Hi and welcome to HealingWell.
I have borderline LTTs as well and i am currently still under treatment. My LLMD in Germany said it's pointless to test for the LTTs again (i need to repeat the tests in 4 months), we will just test for co-infections levels.
I don't see a point in running more Borrelia tests, especially it your daughter has been positive for Lyme and received treatment. As you might know this is not a bacteria that can be successfully removed from the body (except for maybe the first months post infection). So (if it gets there) it does persist in joints, brain and eye (places where immune system does not reach very well) for the rest of our lives. So in this situation most LLMDs treat based on symptoms.
That being said, there is no such thing as a person with just Borrelia. All people infected do have multiple bacteria that cause the problem. The tick is a dirty needle, has many organisms that can be passed. The hardest to treat are Babesia and Bartonella. Has your daughter been tested for coinfections?
Are you familiar with Buhner's books about
this topic ? Many of us get treatment using herbal supplements, for chronic lyme these work better than antibiotics, especially that you can take them for years without the major side effects of ABX. They DO WORK
Because lyme disease is immunosupressive, when going into remission it is really wise to continue taking the two most important herbs that boost immunity against this bacteria, in lowest dosage. I plan to take 3xcat's claw + 3x jap knotweed /day for the rest of my life. They are good for general health, anticancer and good antioxidant sources and very low/no toxicity. One month of cat's claw can cost as little as $5. Knotweed is a bit more expensive, probably $10.
When it comes to docs, i would stick with the ILADS folks. IDSA are completely clueless about
how to treat/manage the chronic form of this disease. They simply ignore it. It's a combination of poor research, bad tests, clever bacteria and a non-lethal disease (most of the time).
Post Edited (mpostelnicu) : 11/26/2015 3:12:24 AM (GMT-7)