Above all else, no person can say that someone has been in treatment long enough to eradicate these bacteria. We all have a LOT of things going on in our bodies that can prevent or slow down our healing. Stopping treatments too soon is the number one reason for relapsing.
At this point in time, there is no way to know when or if someone can completely rid themselves of the Lyme bacteria, or even just get rid of all of the Lyme bacteria that is capable of reproducing. We simply don't have the tests that can tell us this for sure. There is one test that says it can, but I haven't seen it touted the way it should be if it really worked, so I'm still on the fence about
it - but man do I ever wish it was true!!
For the sake of this discussion, I feel we have to define "cured" and "remission" - most of us understand that remission means that "it" - in this case, Lyme- can reactivate. So let's assume that cured means that Lyme can't come back at all - it will take a reinfection to have the infection again.
Under those circumstances, I believe we can say that without appropriate testing, we don't know that anyone has ever been cured as there is no way to confirm this. It can only take a very small amount of Lyme bacteria to keep a person sick, much lower levels than our current testing can pick up on.
ILADS has said that in order to get lasting relief (remission) that treatment needs to continue for 2 months past the resolution of symptoms - not resolution of some symptoms, all symptoms. This is confusing for many, as we can be left with nervous system symptoms (minor tingling or numbness) that just need more time to finish healing, but there is a difference. If a person stops treatments for, say 6 - 9 months, and the symptoms do NOT worsen, but continue to improve, then it was the right choice to stop treatments. But if those small neuro symptoms start to increase, then obviously the treatments were stopped too soon.
Some people would prefer to stay in treatment a few more months, possibly rotating some protocols (pharma and herbal/natural) through to be sure that they have healed as much as they are going to. That's a personal choice that we each may face and should make based on what we know and what our doctors have to say.
I am likely the biggest offender in the confusion over these types of statements:
"*You MUST see an LLMD that had ILADS training. These doctors treat with antibiotics and usually don't have much training using herbs. There are LOTS of people that have been healed with herbs either self treated or found an alternative doctor to treat them with herbs. These doctors are not trained by the ILADS, they may even be Traditional Chinese Medical Doctors. These doctors can help you and cure you. IMHO you do not NEED to find an LLMD unless you are set on being treated with abx. "
I say different things to different people, depending on their understanding,
openness to alternative treatments, and what they are hoping for. Is it absolutely necessary to see an ILADS trained doctor if you are going to heal from these infections? I was healed by a TCM practitioner that had never knowingly treated any of these infections before, so no. I did however have to do a LOT of the work in finding protocols, and figure out "where do we go from here?", when I was herxing and when I needed to detox more. She was a massive help in keeping my body functioning well while I healed though! She treated all kinds of issues that would come up as I was healing from these infections and I couldn't have done it without her. The nearest LLMD to me was a 15 hour drive each way. I was too sick to travel that far.
There are some doctors that are capable of being
open minded enough to just follow Dr. Burrascano's paper on how to treat these infections, but they are not skilled enough- have enough experience to recognize herxing, or understand what combination of abx or herbs or whatever to help a person heal when they can't tolerate the "regular" protocol. Or, when there are serious complicating issues, like MCAD, MTHFR mutations or other issues that we can have.
As to your question about
inflammation - Lyme is an inflammatory infection. It creates inflammation in between our cells. If you have any questions about
how your diet is affecting the amount of inflammation you have - drop those foods back out of your diet for a week - you'll know, believe me.
And, I want to say this again - no one can look at a person and say "you've been in treatment long enough, you're healed". If you have symptoms (other than a few very minor tingling or numbness in patches), then you likely need more treatment. Inflammation is not one of those minor symptoms.
The good news? You can easily finish your treatment on your own if necessary. Many here do that.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15
*I can usually post a link to any info that I post. Wish to see a link? Please just ask!