Alzheimers - clinical study shows symptoms can be reversed

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Girlie
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Date Joined May 2014
Total Posts : 33798
   Posted 6/20/2016 3:03 PM (GMT -6)   
Just saw this:

health.usnews.com/health-care/articles/2016-06-16/health-highlights-june-16-2016?src=usn_fb


The treatment included diet, exercise, sleep, brain stimulation, drugs, vitamins


Are they finally realizing that it's not all about handing people a few bottles of pharmaceuticals?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14; added biaxin Sept. 26/14 Disc. amox,added Ceftin Nov. 20th.; Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin); Abx/herb break Apr-July/15; July-mino; Aug. added Rif; Nov. switched mino to biaxin.

PeteZa
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Date Joined Jul 2015
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   Posted 6/20/2016 3:06 PM (GMT -6)   
Yeah!!
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Denikeef
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Date Joined Aug 2015
Total Posts : 1092
   Posted 6/20/2016 3:27 PM (GMT -6)   
This is great news. I hope that they will research this.

By now everyone has a sad story of people they know or love with Alzheimers. And all would agree that it is heartbreaking.
Lyme Moderator

Tested Igenix positive for Lyme March 2016.
Lyme symptoms for possibly 40+ years but severe in the last 5 after traumas to the system.
Currently treating with Buhner's Protocol for Lyme and Bart while waiting for a LLMD visit.

Traveler
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Date Joined May 2007
Total Posts : 36310
   Posted 6/20/2016 3:37 PM (GMT -6)   
Here's what I don't understand - this is from that article: "The researchers created personalized multi-faceted treatment programs for each patient, including diet changes, exercise, improved sleep, brain stimulation, drugs and vitamins."

So why the (*Y*^&(&*% wasn't this something that was done previously????? I think it's pretty darned safe to believe that everyone would do better on that kind of treatment!!
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)

Girlie
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Date Joined May 2014
Total Posts : 33798
   Posted 6/20/2016 3:58 PM (GMT -6)   
I know, right, Trav?


It's what a lot of us have been pushing for - for many years. Not just the pharmaceuticals.
And...we were told recently that if we were to give my MIL a med - it might slow down the progression for maybe 6 months to a year...and there are side effects. That's hardly worth it.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14; added biaxin Sept. 26/14 Disc. amox,added Ceftin Nov. 20th.; Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin); Abx/herb break Apr-July/15; July-mino; Aug. added Rif; Nov. switched mino to biaxin.

Denikeef
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Date Joined Aug 2015
Total Posts : 1092
   Posted 6/20/2016 4:13 PM (GMT -6)   
Traveler, you are so right!

What happened to personalized care in everything. I think it is safe to say that tests and drugs are what Drs. rely on today. Not their brains. I wonder if they just don't care or are they limited by government intervention and insurance companies, in which case I wish a lot more of them would have the guts to stand up for what is right.
Lyme Moderator

Tested Igenix positive for Lyme March 2016.
Lyme symptoms for possibly 40+ years but severe in the last 5 after traumas to the system.
Currently treating with Buhner's Protocol for Lyme and Bart while waiting for a LLMD visit.

dacarte3
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Date Joined Feb 2016
Total Posts : 1903
   Posted 6/20/2016 4:41 PM (GMT -6)   
"including diet changes, exercise, improved sleep,"

I don't understand how this is some "revolutionary" treatment plan or concept. This "treatment" plan pretty much improves everything.

If you do this "treatment" plan what it does is it nourishes the cells in the body properly and optimally. If cells are properly nourished then it will fight and/or prevent disease. Cells were design to be healthy but it needs the proper fuel to be healthy. Cells can get "sick", malfunction, etc, when you eat crap everyday, don't move around, and not get proper rest.

If I know this, then of course medical doctors with 8+ years of schooling and years of experience know this. The issue is they are supposed to sell pharmaceuticals and not prevent or heal. They have become glorified drug dealers.

I hope this means even doctors are tired of not healing people like they probably really want to and are now going against the grain. Good for them.

dacarte3
Veteran Member


Date Joined Feb 2016
Total Posts : 1903
   Posted 6/20/2016 4:46 PM (GMT -6)   
Also, I wonder what drugs they are using because there is new solid research linking Alzheimer's and parkinson to bacterial infections.

Also this:

""Imagine having a roof with 36 holes in it, and your drug patched one hole very well -- the drug may have worked, a single 'hole' may have been fixed, but you still have 35 other leaks, and so the underlying process may not be affected much," Bredesen said.

"We think addressing multiple targets within the molecular network may be additive, or even synergistic, and that such a combinatorial approach may enhance drug candidate performance, as well," Bredeson explained."

Are you kidding me? The medical community is JUST figuring this out. The Natropatic community has already known this. Chinese medicine has known this for thousands of years. Of course you need a synergistic holistic approach. *shake my head*

Well, better late than never.

k07
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Date Joined Sep 2015
Total Posts : 2537
   Posted 6/20/2016 5:23 PM (GMT -6)   
Sounds similar to Dr. H's MSIDS model. Finally looking at the body as a whole. He often uses the analogy of 16 nails in the foot, kinda like the wholes in the roof.

multifacetedme
Veteran Member


Date Joined Jan 2016
Total Posts : 1586
   Posted 6/20/2016 5:48 PM (GMT -6)   
Wish they stated what the changes were for each individual and why they chose what they did for each.
Questing Health: Dr. #1 - Western Blot and Elisa from a non-lyme lab nearly 100% rules out lyme, Dr. #2 - Naturopath who is symptom free from lyme - clinical diagnosis of lyme and co-infections, Dr. #3, Infectious Disease Dr., Negative blood work rules out lyme and she said "don't you think now that your aneurysm is repaired these other symptoms will clear up?", Dr. #4, Dr. in Chinese med. LYME!

Pirouette
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Date Joined Mar 2014
Total Posts : 6201
   Posted 6/20/2016 9:37 PM (GMT -6)   
WOW.

smh. LOL...sigh... I need this day to be over.

thx for posting...

-p
Lyme Moderator
Chronic late-stage lyme—likely infected in 2000; Clinically dx Mar'14 w/ Babs, + for Bart, CDC + for Bb. Multiple viruses & GI/immune treated first; started AL-Complex in May, A-Bart & A-Bab in July; Nov'14 IV port installed-started Rocephin; added vancomycin Mar'16
DETOX: Pinella/Burbur/Parsley/Milk thistle/Burdock root; cholestyramine / jap. knotweed L-5-MTHFR LMN-V-II probiotic

MaryClaire
New Member


Date Joined Jan 2016
Total Posts : 5
   Posted 5/15/2018 7:21 PM (GMT -6)   
Has anyone read The End of Alzheimer by Dale Bredesen, MD? I just started reading it and was hoping to find a group of people that are implementing the protocol. The book is great and explains what happens in Alzheimer’s very well and it’s very exciting to have a clear protocol to follow.

He advocates that everyone be evaluated in their forties so that they can been told of their leaks in their roofs early.

astroman
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Date Joined Mar 2014
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   Posted 5/15/2018 10:31 PM (GMT -6)   

magoo2
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Date Joined Mar 2015
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   Posted 5/16/2018 8:44 AM (GMT -6)   
I think this is also the best approach to lyme or other chronic conditions. fix everything you can

DianeB
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Date Joined May 2013
Total Posts : 1346
   Posted 5/18/2018 7:05 AM (GMT -6)   
Thnx for book suggestion MaryClaire
Just requested from public library !
Herniated cervical discs & other disc /spine issues, Arthritis, spurs
Injuries &/or pain to/in shoulders, elbows, wrists, knees, legs, ankles
Fibro / myofascial pain, neuralgia, neuritis

dacarte3
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Date Joined Feb 2016
Total Posts : 1903
   Posted 5/18/2018 2:09 PM (GMT -6)   
Wow, just read my post from 2 years ago. I was 6 months into lyme and obviously angry haha.
Lyme (Igenex) - Positive IFA and WB bands 23, 31, 41
Ehrlichia (Igenex)
Mycoplasma (Labcorp) - Score: 595

ABX Treatment: 03/2016-04/2016; 7/2017-9/2017
Buhner Protocol for Borrelia, Babesia, Bartonella and Mycoplasma (treating everything to be on the safe side): May 2016 - Dec. 2016; 8/2017 - Present

mpost
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Date Joined Feb 2015
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   Posted 5/18/2018 3:05 PM (GMT -6)   
dacarte3 said...
Wow, just read my post from 2 years ago. I was 6 months into lyme and obviously angry haha.


nobody here expects he will be stuck on this forum for years.

We have some energy to spend, some ideas to hold to. When they are gone we find new ideas. When those are gone and we are still on the same forum, still sick, some sort of apathy takes hold.

This is why many people don't even post. I can see them online, some veteran members, reading (footer of forum page). But not posting anything. They are not posting not because they are healthy. They are not posting because they had enough of posting. 5 years of healingwell and 20000 posts is quite enough for anybody...

dacarte3
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Date Joined Feb 2016
Total Posts : 1903
   Posted 5/18/2018 8:27 PM (GMT -6)   
mpost said...
dacarte3 said...
Wow, just read my post from 2 years ago. I was 6 months into lyme and obviously angry haha.


nobody here expects he will be stuck on this forum for years.

We have some energy to spend, some ideas to hold to. When they are gone we find new ideas. When those are gone and we are still on the same forum, still sick, some sort of apathy takes hold.

This is why many people don't even post. I can see them online, some veteran members, reading (footer of forum page). But not posting anything. They are not posting not because they are healthy. They are not posting because they had enough of posting. 5 years of healingwell and 20000 posts is quite enough for anybody...


Makes a lot of sense.

I will never leave this forum, personally. I want to help people on here. I want to learn and research things with other lymies on here.

Even when I have a long symptom free stretch of life I remember to come on here because (for me personally), it feels "wrong" to just come on here when I'm in deep need and then forget about this place when I'm feeling great. When I'm feeling great someone one else might be in a bad stretch and need my/our assistance and support.

I'll be here as long it exists.

And two years from now I'll read this post and laugh because of the paradoxical nature of it. It will be like looking into a mirror, looking into a mirror,....looking into a mirror (infinite regress).
Lyme (Igenex) - Positive IFA and WB bands 23, 31, 41
Ehrlichia (Igenex)
Mycoplasma (Labcorp) - Score: 595

ABX Treatment: 03/2016-04/2016; 7/2017-9/2017
Buhner Protocol for Borrelia, Babesia, Bartonella and Mycoplasma (treating everything to be on the safe side): May 2016 - Dec. 2016; 8/2017 - Present

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 1988
   Posted 5/18/2018 9:14 PM (GMT -6)   
dacarte3 said...
mpost said...
dacarte3 said...
Wow, just read my post from 2 years ago. I was 6 months into lyme and obviously angry haha.


nobody here expects he will be stuck on this forum for years.

We have some energy to spend, some ideas to hold to. When they are gone we find new ideas. When those are gone and we are still on the same forum, still sick, some sort of apathy takes hold.

This is why many people don't even post. I can see them online, some veteran members, reading (footer of forum page). But not posting anything. They are not posting not because they are healthy. They are not posting because they had enough of posting. 5 years of healingwell and 20000 posts is quite enough for anybody...


Makes a lot of sense.

I will never leave this forum, personally. I want to help people on here. I want to learn and research things with other lymies on here.

Even when I have a long symptom free stretch of life I remember to come on here because (for me personally), it feels "wrong" to just come on here when I'm in deep need and then forget about this place when I'm feeling great. When I'm feeling great someone one else might be in a bad stretch and need my/our assistance and support.

I'll be here as long it exists.

And two years from now I'll read this post and laugh because of the paradoxical nature of it. It will be like looking into a mirror, looking into a mirror,....looking into a mirror (infinite regress).


I've been feeling a lot of things lately. This seems like the right place to voice some of those feelings.

Mpost:
In response to what you said, I'm sorry. I'm sorry for the discouragement, lack of resolution, and ongoing trials you're facing. I'm glad you said what you did. I wondered why you seem angry and harsh in some of your posts. I understand better now, and I'm truly sorry.

In case some of those burned out folks see this, I'm going to tell how I feel. I've noticed over the past few months that quite a few long time members have dropped off. Some of them are the more science-minded folks.

Personally, I find that very discouraging. I joined this forum because I felt the members here were well-informed, knowledgeable, and encouraging. I need the smarter, more scientific folks. I depend on them to provide what I and others lack and to help keep us from spinning wheels and chasing fruitless rabbit trails. Without them, I feel defenseless in some way.

Furthermore, I'm concerned about the countless posts by multiple members that sound like they've joined other groups that I personally wouldn't want to be a part of. The tone is angry, vengeful, arrogant, superior, and talking down to other people. They profess "science" and "justice," but IMO it's theories and ideas tauted as absolute fact. Their so-called justice sounds more like militant vengeance to me. Beware of the company you keep, for they will surely influence your way of thinking and your attitudes. Don't fall into a snare.

dacarte:
Thank you for such a heartfelt post. I appreciate you. That's amazing you still feel that way after 2 years. I don't know how I will feel about all this 2 years from now, but I hope I will follow your lead. Thank you again.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33798
   Posted 5/18/2018 10:38 PM (GMT -6)   
WBF - Members come and go all the time...this isn’t anything new
I’ve been here since pre diagnosis (going on 4 years now.

But most people don’t stick around that long.
If I wasn’t a Mod, Id definitely be on less.

Some of the people you may be thinking of have improved and are living life.

One person I miss is bluelyme - but I am happy that he is doing so much better now and able to work.

ChickenArise used to post a lot, too - I think he also much better..he shared a lot of his knowledge with us
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Post Edited (Girlie) : 5/18/2018 11:30:30 PM (GMT-6)

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