lyme disease and immuno-serpressent drugs

never say never

New Member

Joined : Dec 2015

Posts : 1

Posted 12/7/2015 5:19 PM (GMT -7)

I was just DX with Retinal Dystrophy and one of the treatments is the use of immunoserpressent drugs is this a safe treatment for a patient with Lyme Disease?

Razzle

Veteran Member

Joined : Aug 2007

Posts : 4415

Posted 12/7/2015 8:44 PM (GMT -7)

I would highly, highly encourage you to consult a Lyme-Literate physician. Retinal Dystrophy may be the label given, but Lyme is known to cause blindness or other visual issues.

If the Lyme is the cause of the Retinal Dystrophy (it is known that Lyme can be transmitted to the baby from the mother via the placenta during pregnancy), then using an immune suppressant without treating the infection could potentially make Lyme a whole lot worse.

And it is known Lyme likes to hide in the eyes, because it is difficult to get antibiotics into the eyes via the bloodstream (e.g., from oral antibiotics used to treat Lyme).

sarahm620

Veteran Member

Joined : Feb 2014

Posts : 1808

Posted 12/8/2015 6:04 AM (GMT -7)

Immuno-suppressant drugs are not safe for Lyme. Are you seeing a LLMD? If not, we can help you find one.

CD3764

Veteran Member

Joined : Sep 2014

Posts : 4510

Posted 12/8/2015 7:10 AM (GMT -7)

Welcome never say never!

Sorry for the reason you're here but, glad you found us.

You've been given great information already.

Where are you at with Lyme Disease? Are you seeing a LLMD?

Please let us know how we can help you.

Traveler

Elite Member

Joined : May 2007

Posts : 36318

Posted 12/8/2015 7:55 AM (GMT -7)

Hi Neversaynever!

Looks like you've been given some good information already, so I'm just stopping by to say Welcome!! I'm glad you found us!

Also, ff you haven't yet, it would be helpful for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as it is packed full of important information, symptom lists, helpful links and pdf's, how to detox when one has these infections, information on probiotics and much more.

sayyadina

Veteran Member

Joined : May 2009

Posts : 1343

Posted 12/8/2015 9:21 AM (GMT -7)

I had a different eye issue (dryness) and was put on immunosuppressants because the doctors I was seeing thought it was autoimmune. And it got worse on Restasis eye drops and methotrexate. I got a second opinion from my LLND (didn't know she was LL at the time), and that brought up the whole Lyme & coinfections thing. My eyes are now pretty normal, moisture wise, with over a year and a half of herbal treatment for Lyme, babesia and bartonella.

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