LLMD in NC or SC

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sjsc
New Member


Date Joined Apr 2015
Total Posts : 6
   Posted 2/2/2016 8:22 PM (GMT -6)   
Hello,

I'm looking for a llmd in North Carolina or South Carolina area that accepts insurance. I could possibly go to Atlanta if my insurance approves. We are currently covered by CWI / Crescent. Out of Network, we are covered under Multi Plan.

I was bit in 1993 but went undiagnosed until 2007. I saw a llmd in Asheville NC for about a year but eventually we ran out of funds and the out of pocket expense became more than we could afford. The dr would no longer see me since I couldn't come in on a monthly basis.

I felt better for a number of years but I still had the occasional flare. I decided to go back to work full time but that turned out to be a huge mistake. I was processing financial aid for a third party servicer, but three months after I took the job they restructured their business and it was poorly planned. The business was falling behind so they started requiring us to work from 7 am until 6:30 pm five days a week. This was to be temporary overtime but it turned in to a six month requirement. No time off was allowed and we worked through our lunch breaks to meet their demands. The stress was too much and my lyme symptoms came back with a vengeance.

I quit my job back in July but I still haven't been able to shake the lyme symptoms. I've become sensitive to nearly every supplement I try. Cats Claw sent my neuro symptoms off and I haven't recovered from it since. I'm determined to feel human again but since I'm unable to work I must find doctor that will take my insurance. I appreciate your help and I wish you all health and happiness.

gkamom
Veteran Member


Date Joined Apr 2015
Total Posts : 768
   Posted 2/2/2016 8:58 PM (GMT -6)   
sjsc,

Typed most of this and realized you are new to the forum. This first part is from one of the moderators on the forum. Most of the moderators are unable to answer everyone's questions because they have many things going on this week.

After you read that jump down to the bottom and I'll give you a little more info. Sorry, I don't know how to make the links real links.

So here is Traveler's welcome:
"Trav's Welcome message - please feel free to copy and paste all or parts of it to share with others!

If you haven't ​yet​, it would be helpful for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as it is packed full of important information, symptom lists, helpful links and pdf's, how to detox when one has these infections, information on probiotics and much more. And this is another good list of possible detoxing routines: www.tiredoflyme.com/detox-methods.html


For information on finding a​n ILADS ​(International Lyme and Associated Diseases Society)​ trained​ Lyme Literate Medical Doctor(LLMD) in your area, you will need to enable your email option in your profile in order to receive any recommendations, as we don't allow doctor's names and contact info to be posted on the forum for several reasons. You can enable your email option in your profile, under 'edit profile'. Be sure to click the submit button to actually save your preference.


​You can send Traveler an email by clicking on her screen name or the small blue envelope under her screen name. She may have contact information for some LLMD's in your area as well.​ ​Please include your state (or province) and area that you would like to find a LLMD in and she will be happy to share the names that she has.


You can email the Tick-Borne Disease Alliance at medicalinfo@tbdalliance.org​ for LLMD referrals and you can go to ​tbdalliance.org​​ to learn more about these infections.


You can go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:
www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74​​


ILADS has their own referral system as well:
ilads.org/ilads_media/physician-referral/


​ You will want to find an ILADS trained doctor, not one that has self proclaimed themselves as a LLMD or an ID Doc (Infectious Disease Doctor), as ID docs believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. Go to the ILADS site to read the new (2014) Treatment guidelines to get you started on your healing journey:
www.ilads.org/lyme/treatment-guideline.php"



So this is me (gkamom), sorry to say but we have yet to find a single llmd in NC that takes insurance and really no reliable llmd. There was one in CH but she was sick herself, but didn't take insurance anyway.

There are a few others on the forum from NC. teragram and k07 off the top of my head. I know at least teragram was going to visit a doc in VA, but don't know how that worked out. There are a few LLNDs, but none take insurance either and I don't have a name for you. I visited an ND today but she just wanted to sell me her supplements.

There are some support groups that meet in Raleigh and Apex. I know that they have been branching out lately and I think that one satellite was meeting near Asheville. They probably won't give you names via email, but if you are able to attend some meetings you may be able to get a name that way.

We don't use doctors names on the forum because many get called in front of medical boards if they treat Lyme patients. That's why Traveler's message mentions ILADS.

If you want people to be able to send you information you need to go into your settings and turn on your email option. The blue envelope under your name will light up and then people can send you information. You can email me (just click on the envelope under my name) and I can send you a link to the support groups.

As far as trying the cat's claw and having your neuro symptoms get really bad, it may be a combination of doing to much to soon and not detoxing. If you go to the "New to Lyme?" thread (always at the very top) there is a lot to read and detoxing is one of the most important things. There is also a site called tiredoflyme.com that has a lot of info about detoxing.

We tend to have a lot of difficulty with meds (even herbs) and most people need to start slow taking maybe a quarter dose and working up to a full dose. It sometimes is only one drop at a time. Everyone responds differently.

I hoped this helps. Read and post questions. Everyone will do their best to answer questions. Also be aware that this is a mixed group. Some use only herbs and others abx. What works for one may not work for another.

Kim

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32656
   Posted 2/2/2016 9:28 PM (GMT -6)   
Welcome back, sjsc - I see it's been awhile since you've been on the forum.

Sorry that you're Lyme symptoms have returned...but I am glad you came here for help.

This is a wonderful, knowledgeable group of people...and we'll do our best to help you.


I hope you keep reading, posting, asking questions....
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14; added biaxin Sept. 26/14 Disc. amox,added Ceftin Nov. 20th.; Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin); Abx/herb break Apr-July/15; July-mino; Aug. added Rif; Nov. switched mino to biaxin.

ghost93
Regular Member


Date Joined Jan 2016
Total Posts : 183
   Posted 2/2/2016 9:40 PM (GMT -6)   
i know of 2 lyme docs in NC there both in Asheville E-mail me n i will send you both there names and both there websites.

ghost93
Regular Member


Date Joined Jan 2016
Total Posts : 183
   Posted 2/3/2016 1:01 AM (GMT -6)   
I am so sorry.I missed the you need one that will accept insurance.I am so so sorry.Im not possitive if we are talking about the same doc in asheville but i actually know of 2 in the asheville area.I am not possitive if they do or dont take insurance.If you still would like you can stll E-mail me it cant hurt to atleast call n ask if they accept insurance.

k07
Veteran Member


Date Joined Sep 2015
Total Posts : 2502
   Posted 2/3/2016 8:22 AM (GMT -6)   
Hi sjsc! I am also from NC. I am currently seeing an Integrative Practice in Winston. They are Lyme Friendly but not totally Lyme Literate, which they told me upfront. They are $200 a visit which was a good deal lower than others so I decided to give it a try. If you are interested feel free to email me and I can share my protocol and other info.

When I first became ill I saw a LLNP in Greensboro. I do feel the integrative practice is better than she was. They are very interested in learning and seem to be open to my suggestions. The main doctor has attended several ILADS conferences recently.

I really haven't searched very hard for a LLMD that takes insurance. I felt like that would be like searching for a needle in a haystack! I did however have a doctor in Ohio (where I'm from) who was considered Lyme Literate that did take insurance. He is moving away from standard ILADS treatment and favors LDI (low dose immunotherapy) instead of antibiotics/herbals though. I personally wanted to try antibiotic/herbal therapy so I chose to go this route, but did do the LDI for a short period.

Have you thought of starting with Japanese Knotweed instead of Cat's Claw? Just a thought. Maybe it would be easier for you to tolerate.

sjsc
New Member


Date Joined Apr 2015
Total Posts : 6
   Posted 2/3/2016 7:26 PM (GMT -6)   
Thank you all for your reply. For now, I'm back on Doxy at least for a few weeks. A local doc would only give a two week supply. I hope to be under the care of a llmd soon even if it requires me to travel to do so.

ghost93 - I probably went to the two llmd's you mention in Asheville. One use to work in the other practice then branched out on her own. I like her very much but I can't afford the out of pocket expense to go there anymore. I appreciate the info though.

ghost93
Regular Member


Date Joined Jan 2016
Total Posts : 183
   Posted 2/6/2016 12:20 AM (GMT -6)   
I actually think we are talking about the same people.I am sorry.I wasnt sure if they took insurance or not.I just know of them havnt really went to either yet.

bleepitybleep
Regular Member


Date Joined Jul 2017
Total Posts : 53
   Posted 11/28/2017 7:48 AM (GMT -6)   
k07,
I am wondering if you might contact me about your experience w/integrative docs in WS. Think I've had Lyme since 2013 at least and finally was diagnosed w/rickettsia (RMSF) and Lyme by WB this past summer. 20 days of doxy has left me w/dizziness & vertigo for 4 months. Barely able to function b/c of it.
I'm in Greensboro-HP-WS area, but would consider traveling much further.

Thank you.

k07
Veteran Member


Date Joined Sep 2015
Total Posts : 2502
   Posted 11/28/2017 11:28 AM (GMT -6)   
bleepitybleep said...
k07,
I am wondering if you might contact me about your experience w/integrative docs in WS. Think I've had Lyme since 2013 at least and finally was diagnosed w/rickettsia (RMSF) and Lyme by WB this past summer. 20 days of doxy has left me w/dizziness & vertigo for 4 months. Barely able to function b/c of it.
I'm in Greensboro-HP-WS area, but would consider traveling much further.

Thank you.


You will have to enable email so I can email you. I only saw them for a short time so I'm not sure how much help I'll be. I was also positive for RMSF (were you IGG or IGM positive?). I think it must be very prevalent in that area. I lived in Greensboro and got sick the first summer we moved there. I am no longer there - just moved this summer to Ohio.

I know of a few other docs in the area that you may want to research too.

bleepitybleep
Regular Member


Date Joined Jul 2017
Total Posts : 53
   Posted 12/23/2017 8:13 AM (GMT -6)   
k07,
I missed your reply. I will enable the email if you right now if you are able to reply. I too was in OH for several years before moving to Greensboro. I actually think I picked up Lyme in OH (or who knows where and when, but symptoms started there after I'd lived there for about 12 months). The RMSF is STILL igM positive and high (it was 1.9 in July and in Nov was 1.4 ??) LLMD says its still being high just means I had a recent infection.
I'll enable email now.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32656
   Posted 12/23/2017 11:40 AM (GMT -6)   
bump for k07
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
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