Did anyones symptoms start with clogged ears?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

CandyS
Regular Member


Date Joined Nov 2014
Total Posts : 25
   Posted 1/6/2016 7:25 AM (GMT -6)   
for a year and half before suspect of lyme I had 4 middle ear infections (clogged ear, not from wax). I am wondering if that was the start of my lyme and if anyone else experienced that?

Purple Tulip
Veteran Member


Date Joined Aug 2006
Total Posts : 1301
   Posted 1/6/2016 1:49 PM (GMT 0)   
This symptom was not the very beginning for me, however before my relapse was full blown, I had an unexplained ear problem. When I went on treatment again I got tenitis in that ear and get pain from time to time, even vertigo (the doc can't see anything). This was a precursor to the relapse. Interesting. I hadn't thought about it until you brought it up.

sayyadina
Veteran Member


Date Joined May 2009
Total Posts : 1343
   Posted 1/6/2016 8:09 AM (GMT -6)   
I had clogged ears really bad last year, and they come back sometimes. HerbPharm makes a mullein and garlic ear oil that works very well.
J. knotweed, motherwort, cat's claw, sida, alchornea, cryptolepis, hawthorne, cilantro, anise, nettle, C. senega, C. skullcap, houttuynia, kudzu, stephania, red root, vitamin C, E & D, calcium, Biosil, milk thistle, l-arginine, reduced glutathione, grape seed, curcumin, glucosamine MSM, magnesium citrate, salmon oil, green tea extract, hydroxyB12, methylfolate, B vitamins, CoQ10, selenium, zinc

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9729
   Posted 1/6/2016 8:35 AM (GMT -6)   
One of my first symptoms was "full" feeling ears. That and a weird sore throat, and head pain made my Internal Medicine doctor tell me I had a sinus infection. It was lyme.

My ears felt like I had gone up in elevation and they would not pop. That was all I could explain to him. Once I started treatment, they got better. And now they are gone. Knocks on wood.

sarahm620
Veteran Member


Date Joined Feb 2014
Total Posts : 1808
   Posted 1/6/2016 2:47 PM (GMT 0)   
Hi Candy,

In my experience, I had/have a clogged right ear. I've had regular doctors & ENTs tell me it's fine, but it's actually babesia related. The babesia treatment is the only thing that alleviates it. Make sure you look into it.
Sarah
-positive IGM Western Blot- 39, 41 in January 2014// Igenex & CDC positive 11/14
-positive ANA and very low CD57

CandyS
Regular Member


Date Joined Nov 2014
Total Posts : 25
   Posted 1/6/2016 9:51 AM (GMT -6)   
It was my right ear too that was clogged. I got a positive for bartonella but not babesia. Several ENT said my ears were fine and that it was a sinus infection. They put steroids way up in my nose and it moved out of my ear after a year of having it and then it moved into my right eye with pain and blurred vision which I have had ever since. I also had sporadic little anxiety attacks started at this time. I was just wondering if the ear thing was actually the start of my lyme.

sarahm620
Veteran Member


Date Joined Feb 2014
Total Posts : 1808
   Posted 1/6/2016 9:58 AM (GMT -6)   
My babesia tests were negative, but I have babesia. Do you have any other symptoms of babesia?
Sarah
-positive IGM Western Blot- 39, 41 in January 2014// Igenex & CDC positive 11/14
-positive ANA and very low CD57

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9729
   Posted 1/6/2016 10:11 AM (GMT -6)   
CandyS it was my right ear also. Is the lymph node behind your right ear swollen too? Mine was slightly larger than my left, says my husband.

Tests for co-infections can be very unreliable. They can't fake a positive, but there are many false negatives in the co-infection tests.

CandyS
Regular Member


Date Joined Nov 2014
Total Posts : 25
   Posted 1/6/2016 10:19 AM (GMT -6)   
In the beginning, I had constant headache, really bad brain fog - short term memory impairment, I had bouts of extreme fatigue with chills. is there a separate test for babesia? not sure if I tested for that. At the time of my testing my symptoms of muscle twitches, weakness, anxiety, etc.. were more like bartonella and I had the bartonella fish test which was positive.

sarahm620
Veteran Member


Date Joined Feb 2014
Total Posts : 1808
   Posted 1/6/2016 1:38 PM (GMT -6)   
CandyS, yes there is a test for babesia but you can also be diagnosed clinically. Are you seeing an LLMD? I would ask your LLMD about babesia.
Sarah
-positive IGM Western Blot- 39, 41 in January 2014// Igenex & CDC positive 11/14
-positive ANA and very low CD57

bluelyme
Veteran Member


Date Joined Nov 2015
Total Posts : 4724
   Posted 1/6/2016 3:27 PM (GMT -6)   
It was right ear for me too ...sounded likè everything was underwater..one nurse only gave ibuprofen. ..garlic oil does seem to help... anyone do ear insuffexlation with ozone?

Purple Tulip
Veteran Member


Date Joined Aug 2006
Total Posts : 1301
   Posted 1/6/2016 3:36 PM (GMT -6)   
Its my left ear. I do not have any symptoms of bart of babs. Never tested positive for these either. I also have tinnitus in that ear. When I am herxing it gets worse (the sauna makes it feel really full and brings on the tinnitus!).

CD3764
Forum Moderator


Date Joined Sep 2014
Total Posts : 4510
   Posted 1/6/2016 4:28 PM (GMT -6)   
There are tests for *some* Babesia strains and they're less reliable than Lyme tests....and cost a whole lot more.

Same deal applies for Bartonella.

Throw in the fact that new strains are being discovered every few months and we are once again back to the need for a clinical diagnosis - one based upon symptoms.

Yes, even LLMD's drop the ball on this one. We're seeing more and more LLMD's not willing to treat without positive test results.....even though they are aware of the situation surrounding these tests.

It all has to do with the persecution LLMD's have faced over the years. Insurance companies don't want to pay for protracted treatment and get medical boards involved. Just read Cure Unknown and you'll see what I'm talking about:

www.cureunknown.com/


And, just because a person tested negative for a particular strain does NOT mean they are not infected with one or more *other* strains.

Healthy people are walking around with asymptomatic Babesia and Bartonella infections. Even the CDC acknowledges this on their website:

www.cdc.gov/parasites/babesiosis/

"Although many people who are infected with Babesia do not have symptoms, for those who do effective treatment is available."

www.cdc.gov/bartonella/clinicians/index.html

"Most cases of cat scratch disease (CSD) resolve without treatment", although some patients may develop complications from disseminated disease.

Cat scratch disease is the henselae strain of Bartonella which is very common in NJ.

If healthy people can have no symptoms of Babesia or Bartonella and still be infected, it's entirely possible that those of us dealing with any of these infections could also be infected with Babesia and/or Bartonella....and not necessarily have any symptoms...or they have mild and few symptoms.

I only had an occasional hot flash - that was it. My LLMD chalked it up to Lyme.

Yet, he had no explanation why almost 6 months on the full Cowden protocol did not break the plateau I'd hit after 5 months on abx.

I had herxes on some of Cowden's coinfection-specific herbs that got me wondering if I'd been dealing with Babesia/Babesia-like infection along with the Bartonella/Bartonella-like infection I always suspected I had (because my symptoms are all neuro).

Once I started following a more expanded protocol specific for Babesia, I herxed with air hunger, chest pressure, head pressure and anxiety - all hallmark Babesia. Same type of deal for me with the Bartonella herbs.

My LLMD refused to consider diagnosing these infections without running tests. I decided to spend the money on herbs instead.

Treating for these coinfections brought me from the 90% I was at when I went off abx and after almost 6 months on Cowden.... up to my estimated 98%.....and that was after only 4 months on my current protocols and not being at full doses until mid-December of this year.

I lost a LOT of healing time because I wasn't properly evaluated for coinfections.

I know this can be overwhelming - especially when clueless doctors cause us to question ourselves.

Still, these infections are best addressed in a step-by-step manner. People do heal from these infections. It just takes time....a lot of time.

You can do it.
Moderator - Lyme Forum
Jul 14 started what proved to be inadequate treatment ala PCP day after nymph deer tick bite
Sept 14 met LLMD - clinically dx'd with Lyme due to Bells Palsy - confirmed via CDC positive WB
Feb 15 transitioned off abx and started full Cowden protocol along w/LDN
Aug 15 started transition to Buhner's Lyme, Babesia & Bartonella protocols
Nov 15 stopped LDN - 98% healed!!

Post Edited (cd3764) : 1/6/2016 3:54:43 PM (GMT-7)


Purple Tulip
Veteran Member


Date Joined Aug 2006
Total Posts : 1301
   Posted 1/6/2016 4:46 PM (GMT -6)   
I'll look into Buhner's. This has intrigued me. thanks!

MadAboutLyme
Regular Member


Date Joined Dec 2015
Total Posts : 88
   Posted 1/7/2016 7:02 PM (GMT -6)   
Wow! Ear problems for a couple years, fullness and a swollen node behind my right ear. Sinus issues and Sore throat as well, that I attributed to reflux but recently my throat has felt much better, and I've been thinking today that my sore throat was never from Acid reflux. I was thinking the current antibiotics I'm taking have something to do with my throat not hurting (after 5 years of my throat being sore, on and off but most always an issue), but never got a Lyme positive until after a bullseye recently in the past 6 months. I have an undiagnosed neurological condition that started 6 years ago, and Lyme was suspected back then by a couple Drs but never got a positive Lyme test in the past. Interesting.

ksnin
Regular Member


Date Joined Jan 2016
Total Posts : 52
   Posted 1/9/2016 11:26 AM (GMT -6)   
I moved from Az to CT 1.5 years ago. This past year, I've been complaining to my husband that my ears always feel like I'm going into higher elevation. I also started with anxiety... Now have memory, cognitive issues, vision, weight loss, twitching, hair loss, back pain, knee & foot pain. I had a lyme blood test come back equivocal earlier this year that my gp dr dis missed. Right before Christmas, I had another test done and band 23 came back reactive. I'm having to fly to Az to see a LLMD on Monday, because it was at least a months wait back here where it's rampant. I'm glad that you mentioned the ear problem, because I knew it didn't seem right.

gardener20
New Member


Date Joined Aug 2015
Total Posts : 9
   Posted 1/11/2016 10:23 AM (GMT -6)   
Yes! Last July I became deathly ill with what I now know was bartonella. I could barely hear out of my left ear, and completely lost hearing in my right ear. I slowly got back most of my hearing, but I still have a feeling of fullness in both my ears. They click every time I swallow, very annoying. I was treated for lyme many years ago, and my current LLMD thinks I probably still have it although I don't test CDC positive, I have 3 positive bands.
My LLMD is not a fan of antibiotics, and is treating me with a variety of homeopathic and herbal supplements. I'm hoping my ear problems clear up with treatment, but I haven't seen any improvement yet. sad

mrdude
Regular Member


Date Joined May 2017
Total Posts : 93
   Posted 2/27/2018 7:54 PM (GMT -6)   
My first ever symptom was tinnitus, sounded like air was being sucked out of my air and then started ringing and hasn't stopped ringing ever since.

about a month later, my ears started clicking every time I talk or swallow.

Recent dental cone-beam CT scan shows that my sinuses are extremely blocked up and probably have been for at least 2 years.

I also have sensitivity to light.

mrdude
Regular Member


Date Joined May 2017
Total Posts : 93
   Posted 2/28/2018 2:44 AM (GMT -6)   
Bumping in case anyone has input regarding my latest reply.

Aerose91
Regular Member


Date Joined Feb 2016
Total Posts : 391
   Posted 2/28/2018 11:26 AM (GMT -6)   
I have all of these. Clogged ears, horrendous tinnitus, light sensitivity. I had really frequent ear infections when i was a kid

acarined
Regular Member


Date Joined Jul 2015
Total Posts : 177
   Posted 2/28/2018 1:31 PM (GMT -6)   
My ears were relatively fine with mild tinnitus until I took azithromycin. That brought on symptoms of fullness, a mild ache, sharp pains, popping, vertigo, and something like water trapped in one ear. All the symptoms resolved except increased tinnitus when I stopped the azithromycin, I suspect this was caused by a babesia and/or bartonella herx.
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, June 25, 2018 4:28 AM (GMT -6)
There are a total of 2,974,912 posts in 326,222 threads.
View Active Threads


Who's Online
This forum has 161315 registered members. Please welcome our newest member, Noluck.
280 Guest(s), 3 Registered Member(s) are currently online.  Details
WorriedUCer, Patrick M, GuitarHunter