Posted 3/18/2016 6:27 PM (GMT -6)
It came up when I was writing the letter I would never send to the IDD. I've already written one, but I guess I still need to process...
In short... the question is... has anyone ever stopped to think if bacterial forms can be transferred from humans to blood sucking insects, so if someone comes to the US from another country with a disease, and the US blood suckers did not carry the disease before, catch it from people? Haven't googled this yet... pooped and time to chill!
Dear Dr. S,
Thanks for taking the time to visit with me. I am making good progress sorting through this all and, after consulting with 5 Dr.’s about my health, am flowing with the perspective of those that were most knowledgeable, up to date with research, and had views I could corroborate via my own research, ultimately settling on a great blend of my new GP (she rocks!) and a Dr. in Chinese medicine. When dealing with ancient organisms, it makes most sense with me to work in the healing modalities that have been around the longest, and this Dr. also knows how to advise on what testing would be helpful via Western medicine, and suggested a gallbladder scan given the long list of symptoms I presented to him, and my new GP followed up with this on the very same day, giving me a referral after reviewing the long list of symptoms I had given her.
You indicated you didn’t have much time to stay up on research, so I thought I would send along some of the rationale with regard to why I am choosing to flow with the other perspectives.
I was going to print out the sources for you, but I decided against that.
My sense is, that when it comes to “Lyme wars”, stances are made, and there is apparently, with some Dr.’s, no interest in what is supported by science, but choosing the view that will support their religious/political view in relation to a disease some Dr.’s even treat as a “belief”. Not believing it exists. Why bother paying for the copies out of my own pocket, when my guess is, it would probably just be dumped in the trash.
After all, the Dr. is “superior” in knowledge to the “dumb” patient, which just simply a function of the system, and a manifestation of a healing modality that comes out of the white towers of academia and its interesting ego infused, politically unusual, somewhat toxic (I worked as an assistant ombudsman at a university, and networked with ombudsmen at other universities) environment.
I respect others belief systems, but I love living on this planet, in this form, who I am, and I am grateful for this lesson.
As with some religions, where an individual hands over their spiritual questing/information over to a spiritual leader, and they cease to question and quest with their own mind, heart, intuition, gut, intellect; you can do the same with medicine.
My spouse’s “belief” in relation to health care, is he pays a specialist to interpret his symptoms and advise him, and he does not question further - to spite a mother he loved dearly dying of colon cancer. Her GP refused to order a colonoscopy when she complained for an extended period of time about abdominal pain. By the time testing begun, it was too late, the colon cancer was too far gone.
To alleviate stress, we now agree to NOT discuss our health with each other.
My “belief” is to not give all my power away, as I might to a guru, or a priest, or a minister in the form of religion, but to use the gift my maker has given the species, a beautiful mind, a heart, intuition, gut instincts, intuition, and communicate with the healers I seek support from, and DO MY OWN RESEARCH. ADVOCATE HARD IF I SENSE SOMETHING IS SERIOUSLY UP. The body knows, and in hindsight, I can see why I was so frantic for help when it came to the aneurysm repair. My body was sending me “danger, danger, danger” signals.
I am grateful I slowed down, listened, and am grateful for the advice of an attorney whose wife after being mis-diagnosed from a Snsm Dr. By the time they got her somewhere out of state, and a diagnosis was made, and got her into a specialty clinic, she died two weeks later from complications of the disease.
I will always do research now!
I think the field of modern medicine could learn a bit from nurturing the inherent curious nature of the human condition, the capacity to deeply listen to their patients, to trust intuition and gut instincts, and if they are baffled, well, rather than run test after test after test after test, refer the patient to the medicine forms that have been around much longer than Western medicine and might have a better chance of sorting it out.
Attachment A: The Western Blot/Elisa ordered by the lab Sansum uses both being negative “pretty much rules out lyme” (the GP's words, and your view as well). The naturopath as well as the Dr. of Chinese medicine who is local, and has successfully helped a few patients with tick borne illness both concurred that IGEN-X is the lab to use, and both stressed that lyme is a clinical diagnosis, and blood tests can’t be relied on.
(insert chapter from Buhner’s book, chapter from Horowitz’s book, insert traveller's description of WHY the lab matters, insert other links)
Attachment B: Your view that lyme is not diagnosed by tissue samples.
Attached is a scientific article that lays out what the “gold standard is”
Attachment C: Your view that the CDC screens blood for Babesiosa
I attached the flyer from the CDC and their current policy on screening donors for this tick borne illness. My guess is, if they don’t screen donors, they don’t test the blood, but I could be wrong.
Attachment D: Your view that the woman I spoke of, whose tests were negative, and a Dr. in CT confirmed it with a tissue sample, that she went to see “One of those type of Dr.’s”. At the time she went, lyme was just being understood, the lyme wars had not begun, “those type of dr.’s” did no exist. She simply went to the first state that was beginning to consider tick borne illnesses, CT, and he went into the bulls-eye rash she had and took a tissue sample, and did a culture confirming the lyme spirochete. When they were first understanding lyme in the 80’s, I don’t know what the blood tests were. Haven’t uncovered that yet, but for sure, lyme wars had not been started and there wasn’t the division in the field that you described to me.
Attachment E: Your view, and all IDD’s view, that tick borne illnesses are not transmitted sexually. The CDC’s view is “There is no evidence that Lyme disease is transmitted from person-to-person. For example, a person cannot get infected from touching, kissing, or having sex with a person who has Lyme disease.” Just because the science does not exist that proves it one way or the other conclusively does not translate into tick borne illnesses not being transmitted sexually, and, in my view, that is a really dumb and dangerous assumption to make.
I found the one study that I am assuming is the standard used, and it is a study with rats. I am not aware of any scientific studies that show that what holds true for rats holds true for humans, but I do know that humans have sex in a very different way than rats. Additionally, it was a bit odd that you would dismiss the latest research that suggests that it might indeed be transmitted sexually. Additionally, has anyone in science ever paused to consider, that perhaps infectious diseases could conceivably be a two way street? Can critters that suck blood pick up bacterial forms, these forms that are ANCIENT relative to the human species, and have had a very, very, very long time to figure out how to adapt and survive, well, can humans transmit the disease to critters that suck blood, and as humans and animals travel to new parts of the world, new blood sucking critters in different parts of the planet get the bacteria from the humans and the animals that travel with them? I think a study of immigration patterns, and hot spots for lyme could be interesting, as could a study of letting ticks free from bacteria suck the blood of people who present with an EM rash, with people who have a “gold standard” clinical diagnosis of lyme one year into the disease, two years into the disease, three years into the disease, five years into the disease, and so on as well as people who are in “remission from the disease”.
I think it is an intriguing question, and it could make for a playful sci-fi story, the bacteria that sought to rule the world, and do away with species that mess with mother nature, live a life disconnected and out of balance, and who aren’t interested in questing in a way that harmonizes with the precepts that govern the magic and mystery of this wild dream we are all choosing to dream together.
Attachment F: You asked me twice, don’t you think, now that the aneurysm has been treated, these other symptoms will all go away? I know you didn’t mean to, but really, what an insult to ANYONE’s INTELLIGENCE. Attached is my list of symptoms, and also attached is the surgeon’s reply to which of these symptoms relate to a brain aneurysm (not sure I’ll get this)
PS - I also wonder WHY you didn't consider the blood work after I was given BACTRIM for the bladder infection. I know the science must be there that describes what goes on in the blood during a herx reaction. There was blood work done when I first went in for the bladder infection, and also blood work 3 days into the anti-biotic at the ER, when they were convinced I had kidney stones. It wasn't and "allergic reaction" to the anti-biotic. I really don't know the answer to this question, and I really want to know. http://mpkb.org/home/protocol/immunopathology
PPS - did you ever think that the brain aneurysm might be a symptom? Or perhaps, that what was being killed with the bladder infection was more than what was going on with the bladder infection? Not that it was, but did you ever ask yourself that?