I'm looking for infographics or a short article to share with some family members that are believing the CDC that chronic lyme does not exist or that we are being "duped" since it isn't covered by insurance.
We finally set up a GoFundMe page to help with expenses since we are swimming in debt at this point and can no longer afford appointments. We've received many kind messages and I'm in awe of how many people that we know who have had or have chronic lyme.
But, we've also received a message from my husband's cousin saying we are being duped. She's spoken with some "leading doctors personally" and is sending us and all our family members info from them.
"After many years of working in healthcare — my instincts made me a little but suspicious that you might be being “taken for a ride,” when I hear that the treatments weren’t being covered by insurance.
Why? Because usually only treatments that don’t have a proven safety or efficacy record as the ones that aren’t recognized by insurance."
"My understanding is that both diagnoses – chronic Lyme disease and fibromyalgia – are legitimate. But my public health experience reminds me that a number of unscrupulous practitioners set up Lynn disease mills, gave out the diagnosis freely, and then made money hand-over-fist as they prescribe expensive home therapies.
The kind of questions I would ask about
the chronic Lyme disease diagnosis would include the following: Was there indeed a history of exposure to the Lyme tick? On what testing was the diagnosis made? Two-step testing done?"
I'm really frustrated and just want to at least privately send her some information.
Thanks for any help!
Jul '15 Ignex/CDC Positive
Sick since at least 2011- no tick bite or rash
MTHFR- Homozygous A1298c
Aug '15 Doxy only a week + many supplements, LDN
Oct '15 Alina 4 wks
Dec '15 Biltricide, Ivermectin
Feb '16 Buhner Started
Post Edited (JSlag) : 3/23/2016 8:35:17 AM (GMT-6)