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Regular Member

Date Joined Jul 2015
Total Posts : 63
   Posted 2/24/2016 1:29 AM (GMT -6)   
So I've been on treatment for lyme disease for about 8 months and slowly getting better except for occasional fatigue and recently have started getting this pain behind my knee which coincided generally around a 5 hour trip I took and another a couple week later.

I have a lump scar there from 2 years ago where I accidently grazed it (and I scar very easily) so I thought it was that but I developed this squeezing n painful ache inside my leg that would discomfort and make it hard to stand on. This built and at the same time I got lightheadedness and dizziness that I haven't really had for 6 months or so and a shortness of breath.

I went to doctor and managed to get an ultrasound for bakers cyst that came back negative of anything bad/dvt but the guy did note that my veins are a big larger than normal there and that he didn't know what it is.

But since then I have got a growing sporadic intense cough which I went to hospital for and got chest X-Ray that came back negative (but the lady told me chest X-rays don't always show clots) and blood tests that came back negative for whatever they were searching for, more fatigue and over the past week strange feelings in my head like intense head pressure, blood in my stool, numb feelings on head, nausea, pulsing head aches on the right side and feeling distant and unclear of thoughts also with floaters that flash up crazily all over vision and this all happens at random times each day getting worse. I've also been having stitch like feelings in my ribs that last for half an hour and have been sleeping for lik 13 hours each day which is ridiculous.

Over last past days it has gotten so intense especially with headaches, head feelings, nausea and fatigue and a blood taste in my mouth that occur every now and then.

I'm pretty scared of it being a blood clot that has gone up to my chest or brain but they seem to have done the tests so I don't know or maybe possibly this is a herx from continuous antibiotic treatment but I never got anything like this before , I'm not sure, very scared though and unsure of what to do.

Does anybody have experience with testing of blood clots or blood clot experience with lyme and shed any light for anyone going through this or wondering?

And could you get such symptoms from a herx or kinda flare up even blood in stool , I dunno what to do confused confused cry

Post Edited (commandersorebod) : 2/24/2016 1:59:20 AM (GMT-7)

Forum Moderator

Date Joined May 2014
Total Posts : 33876
   Posted 2/24/2016 12:28 PM (GMT -6)   
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14; added biaxin Sept. 26/14 Disc. amox,added Ceftin Nov. 20th.; Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin); Abx/herb break Apr-July/15; July-mino; Aug. added Rif; Nov. switched mino to biaxin.

Veteran Member

Date Joined Jul 2015
Total Posts : 9729
   Posted 2/24/2016 12:42 PM (GMT -6)   
My best friend had knee replacement surgery. One night she was not feeling well and she had a little cough but not bad. Then she could not get her breath and her chest and back hurt. She had blood clots in her lungs. When I say she could not get her breath, she said it was VERY intense. Not just shortness of breath.

If you are seeing red blood in your stool that can be a hemorrhoid or a fissure. Best advice for this is get some fiber and take it daily. Both can be corrected with more fiber. Constipation is not your friend. The blood in the stool that is scary is the black coffee ground looking blood. That is doctor required!!

To me you are herxing and you need to make sure you are detoxing and especially drinking enough water. When I first got lyme I slept A LOT. My body loves to sleep and heal and has all my life. I would take 2 naps for about an hour a piece and then sleep 10 hours every night. Obviously I did very little else. I just made sure that I had water by my pillow and lemon water is the best.

Good luck and also please note - I am not a doctor. All that you have stated should be totally discussed with your doctor. You really should call his office and tell his staff of your symptoms TODAY.

Elite Member

Date Joined May 2007
Total Posts : 36310
   Posted 2/24/2016 12:49 PM (GMT -6)   
Well, my experience with blood clots wasn't with Lyme or with me, but my husband. He's a walking miracle according to every doctor that hears of his issues. He had each lung 3/4 full of blood clots and each leg, from hip to ankle was packed full of blood clots as well. This obviously disabled him and has left him in a lot of daily pain.

Astroman had a blood clot while in treatment, I believe.

The tests they do in hospitals and such are very accurate for blood clots now - especially if they are actually looking for them.

Honestly - and this does not down play your symptoms one bit!! - it sounds more like they are symptoms of these infections. Are you detoxing? You didn't mention it.

Blood in the stool - is this only detected with testing, or do you actually see it? If you actually see it, is it bright red, or dark almost black? Also, if you are seeing it, how much at a time and how often?

And what all are you being treated for right now? I can see what I believe to be Lyme and Babesia symptoms -and maybe Bart - in what you have listed.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)

Regular Member

Date Joined Sep 2017
Total Posts : 96
   Posted 12/22/2017 2:52 PM (GMT -6)   
darn this is scary indeed, i was researching lyme complications and this freaked me out. I'm 20 y/o, how predisposed to blood clots am i?

Regular Member

Date Joined Jan 2017
Total Posts : 410
   Posted 12/22/2017 9:24 PM (GMT -6)   
I recently had a clot in my jugular. Scary stuff. Bartonella can cause clots. And infection, in general, can cause clots. But it's not very common so I wouldn't worry too much. Take serrapeptase, nattokinase ir lumbrokinase and you should be fine.
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