No encephalitis in US?

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gfields
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Date Joined Oct 2015
Total Posts : 956
   Posted 1/17/2016 6:20 PM (GMT -6)   
This article seems to suggest that encephalitis does not occur in the US. Is that true?

http://www.columbia-lyme.org/patients/tbd_encephalitis.html

Reason I ask is because I feel like I have encephalitis. It feels like my head is constantly swollen.

Girlie
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Date Joined May 2014
Total Posts : 32601
   Posted 1/17/2016 6:44 PM (GMT -6)   
"It is not endemic in the United States"

That doesn't mean it does not occur in the U.S.

It just means it's not prevalent.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14; added biaxin Sept. 26/14 Disc. amox,added Ceftin Nov. 20th.; Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin); Abx/herb break Apr-July/15; July-mino; Aug. added Rif; Nov. switched mino to biaxin.

Girlie
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Date Joined May 2014
Total Posts : 32601
   Posted 1/17/2016 6:45 PM (GMT -6)   
gfields- have you discussed this with your LL Dr.?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14; added biaxin Sept. 26/14 Disc. amox,added Ceftin Nov. 20th.; Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin); Abx/herb break Apr-July/15; July-mino; Aug. added Rif; Nov. switched mino to biaxin.

gfields
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Date Joined Oct 2015
Total Posts : 956
   Posted 1/17/2016 10:27 PM (GMT -6)   
Yes, I have. I brought up that I thought it might be related to protozoa. He agreed, and said I have protozoa-like symptoms. He said for me not to worry, because he's going to treat for all co-infections.

I've been on doxy, rifampin, and a couple other abx. I haven't noticed any positive results yet. It's been 3 months. I guess I just need to hold tight and trust him.

Although I'm contemplating investing in a rife machine. I'm broke, but maybe I can save up some dough to invest in one. Probably wouldn't hurt, I guess.

Jackie Moon
Regular Member


Date Joined Apr 2014
Total Posts : 406
   Posted 1/17/2016 10:48 PM (GMT -6)   
gfields said...
This article seems to suggest that encephalitis does not occur in the US. Is that true?

http://www.columbia-lyme.org/patients/tbd_encephalitis.html

Reason I ask is because I feel like I have encephalitis. It feels like my head is constantly swollen.


Well I guess I am the ONE because I have been dx'ed with it.

I get it from 1. infection 2. toxins. If I don't balance killing with detox it will put me over the edge ( lost vision, hallucinations, pain, etc. ). I'd strongly recommend doctors care to monitor kill process. It can make you crazy. Literally. My mycoplasma + bartonella is the culprit.
Babesia duncaii, tularemia, mycoplasma, protomyxzoa, dengue fever - in remission. Bartonella still hanging around.

teragram
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Date Joined May 2013
Total Posts : 4039
   Posted 1/18/2016 12:14 AM (GMT -6)   
I would say it might be endemic in areas where Lyme is endemic.

A number of counties in NC are now endemic for Lyme.

M
HELLO!! :) :)

Margaret, 53, Lyme, relapsing remitting c. diff., complete thyroidectomy, remote breast cancer, Interstitial Cystitis, Babs, Bart, Fibromylagia, Immuneglobulin Deficiency, depression, asthma and allergies, migraines, myoclonous and remote seizures, orthostatic hypotension and dysautonomia

Medication, herbs, vitamins, probiotics.

rowingmom
Veteran Member


Date Joined Dec 2011
Total Posts : 1652
   Posted 1/18/2016 8:55 AM (GMT -6)   
Bartonella causes encephalitis, and West Nile does as well. Light/sound sensitivity, stiff neck with pain at the base of the skull, hallucinations, ADHD, headache, emotional lability - K had it all and recovered with bartonella treatment.

I can't believe that a lyme site would post such drivel.
13 yo daughter:
2010 - Dx ADHD, Tourette’s, Aspergers, motor delay, PANS/PANDAS
June 2011 - Igenex PCR positive bartonella, IND lyme. CD57 18. Positive ANA (speckled type), heterozygous A1298C MTHFR. Multiple Abx, herbals/homeopathics
April 2013 - ANA titers negative. Weaned abx. Start Buhner bartonella protocol, methylation/detox protocols, organic PerfectHealthDiet gf/cf/sf. Minimize EMF exposure
Nov 2013 – Clinical babesia diagnosis. Start Buhner babesia protocol
Sept 2014 – Symptoms 99% resolved

gfields
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Date Joined Oct 2015
Total Posts : 956
   Posted 1/18/2016 10:58 AM (GMT -6)   
Jackie Moon.. what is your vision loss like?

I have vision loss in my left eye. It's weird though. It's like I can see through it. It kind of flickers darkness. I guess I'd describe it as having a shadow over part of my vision. My eyes are 100% according to doctors, so I think it has to be some type of brain damage.

rowingmom, yes, that's why I was confused by the article. Encephalitis is a symptom of lyme, not a co-infection. I didn't understand why they said it only existed in Europe. I think encephalitis is one of my major symptoms. It's hard for me to think intensively because I think the mental stimulus increases pressure. That's why I had to quit work.

Traveler
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Date Joined May 2007
Total Posts : 36310
   Posted 1/19/2016 11:15 AM (GMT -6)   
Let's remember that what they are talking about is NOT a symptom, but a specific viral infection:
"Tick-borne encephalitis (TBE) is caused by an RNA virus known, simply, as “tick-borne encephalitis virus,” or TBEV. "

And that's why other sites will say this: "Several thousand cases of encephalitis are reported each year..."
www.ninds.nih.gov/disorders/encephalitis_meningitis/detail_encephalitis_meningitis.htm


Symptoms of encephalitis are:
Signs and symptoms may last for two to three weeks, are flu-like, and can include one or more of the following which in some individuals may become progressively worse and continue over time:

Fever
Fatigue
Sore throat
Stiff neck and back
Vomiting
Headache
Confusion
Irritability
Unsteady gait
Drowsiness
Visual sensitivity to light

More severe cases may involve these signs and symptoms:

Seizures
Muscle weakness
Paralysis
Memory loss
Sudden impaired judgment
Poor responsiveness

I've had every one of those symptoms, and I know that many members here have had at least some of those symptoms.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15
*I can usually post a link to any info that I post. Wish to see a link? Please just ask!

sarahm620
Veteran Member


Date Joined Feb 2014
Total Posts : 1808
   Posted 1/19/2016 12:27 PM (GMT -6)   
I don't believe anything that the Columbia Lyme center puts out. They call it "post treatment" Lyme. Eyeroll.
Sarah
-positive IGM Western Blot- 39, 41 in January 2014// Igenex & CDC positive 11/14
-positive ANA and very low CD57

gfields
Veteran Member


Date Joined Oct 2015
Total Posts : 956
   Posted 12/25/2017 6:42 PM (GMT -6)   
Jackie Moon - Did you actually get diagnosed with this lyme virus that causes encephalitis? I think I'm going to test for it, if I ever get around to getting a spinal tap.

LymeSick 🌟
Regular Member


Date Joined Aug 2017
Total Posts : 234
   Posted 12/25/2017 7:02 PM (GMT -6)   
This might also be of interest to you:

europepmc.org/articles/PMC2627606

gfields
Veteran Member


Date Joined Oct 2015
Total Posts : 956
   Posted 12/26/2017 5:09 AM (GMT -6)   
hmm- that site didnt seem to work for me.

LymeSick 🌟
Regular Member


Date Joined Aug 2017
Total Posts : 234
   Posted 12/26/2017 10:31 AM (GMT -6)   
gfields does this work?

docdro.id/zF1QUq1
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