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mommychops
Regular Member


Date Joined Aug 2015
Total Posts : 28
   Posted 3/21/2016 6:55 PM (GMT -6)   
Has anyone been tested for this? Treated for this?
Thank you...
http://www.immed.org/infectious%20disease%20reports/infectdiseasereport06.11.09update/pha_nicolson_0709_v4.07.pdf

hateslyme
New Member


Date Joined Mar 2016
Total Posts : 4
   Posted 3/21/2016 7:17 PM (GMT -6)   
I got to another LLMD in January who suspected it and tested me for it. Positive was over 320 on the test and my number was 1127!

She prescribed me clindamycin 300 mg 2 per day, twice per day and biaxin 500 mg 1 twice per day. I'm also on a bunch of other supplements.

I had previously been diagnosed with bartonella, babesia and rocky mountain spotted fever and obviously the lyme but didn't know that I had the mycoplasma as well.

I might try some natural treatment for it like the byron white formula A-Myco since I don't have insurance at the moment and I've been trying to get on Medicaid.

Main problem for a long time now (I've been sick in total for just about five years) has been very severe fatigue, like to the point that I don't shower or really do much of anything because I just have absolutely no energy. Haven't seen much improvement with the abx or any of the supplements.

k07
Veteran Member


Date Joined Sep 2015
Total Posts : 2556
   Posted 3/21/2016 7:47 PM (GMT -6)   
I tested high for mycoplasma too. I believe you have to treat constantly (no pulse) for mycoplasma. The only thing I'm doing consistently is the herbs Isatis, Houttynia, Sida Acuta, NAC, vitamin E. I need to start cordyceps and chinese skullcap soon. I am taking antibiotics on and off for lyme and hopefully they are helping kill the buggers.

bluelyme
Veteran Member


Date Joined Nov 2015
Total Posts : 4915
   Posted 3/21/2016 9:06 PM (GMT -6)   
Myco and lyme are nasty together ...it is implecated in als ,gulf war etc etc

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33963
   Posted 3/21/2016 10:35 PM (GMT -6)   
Welcome to our community, hateslyme!

You said you haven't had much improvement. How long have you been treating?

If you haven't already, it would be helpful for you to read through the "New to Lyme?..Start Here!" thread at the top of the page ...lots of great information in there.

Are you doing enough detoxing?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14; added biaxin Sept. 26/14 Disc. amox,added Ceftin Nov. 20th.; Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin); Abx/herb break Apr-July/15; July-mino; Aug. added Rif; Nov. switched mino to biaxin.

sweetpeaisme
Regular Member


Date Joined Feb 2015
Total Posts : 498
   Posted 3/21/2016 11:55 PM (GMT -6)   
I think mycoplasm is worse than Lyme, especially if you've got the strain thats the genetic engineered one that causes Gulf War syndrome and ALS. I first got mycoplasma P. when I ljved in Singapore where its hot &humid and mycos thrive. T.B. is a mycoplasma. Mycoplasmas are intracellular and they actually team up w/the viruses, making it impossible to eradicate either one....

My Lyme and co's all negative, but I still have mycoplasma, Cpn, and viruses....uhg!

bluelyme
Veteran Member


Date Joined Nov 2015
Total Posts : 4915
   Posted 3/22/2016 10:37 PM (GMT -6)   
Is myco the aame as cpn? I am almost sure i have rhe genically engineered one...sweetpea ..how do you do it?...what can we do ...i am going to get port and see if i can get some iv rocephin..i want my life or some simbalence of it..my legs look like a aids patient or chemo patients...can i stop this..gotta try...

bluelyme
Veteran Member


Date Joined Nov 2015
Total Posts : 4915
   Posted 3/22/2016 11:16 PM (GMT -6)   
http://aac.asm.org/content/45/9/2604.full

This abstract said floroquinalones were the only thing that dented it...that why so many service persons got floxed...

i really think this is what is underlying in chronic illness of all sorts..

KC1215
New Member


Date Joined Mar 2016
Total Posts : 14
   Posted 3/23/2016 6:27 PM (GMT -6)   
My Mycoplasma Pneumonia ABS IGG was 1901. I'm confused about these numbers also. That basically means that I have the bacteria from a past infection right? Will I have that forever? My doctor put me on Clarithamyacin and Plaquenil but didn't really explain it to me.

mystery1
Veteran Member


Date Joined Mar 2013
Total Posts : 514
   Posted 3/23/2016 8:57 PM (GMT -6)   
I am also in the process of getting treatment for this. my understanding is if you are IGG positive it indicates a past infection but it does not necessarily mean you are not active at the time of the test. you can still have an active infection.

I have lyme disease and recently was tested for mycoplasma p. and Igg was positive. my llmd started me on doxcycline and azithromycin and I would not tolerate it. I am off now. I have tried several times to take doxcycline but I have not been able to take it. I have read you must take it to get rid of lyme. now, I need it for mycoplasma and I cannot take it.

has anyone else had this problems and any suggestions?
Registered Nurse in tennessee: sick since high fever in 1994. polydrugged over 20 yrs. Misdiagnosed, bedridden 2012 to 2014.

Lyme disease first diagnosis: may 2013. second diagnosis: oct 2013. Md said I had for 20 years

tx: Iv biweekly ozone, nasal for fungus in sinus, and ear for fungus. supplements young living essential oil protocol with thieves, and immunopower, thyme,cypress, oregano

sweetpeaisme
Regular Member


Date Joined Feb 2015
Total Posts : 498
   Posted 3/23/2016 11:49 PM (GMT -6)   
IvSince June 2014, ive been treating Lyme, mycoplasma, and chlamydophilia, and viruses using herbal tinctures, NAC, supplements, U.V.B.I, AND I.V. dmps to detox heavy metals....i havnt used any pharmaceutical drugs. Im now on a very potent chinese herbal protocol and hope and pray this works , becausd if not then my LAST ditch effort will be pharmaceuticals...

I know, Ive taken a reverse course from most Lymies!

Jackie Moon
Regular Member


Date Joined Apr 2014
Total Posts : 406
   Posted 3/24/2016 2:22 AM (GMT -6)   
I got mycoplasma under control, not gone, with a typical bartonella abx regiment, anti parasitics, and high dose vitamin C ivs. I am crossing my fingers it doesn't pop up again. It is my understanding from the clinic I was at that ALOT of people are walking around with mycoplasma without symptoms. The key is getting it under control. Frankly my Bartonella has been a lot more dug in for the long war. Time to root them out as well!
Babesia duncaii, tularemia, mycoplasma, protomyxzoa, dengue fever - in remission. Bartonella still hanging around.

k07
Veteran Member


Date Joined Sep 2015
Total Posts : 2556
   Posted 3/24/2016 6:05 AM (GMT -6)   
Does anyone know if you can get myco pneum transmitted by ticks? I have gotten mixed answers on the high IGG. Regular doctors and neurologists tell me it is just a past infection, yet integrative and Lyme docs say a high IGG can represent an active infection.

I really felt so much better on azith/plaq. That makes me think that possibly most of my symptoms are myco related. Unfortunately my hearing started getting weird and I was afraid it was a side effect. During the 6 weeks of azith I had nights where none of my limbs would go numb and I wasn't buzzing like a live wire.

Jackie Moon
Regular Member


Date Joined Apr 2014
Total Posts : 406
   Posted 3/24/2016 10:11 PM (GMT -6)   
k07 said...
Does anyone know if you can get myco pneum transmitted by ticks? I have gotten mixed answers on the high IGG. Regular doctors and neurologists tell me it is just a past infection, yet integrative and Lyme docs say a high IGG can represent an active infection.

I really felt so much better on azith/plaq. That makes me think that possibly most of my symptoms are myco related. Unfortunately my hearing started getting weird and I was afraid it was a side effect. During the 6 weeks of azith I had nights where none of my limbs would go numb and I wasn't buzzing like a live wire.


Those are also commonly used abx for Bartonella. So is the other herbal protocol you were on. Bartonella / mycoplasma protocols tend to overlap.
Babesia duncaii, tularemia, mycoplasma, protomyxzoa, dengue fever - in remission. Bartonella still hanging around.

sweetpeaisme
Regular Member


Date Joined Feb 2015
Total Posts : 498
   Posted 3/25/2016 2:19 PM (GMT -6)   
From what Ive read, a HIGH igg is a near future infection vs distant past. It doesnt mean current infection; however, it also does NOT rule out current infection because your immune system may not be creating Igm for a current infection w/one youve had in thenpas. At least, thats the way I understand it.

davidy
Regular Member


Date Joined Feb 2016
Total Posts : 49
   Posted 3/25/2016 4:25 PM (GMT -6)   
Is Mycoplasma fermentans the same as Mycoplasma pneumoniae?

bluelyme
Veteran Member


Date Joined Nov 2015
Total Posts : 4915
   Posted 3/25/2016 5:06 PM (GMT -6)   
Davidy, same genus different species...is why i asked if myco pnumoniae and chlamydia pneumoniae were the same? Its usually for yhe location of sx or the guy who discovered it like burfergdorri, or hale bopp...
@sweetp.....i too skipped a n b went to c and d...

sweetpeaisme
Regular Member


Date Joined Feb 2015
Total Posts : 498
   Posted 3/25/2016 7:50 PM (GMT -6)   
Mycoplasma fermentans and mycoplasma Pneumonia are 2 different strains of the myco. Chlamydophilia p is not a mycoplasma but is another type of bacteria. Chlamydophila pneumonia is a different strain than the chlamydia std...

Each bacteria has more than one strain, some have several. Last September I got a rare salmonella strain called 'Poona'- its found in lizard/reptillian feces. I ate cukes from mexico, grown at a farm thats infested w/geckos. Uhg!

eldonkey
Regular Member


Date Joined Oct 2017
Total Posts : 82
   Posted 12/21/2017 3:58 PM (GMT -6)   
k07 said...
I tested high for mycoplasma too. I believe you have to treat constantly (no pulse) for mycoplasma. The only thing I'm doing consistently is the herbs Isatis, Houttynia, Sida Acuta, NAC, vitamin E. I need to start cordyceps and chinese skullcap soon. I am taking antibiotics on and off for lyme and hopefully they are helping kill the buggers.


How does one test for Mycoplasma?

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 2041
   Posted 12/21/2017 7:00 PM (GMT -6)   
My doctor ordered the test through Labcorp. It tests your IGG and IGM antibodies for mycoplasma. There's also tests for chlamydia pneumonia, EBV, and cytomegalovirus.

eldonkey
Regular Member


Date Joined Oct 2017
Total Posts : 82
   Posted 12/21/2017 8:59 PM (GMT -6)   
Is this the standard igm igg test for Lyme? I took that one and the 41 band came back positive.. per cdc I'm negative, but my unprovoked anxiety, muscle twitching, tired eyes, and randomhwart arythmeas telle otherwise..

yancync
Veteran Member


Date Joined Nov 2015
Total Posts : 551
   Posted 12/22/2017 9:00 AM (GMT -6)   
Myco - in all forms are hard to get rid of when combined with Lyme and company according to J Clinic. DS finally had his first negative myco result last week after 2 years of treatment! He was unable to take abx daily which J Clinic wanted - because the herxing was terrible. He also got reinfected with it after he was improving last winter. It is prevalent in high schools. He is finally using his albuterol inhaler much less as a result. His treatment has been to pulse minocycline for it (but is always on some other abx too) for 2 years now.

So, it can take a long time to get rid of - in fact his LLNP says he has to continue treatment of it for 2-3 more months maybe more if they creep back up. It is the last of his infections to be causing issues.
Parent of teen DS w/ CDC+ Lyme test Nov 2015, late stage Lyme + mycoplasma, bartonella, babesia. Currently treating with antibiotics/anti-malerials, multivitamin, magnesium, Charlotte's Web Advanced CBD oil.

Website I started: ParentsofLymeKids.com aka Lyme Disease 101 for Parents

eldonkey
Regular Member


Date Joined Oct 2017
Total Posts : 82
   Posted 12/22/2017 10:42 AM (GMT -6)   
My understanding is typical Myco manifests in the lungs, is that correct? I don't have any respiratory issues, but tons of neurological ones including sever bouts of anxiety, hot feet, muscle twitching, and weird heart palpitations and arythmeas.. Are there Mycos that specifically target the brain?

yancync
Veteran Member


Date Joined Nov 2015
Total Posts : 551
   Posted 12/22/2017 11:11 AM (GMT -6)   
Well for DS it was in the lungs but also other symptoms. It's my understanding that it can go beyond the lungs but it seems there would be lung symptoms at some point given that's where it starts (I believe).

See this chart for the other ones: www.lyme-symptoms.com/LymeCoinfectionChart.html
Parent of teen DS w/ CDC+ Lyme test Nov 2015, late stage Lyme + mycoplasma, bartonella, babesia. Currently treating with antibiotics/anti-malerials, multivitamin, magnesium, Charlotte's Web Advanced CBD oil.

Website I started: ParentsofLymeKids.com aka Lyme Disease 101 for Parents

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9729
   Posted 12/22/2017 11:22 AM (GMT -6)   
Mycoplasma is not mentioned much on this forum and that is a shame. Dr. Rawls says it is the most common.

/rawlsmd.com/health-articles/mycoplasma-the-most-common-lyme-coinfection

Yancync did your son use NAC for his? I did a mushroom complex.
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