IHL~I just graze thru here now once & awhile & will eventually catch up & share.
But in the interim, I wanted to say that other about
a year ago I met in person someone who was also diagnosed as one of the worst cases the doc had ever seen. To first look at her, she seemed normal (we knowingly & sadly laughed about
that). She lifted her shirt & there were odd bumps & lumps aplenty; some were found to have grown some sinewy, fibrous stuff within her. She is about
twice your age & the list of symptoms goes on...
I'm trying to be brief. My point is that she was on abx, antiparasite & then...antifungal. She's not "cured" yet, but has come a lonnnggg & healed way. She had the help of Frylabs, too.
So I think you may be on the right path, as you have a good team. Your noggin still works incredibly well to be able to write here.
My battery is dying so I am gonna sign off. Please keep us posted & know that you are not alone & so many here share their love. Hugs, Jo
Oh-another thing I forgot to add that struck me in reading your last post---please, please--re surgery---make sure it is really, really necessary!
Surgeons wanna cut & sometimes it sounds like a good idea--like cut the bad parts out-let's get it over & done with--But--if you can, give it due time & deliberation, as often the meds can cure w/o the cutting. Get 2nd, 3rd opinions & ask those behind the scenes, like at the lab you mentioned. Check with the peanut gallery here, as many are warbuddies who have endured a lot, too. X
Post Edited (happyjo) : 5/22/2016 8:43:38 PM (GMT-6)