Fascinating post, Kim... for a couple of reasons -
One, I'm sorry you've had a crappy experience w/ the MDs. It's WAY too common and it breaks my heart that these "professionals" are so---bad. That's the only way to describe it. And to tell any patient not to try to inform him/herself is grounds for being fired. Yes, you CAN fire your health care professional, just like you'd fire a plumber if he wasn't fixing the plumbing.
I also have a rant about
"fibromyalgia" that I'll skip--other than to say that fibro is NOT a diagnosis. It is a name for a group of symptoms. MDs who treat it w/ Rx are at least trying to minimize symptoms but they're doing NOTHING to help patients understand the underlying cause, which is definitely something that needs to be addressed. For some of us, that underlying cause is a bacterial infection (lyme) or another disorder that continues to do damage the longer it goes undiagnosed.
But I also love how resourceful you were in finding out what you needed to in order to get the LDN. I am lucky that my LLMD embraced the idea when I brought it to her and I've been on it successfully for 2 yrs now. I've never heard of that website and I think it's great.
You and I and most others take LDN at 4.5g (max dose for our purposes). Naltrexone in high doses (like 50 grams) is used to help opiate addicts with their withdrawals and you explained the effect really well.
ALSO, I've never heard the warning w/ opiates. I NEVER take them as they completely stop my already challenged digestive tract but was forced to in the ER when I had a GI attack from the bartonella. I was in excruciating pain for 12 or so hours and I was going into shock. They prescribed some oxy to take home and when these episodes would pop up every 4-5 wks, I finally started taking the oxy to get through them. Oddly, sometimes oxy worked, sometimes not. But reading your warning is very interesting...
So glad you're having some relief!
Post Edited (Pirouette) : 4/11/2016 2:29:21 PM (GMT-6)