Open main menu ☰
HealingWell
Search Close Search
Health Conditions
Allergies Alzheimer's Disease Anxiety & Panic Disorders Arthritis Breast Cancer Chronic Illness Crohn's Disease Depression Diabetes
Fibromyalgia GERD & Acid Reflux Irritable Bowel Syndrome Lupus Lyme Disease Migraine Headache Multiple Sclerosis Prostate Cancer Ulcerative Colitis

View Conditions A to Z »
Support Forums
Anxiety & Panic Disorders Bipolar Disorder Breast Cancer Chronic Pain Crohn's Disease Depression Diabetes Fibromyalgia GERD & Acid Reflux
Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Multiple Sclerosis Ostomies Prostate Cancer Rheumatoid Arthritis Ulcerative Colitis

View Forums A to Z »
Log In
Join Us
Close main menu ×
  • Home
  • Health Conditions
    • All Conditions
    • Allergies
    • Alzheimer's Disease
    • Anxiety & Panic Disorders
    • Arthritis
    • Breast Cancer
    • Chronic Illness
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Migraine Headache
    • Multiple Sclerosis
    • Prostate Cancer
    • Ulcerative Colitis
  • Support Forums
    • All Forums
    • Anxiety & Panic Disorders
    • Bipolar Disorder
    • Breast Cancer
    • Chronic Pain
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Hepatitis
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Multiple Sclerosis
    • Ostomies
    • Prostate Cancer
    • Rheumatoid Arthritis
    • Ulcerative Colitis
  • Log In
  • Join Us
Join Us
☰
Forum Home| Forum Rules| Moderators| Active Topics| Help| Log In

Lyme test

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
profile picture
Koorbro
Regular Member
Joined : Sep 2015
Posts : 20
Posted 12/7/2015 10:00 PM (GMT -7)
I gave blood for a Lyme test 2 months ago. Igenix is the lab. They were instructed to send the results to me, and my doctor.

Went to my doctor today. She says she got the results, and they are negative.

I never got a copy of the results. Doctor says she will have to see about getting a copy for me, but isn't sure she can...even though I paid for the test, and it belongs to me, so she says.

Am I not allowed to see my test results? And why didn't Igenixs send a copy to me?

Then my doctor did a test to see if opiates were in my system as I take 30mg per day of a synthetic pain medication. Have been taking this for years...as I am Chronic in my symptoms. The doctors tried to have me take twice as much, but I said no. Now....after this urine test today....to detect for opiates. My doctor says this is standard testing......the test, she says, shows no opiates in my system. She is sending the test out to verify the results with a more sensitive lab. She says she does not want to prescribe the small dose of pain medicine I am using anymore. I had just taken 1/2 pill 1 hour before arriving at her office. I only weigh 100pounds, so I can only take small doses to stop the neural, joint, and muscle pain.

I feel as though I have just been set up. First the Lyme test. Which I don't know what it says, then, the pain med test. Which I have never had before. My record of using pain medications responsibly, is impeccable.

Question.....how do I get my test results? Call Igenics again?

Also if there were no pain medication in my system, wouldn't I be going through some type of withdrawal?

I am treating myself for Lyme as after being bitten, now 5 times. Two bullseye rashes...which still show up and being treated with erythromycin.....which stopped my symptoms for a short period of time, but then they came back with a vengeance, my vision is double most of the time, the muscle spasms, joint pain, recurring fever, on and on...treating myself seems the only way to help myself.

My doctor is new, as I moved from the Midwest to Washington State. In Washington, they do not want Lyme to be here. This is the MS capital of the US. But, most cases are turning out to be Lyme. But, they depend on tourism and the great outdoors. If they have Lyme here, the economy may suffer.

I am stumped as to what to do. I do not have the money for an LLMD, and can't seem to even get clinically diagnosed or helped here.

Any suggestions?
profile picture
Razzle
Veteran Member
Joined : Aug 2007
Posts : 4415
Posted 12/7/2015 10:49 PM (GMT -7)
Yeah, this is a huge Lyme Denial area...but there are options near Seattle.

If your insurance covers Naturopathic doctors (Medicaid in WA covers Naturopaths, plus it is a state law that most insurances in the state must cover Complementary medicine...some plans only cover 3 visits/year though), you can get better help from some Lyme-Literate Naturopaths in the Seattle area who do take insurance.

Email me if you want some info on specific Naturopaths...or call Bastyr's clinic in Seattle - they have sliding scale fees for those who can't afford full price or don't have (adequate) insurance coverage. And Bastyr has gotten a bit more Lyme-friendly lately...
profile picture
Koorbro
Regular Member
Joined : Sep 2015
Posts : 20
Posted 12/7/2015 11:06 PM (GMT -7)
Razzle,
Thank you for responding. What are my options near Seattle? The latest I knew Bastyr was not treating for Lyme....but now, who knows? I only have Medicare as my insurance. Living up by Bellingham, just trying to find a doctor to take my insurance has been difficult. I don't have the $$ to pay oodles out for help. I'm having a moment. Feeling like I have entered the twilight zone and can't find the exit door.

Who are the LLMD in Seattle that might help without charging a $200.00 fee just to make an appointment? Are there any besides possibly Bastyr that work on a sliding fee scale?

Any ideas how to get my test results?

I was just bitten here in Washington, in October. Yep...big bullseye rash. Took several pictures of it. My doctor could care less. Can't have Lyme in Washington State. I believe I got this disease in the Midwest last summer. Several tick bites. Several rashes that keep popping up...especially when I bath or shower.

I need help........who do I see? I don't have $20,000 to spend on medicine....
Thanks Razzle
profile picture
Razzle
Veteran Member
Joined : Aug 2007
Posts : 4415
Posted 12/8/2015 5:32 AM (GMT -7)
You have a right to get your blood test results. Talk to the receptionist and fill out a medical release form on which you specify the IGeneX test results, and they are required to give you the records/test results you ask for on the form (they may charge for copying the pages, depending on the office's policy).

Will answer your other questions in email, since we can't post doctor names on here...

Take care,
profile picture
Traveler
Elite Member
Joined : May 2007
Posts : 36488
Posted 12/8/2015 8:02 AM (GMT -7)
Exactly - you have a right to your own test results. I had a doctors office try to withhold my records from me, which they cannot do by law. I had to pay for them, but I offered to cover the cost of copying my records upfront, yet they refused still. I had to threaten to take them to court over it!!
profile picture
Koorbro
Regular Member
Joined : Sep 2015
Posts : 20
Posted 12/8/2015 8:26 AM (GMT -7)
Thank you so much Razzle! For all the great information you have given me.
✚ New Topic ✚ Reply


More On Lyme Disease

The Low-Down On Lyme Disease

The Low-Down On Lyme Disease

10 Steps For Healing Well With Chronic Illness

10 Steps For Healing Well With Chronic Illness


HealingWell

About Us  |   Advertise  |   Subscribe  |   Privacy & Disclaimer
Connect With Us
Facebook Twitter Instagram Pinterest LinkedIn
© 1997-2022 HealingWell.com LLC All Rights Reserved. Our website is for informational purposes only. HealingWell.com LLC does not provide medical advice, diagnosis, or treatment.