Sorry I have been posting so much lately, but I'm almost 3 weeks into treatment here and I'm a complete mess, I only have about 11 days left of antibiotics and I've only gotten worse, no improvement at all. (amoxicillin 2000mg a day for 30 days) getting my blood drawn for igenex test on Wednesday this upcoming week.
I'm starting to question if I even have lyme. Now I'm going back to possible lupus or sjogrens.
I have such dry eyes lately and thinking is that even a symptom of lyme?
The more and more I think of it the more my symptoms sound like autoimmune lupus or sjogrens. I don't really have any nerve or neuro symptoms that is why I question it. Just joint pain, muscle pain, joint cracking, dry eyes, headaches , fatigue and a touch of anxiety.
I had my ana tested it was 1:80 homogeneous. A low positive. Then I tested negative for all those other autoimmune diseases, but what if they are wrong? My doctor didn't think I had them based on this blood work.
Why would ana be positive for someone with lyme. That only makes me question it more.
I hate this so much that these stupid diseases are so similar. I know I am so sick but i can't do anything but wait.
One month of antibiotics might not be enough to start feeling better...
It took me about
2,5 months before I started to feel somewhat better... but I still get horrible headaches, neck pain, muscles ache, cracking joints my eyes are extremly dry and the right eye is bloodshot, conjuctiva is inflamed..., my hands get numb when I sleep... however, I do have some good days and I hope there will be more and more of those. I was on Doxycycline- first at 100 mg twice a day for about
2 months, then increased the dose to 200 mg twice a day. However, when I was on higher dose of doxy, I started having issues with blood pressure rising, and pressure in my eyes was high when I went to see ophtalmologist.
Now I am transitioned to Cowden's herbs.... Samento and Enula. It is challenging, I would say even more than antibiotics... but I have high hopes.
I do not have Lyme proven 100% by my blood tests, it is a clinical diagnosis...but I do have co-infections that normally come with lyme such as Mycoplasma and a bunch of viruses that I do not have an idea where could I get them such as EBV, Citomegalovirus.....I did test negative to all of the autoo-immune diseases and went to see multiple doctors and most of them were saying that it is all in my head...
We can not be 100% sure if we do not have 100% positive tests, or we can doubt in acuracy of our tests as labs do make mistakes, but at least, we can try to use the right treatments to get better....
Good LUCK to all of us...
Post Edited (Planny) : 3/18/2016 12:25:45 PM (GMT-6)