WOW!!!! You have really done your research!! :)
For me personally, I feel liike all that the Mepron did was make me feel worse. I would agree with what you said, " did it just make you suicidial and symptomatic and not improve the babesia symptoms." It is so hard to know what symptoms are from Lyme, Bartonella, Babesia, and Candida. The severe sweating for no reason and air hunger were the two major symptoms for me to know that I have Babesia.
Regarding sauna: Yes, Ihave a sauna in my house. It is a 2 person Far Infarared sauna. my husband bought it from Amazon. It cost around $1,100. I have been using it for a year now and try very hard to use it everyday. It wasn't until July 2016 tht my sweat smelled very bad. Yes, I would have to agree with you that something (toxins) are starting to get out of my body. If you decide to get a sauna, please remember to start out slowly in the begining. It took me a while to get up to 140 degree Fahrenheit for 50 minutes.
Ha ha ha!, No , I haven't heard of chronic inflammatory response syndrome, but I am 100% sure that I have it! Is it the same as a Cytokine Cascade? No, I haven't been tested for Mold Allegies. I was supposed to get tested for mold several months ago, but the lab that I go to was confused about
the tests and it sounded like it was going to cost a lot of money. Thank you so much for the website. It sounds interesting. I will definetaly take a look at it! I think that I do have a mold issue because of my stinky sweat. The A-P (for parasites) formula is also for mold and Candida.
Yes, I have read other peoples posts and have learned about
Ammonia in the brain. I would agree with you on this also. I have read that ammonia is the reason for brain fog. No, I haven't tried Dr. Jernigan's Neuro Antitox. The Detox1 that I am taking now, and Detox2 are supposed to be good for Neurotoxins also. I will be starting Detox2 soon. Do you use Dr. J's Neuro Antitox? Does it help with your symptoms?
No, I didn't do the 23 and me test. I could kick myself. I wish that I would have spent the money on that instead of just testing fot MTHFR through my local lab. I personally think that I have other mutations that could be the reason why medications never work for me. I am also taking Liposomal Glutathione. I have been for quite some time. It never seemed to do anything for me. And yet, I keep taking it. Now I wonder if I have CBS mutations? ..... hum?
Ha ha ha! I am so sorry that you also have the "mthr****er" mutation. :( thank you for the information about
Dr. Amy Yasko. I have looked at her website in the past.There have been posts from other people here that have talked about
her protocol. If I remember correctly, isn't her protocol kinda expensive?
Thank you for the great information about
Zinc. My LLMD wanted me to start this. I just haven't bought any yet. I was also informed through a friend about
taking minerals to help support my body. I haven't bought those either. Ugh! I am on sooo much stuff. My day is consumed with medications, herbs, vitamins, supplements, and detoxing. Pretty much every waking hour of the day, I am taking something. Or a couple of things within the hour.
Ha ha ha! Yes!, I have thyroid issues, I am sure that there are times my adrenals are low. They were already low when I was tested in my late teen years. Hormones!, Yes! I have had menstration issues for a long time. Although, I think I might be on track right now. Ha ha ha! Yes! Like you said, "it's like it never ends!" I 100% agree with you!!! :)
Never appoligize for too much information. This is how we all figure out what to look into or try next. I am happy that you are researching for yourself! This will help you to know what questions to ask your LLMD or what tests to possibly have done next. You are your best advocate!!! Although it sucks to be so sick and it is still up to you to find the answers.
I also have pressure in my head daily. It used to be a lot worse. I think that the A-Inflam helped with relieving most of the pressure, but still quite a bit in there. It used to feel like my brain was pushing on my skull.
Well, since I have stopped antibiotics, it is hard to say what is going on. I still have a lot of daily symptoms. And everyday is different. Example: yesterday, stabbing pain in left hip and right wrist, very forgetful, pressure in head, headache, sore stiff neck, "Alzheimer's" symptoms flaring (lack of concentration, focus, can't find words, mispelling words, asking my husband same question over and over again), not sure if I am awake when I am, clicking noise in left ear, right ear feels plugged yet sensitive to noise, right knee gave out, heart pounding harder, fatigue, black outs, and feel like the walking dead. It is like my brain is jello!!
The only symptom that I have been able to completely eliminate is the stuttering and losing my ability to talk. This happened May 2016. My symptoms are all over the place. they have been since I started treatment. Every system of my body has been affected since treatment.
My major complaints for daily function. Ha haha! This is the million dollar question! :) I just take it one day at a time. Sometimes my symptoms change by the minute. Every day is different. I don't know what symptoms will rear their ugly head for the day.
Misdiagnosed for 27 years. Below is my first thread.www.healingwell.com/community/default.aspx?f=30&m=3509506
Started to talk normal again May 2016
Still dealing with other symptoms