Posted 3/6/2016 11:55 AM (GMT -7)
I am beating chronic neuro lyme disease. To know how serious my case was, I had a world renowned lyme doctor in Connecticut tell me I had the highest PANDAS reading he has EVER seen. Ever. This doctor has treated many high profile people. I have waited for the right moment to post this message to the forum, mainly because I want to be sure, as many of you know recovering from lyme has its many ups and downs. And my journey has been no different.
If you want to see my story, you can look at my previous posts in this forum and learn a little more about it. But for now I will give you the very shortened version of my lyme disease battle. After pulling off a tick in July 2013 and thinking nothing of it, I developed serious neurologic symptoms 2 months later. I did not connect these symptoms to lyme disease until 6 months after being bitten. My worst symptoms were very scary intrusive/ocd thoughts, anxiety, brain fog, light sensitivity and low energy/mood. I was finally put on doxy 6.5 months after being bitten. I saw improvement after 4 weeks being on antibiotics, my anxiety ocd/intrusive thoughts slowly disspeared. I stayed on doxy for 2 months. When I got off, symptoms came back. So I got back on dx, and symptoms disappeared. 3 months after my second round, I thought I was good. Got off dx and symptoms came back.
It wasn’t until November 2014, after nearly a year of treating lyme with doxy and zithromax that I tested positive for bartonella hensaela. This probably explains my recurrence of symptoms after each time getting off the dx. These drugs, doxy and Zithromax, only kept the infection at bay, never destroying it. I got on rifampin, I saw no improvement until 3 months. At 3 months, I saw drastic improvement, seeing good change every week. I stayed on rifampin for 7 months. Once I got off rifampin, I noticed slight return in symptoms and my GI system went haywire for reasons unknown. I was no longer digesting food properly, developed IBS, constipation, bloating, cramps, and even more significant weight loss. I believe I either developed SIBO or the lyme had moved into my digestive track. June 2015 I begin biciliin shots 1x week. At this point I have beaten bartonella, mentally I am about 75% experiencing some symptoms such as low energy/mood, slight ocd thoughts, floaters, eye spasm, but physically my body is the worst it has ever been. After doing bicillin shots for 3 months 1x a week my body weight was the lowest it has ever been and my health was declining. At this point I decide to stop conventional medicine and go the alternative route.
I slowly weaned off bicillin, starting once every 2 weeks and eventually once every month. My main method of treatment through the alternative route was MMS. I read great things about it and was willing to try anything. I truly believe MMS saved my life. After weaning off bicillin, my stomach issues improved a little. I began MMS in October 2015. Once I started MMS, the brain fog that I had noticed creeping back completely went away, the eye spasms that I had for months completely went away after the first few days of MMS. It was at this point that I knew this stuff was very legit. Now, 5 months since starting MMS and doing bicillin shots once a month, most of my symptoms are gone. I do have occasional recurrence of symptoms lasting a day or two but I believe this a herx cycle from the lyme. So since getting off abx and starting MMS I have significantly improved. I started taking HCL, Diacometous Earth, and peppermint oil for my stomach GI issues and it seems to have a serious effect. I have gained 3 pounds in the last week. Whatever it is doing, it is working. I am also on PEKANA detox formula, MACA root, Moringa powder, vitamin b complex, and vitamin d. I will continue these supplements for the foreseeable future as I think they are key in my recovery. I am not saying I am cured, but I have seen drastic improvement since radically reducing ABX and starting MMS and other supplements. I am definitely beating this horrible disease. Its almost been 3 years and I finally see the light at the end of the tunnel. I will give another update in about 2-3 months. We will find a way to beat this dreaded disease. God bless us all.