome to our community!

Does your daughter have Lyme and is still in treatment?

If you haven't yet, we do encourage all members to read through our 'New to Lyme' thread, as it's packed with helpful information!
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

CSFunk
New Member


Date Joined Feb 2018
Total Posts : 7
   Posted 2/6/2018 4:14 PM (GMT -6)   
NO she doesn’t have Lyme but that was suggested as a possible diagnosis at one point based on the similarity of symptoms. I would hope you as a moderator would want to help people get to the root cause of their health issues regardless of whether Lyme related or not?! You can read about it here in the link below. It is a real thing and presents with similar symptoms. She was diagnosed with drug induced lupus and vasculitis. After discontinuing minocycline (a know and proven cause) her symptoms went away after a short time.

https://emedicine.medscape.com/article/1065086-overview#a4

Traveler
Elite Member


Date Joined May 2007
Total Posts : 36310
   Posted 2/6/2018 4:21 PM (GMT -6)   
CSFunk said...
NO she doesn’t have Lyme but that was suggested as a possible diagnosis at one point based on the similarity of symptoms. I would hope you as a moderator would want to help people get to the root cause of their health issues regardless of whether Lyme related or not?! You can read about it here in the link below. It is a real thing and presents with similar symptoms. She was diagnosed with drug induced lupus and vasculitis. After discontinuing minocycline (a know and proven cause) her symptoms went away after a short time.

https://emedicine.medscape.com/article/1065086-overview#a4


I'm not sure why at all you felt the need to state it that way. I don't see anything that I posted that would have 'caused' you to say this: " I would hope you as a moderator would want to help people get to the root cause of their health issues regardless of whether Lyme related or not?! "


This is a Lyme disease forum, so it's safe to assume that those that are here are here because either they or someone in their circle of family and friends has Lyme as well. You mentioned your daughter, and I did assume she was the one with Lyme, and I stand corrected (rather harshly though, don't you think?)

Do you have Lyme disease then, or someone else in your circle of family or friends? As I stated, this is a Lyme forum, and we do expect that those that post here are doing so because Lyme is an issue in their lives somehow.

If not, there are lots of other forums that pertain to those that have other issues, and as for my desire to help others, whether they have Lyme or not, why would you even question that???? I've been helping people like this for over 10 years now.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

CSFunk
New Member


Date Joined Feb 2018
Total Posts : 7
   Posted 2/6/2018 5:02 PM (GMT -6)   
I read your link and I’m sorry for all you have gone through. I appreciate that you helped so many people and cured yourself. That is awesome. As a parent of someone who was misdiagnosed with Lyme disease rather insistently too I might add along with a long line of other misdiagnoses I do have an interest in letting people know this could also be true for them. It may not, but wish someone had at least suggested it as a possibility. I’m sure you can understand that based on your journey. I apologize for offending you, but I do feel this is relevant on this board and could help someone.

Traveler
Elite Member


Date Joined May 2007
Total Posts : 36310
   Posted 2/6/2018 5:36 PM (GMT -6)   
While I do agree with you that not everyone that finds their way to this forum actually has Lyme disease, we do our very best to not assume this either. We get no satisfaction from others going through this, believe me. If anything, we wish to prevent others from getting these infections.

Also, because these tick-borne infections are usually the ones being misdiagnosed, we listen/read carefully to try to help the person realize that it may not be Lyme, when symptoms are not clear.

With that said, this is a 2 year old thread, and I believe this poster has a positive Lyme test, and those are quite hard to come by, even for those that have these infections. This situation was resolved, as stated by the OP in the thread above your first post, and hasn't logged on here in over a year. I can't remember the details of every member here, but it's possible that this person has healed and moved on with their life.

We do watch for allergic reactions to the meds that are commonly used, as well. We are generally pretty quick to tell members to get to an ER when it looks like it could be an allergic reaction, or if there are other serious complications. You must have assumed that we didn't do any of these things?

Anyway, what it comes down to is I didn't understand what I said that you felt compelled to post those comments to me. I asked a very understandable question, since you are posting on a Lyme forum. I DO understand what you are saying, I promise - but those of us here have heard more than enough warnings about "it might not be Lyme" from many others in our lives usually. Many here have positive tests or have had a response to treatments that shows we have these infections. We get no satisfaction in seeing more members here.

I'd be willing to go so far as to say that we would be thrilled if there was no need for any Lyme forums, because these infections were recognized and treated properly from the start - but the truth is actually very opposite. Many still come to us with YEARS of agony, disappointment, and bullying from others because the "doctors said it wasn't Lyme" or the doctors don't know what it is (which is what happened to me). As I'm sure you know, leaving any infection, much less these infections, untreated only leads to tons of damage to the body.

While we will definitely appreciate your input, please do be sensitive to what WE have gone through as well.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

CSFunk
New Member


Date Joined Feb 2018
Total Posts : 7
   Posted 2/6/2018 5:56 PM (GMT -6)   
ONE more thing Traveler, I do have a loved one with Lyme. Interestingly enough she was initially misdiagnosed with Lupus (opposite of my daughter’s situation) and took serious meds for twenty years based on that only to find out she has Lyme. The confirmation was made by a doctor formerly of the cdc who helped developed testing for it. She pointed out she could have benefited from a post about Lyme on all the Lupus forums she was on looking for help. We are all just looking for help and again, I sincerely apologize.

CSFunk
New Member


Date Joined Feb 2018
Total Posts : 7
   Posted 2/6/2018 6:06 PM (GMT -6)   
READ your recent post and understand what you are saying. I’m very sorry that you all have to endure that. Again, I apologize. I’m glad she’s okay. I was very concerned because it was everything my child went through and as a parent I’m sure you understand how hard it is to see your children struggle with health issues and misdiagnoses. We too were told it’s not that, it’s this. I feel the take away from all this is to advocate for yourself and don’t take any diagnosis that doesn’t make sense to you as “the end”. These forums help a lot of people and so great of you to personally help so many.

Traveler
Elite Member


Date Joined May 2007
Total Posts : 36310
   Posted 2/6/2018 6:09 PM (GMT -6)   
I'm so very sorry to hear this! My heart goes out to your loved one!!!

While I realize that a post about how Lyme can often be misdiagnosed as Lupus or (pick one), most often we are asked to not post in those forums, and our posts are deleted. I don't understand this, as there are so many that would never think to question their diagnosis, even though they really aren't getting any relief from the meds they are on. We see these types of patients here all too often as well.

But most that have found their way to a Lyme forum have all been through the ringer with denials of Lyme being in the state (so there's no way you could have that infection), or doctors just not recognizing their symptoms as belonging to Lyme or some other situation. Basically, it's up to the current members to watch out for the new members that join. If their symptoms don't sound like Lyme, we are pretty quick to point that out here, I believe - because we hope they find what is truly happening with their health and to get the help they need. We are not at all concerned by how many members we have, or that we get more. Like I said, we would really be happy if there was not even a need for Lyme forums like this one - but there is, and there will be a need for a long time, with the way things are going.

No harm done, and I do apologize for coming down a little hard on you, but it was truly baffling to me what I said that offended you.

If your loved one is still dealing with ongoing health issues, we would however, appreciate you passing along an invite to this forum!
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

CSFunk
New Member


Date Joined Feb 2018
Total Posts : 7
   Posted 2/6/2018 6:55 PM (GMT -6)   
I will tell her although after getting proper treatment and is doing really well! She too went through exactly what you’re saying here. Talking to her and reading these Lyme posts and the Lupus posts as well actually helped me a lot in the quest for correct diagnosis for our daughter. In many cases it just comes down to trusting your gut and not giving up. I’m not saying for a second we guessed where this would end up or “knew all along” but we did multiple times question “could it be” and got shut down which is really frustrating especially at the end when you think “well we asked if that was possible”. Lesson learned just because someone has letters after their name doesn’t mean they’ve seen and know everything so ask the questions and keep asking. When I questioned the practical medical practitioner (having given up on MDs) about his Lyme diagnosis I was met with the same resistance as questioning primary Lupus (instead of secondary in her case). They took it so personally and in the end were wrong which unfortunately as we are all human can happen. Reading these posts here helped me realize on the journey this wasn’t her issue so I’m so thankful for these posts. I was out of line and I’m sorry for that. You did nothing wrong it was all me. Thanks again and best wishes to you and all here.

CSFunk
New Member


Date Joined Feb 2018
Total Posts : 7
   Posted 2/6/2018 8:56 PM (GMT -6)   
ONE more question. You mentioned you and the other moderators know drug allergic reactions. For my benefit would you share that with me? I thought it was the standard hives, vomiting, fever...but we were told with these drugs reactions present over time as autoimmune so it’s very difficult to differentiate without specific testing. In our daughter’s specific case her drvvt and histone results led to the determination it was a reaction to minocycline. Whoever thought to mix blood with snake venom is pretty much a genius in my book. If there is another way to determine this you and the other moderators know I’m sure others could benefit from that knowledge since most doctors don’t even know about this. Thanks in advance.

Traveler
Elite Member


Date Joined May 2007
Total Posts : 36310
   Posted 2/7/2018 2:39 PM (GMT -6)   
It kind of depends on the drug. While those are the most common allergic reactions, some meds differ. I like to use these two drug checkers:
Note this one says it's for "Professionals" - it give more detailed information:
/www.drugs.com/professionals.html

/www.rxlist.com/script/main/hp.asp

It's more about being willing to read as much as possible than knowing things by heart!
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/
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