Yes it is frightening! Our DS has Lyme, myco and babesia plus who knows what else. When I took his first LLMD prescript
ion to our local Costco in the mid-Atlantic, they knew exactly who it was from so I asked if they had lots of patients from this dr and they said yes. Truly frightening. There are lots of LLMDs in our larger metro area and this one is quite well-known but is not located in our "city".
Hoping you get some answers soon. From my research it's rare to have just one tick disease although we think our DS had at least Lyme for a few years before a bite that sent him over the cliff 1.5 years ago.
We are experiencing medicine fatigue in our household but then a new crazy symptom arises we have to deal with and he seems willing again to get more fully on board. It's plain exhausting for me but to see our kids figuring out how to cope during these already tough years, it is criminal, heartbreaking, frustrating and lonely.
Parent of 14yo DS with +Lyme test in Nov 2015, treating for co-infections: mycoplasma (strongly +), babesia (clinical diagnosis), mainly with antibiotics/anti-malerials. Supplementing with Vit D, Vit C, Vit B-12, multvitamin, milk thistle, dandelion, nettles, Burbur/Pinella, carnitine.
Website I started: ParentsofLymeKids.com