Posted 7/7/2016 7:25 AM (GMT -7)
So, just want to give a progress report, especially for all those new and suffering and don't know when this friggin' nightmare might end.
I started treatment in October 2015. I am holding about 95%. I'm back to normal life, playing tennis, even sleeping 6-7 hours a night, working again (I'm a writer) and have great brain function and muscle strength back. I am still dogged by random ringing ears, internal vibrating, hot flashes, foot pain, some joint pain in hands and elbows, some minor muscle spasms, some numbness and redness in hands, some burning in the toes. They don't come all at once, maybe one or two a day, so nothing is keeping me from doing regular stuff. In fact, it's probably at a level that if I mentioned it to someone, they would say, oh, that's aging. Also, some of it could be related to menopause. I just don't know.
I'm still on minocycline and tindomax, pulse but don't really feel much after taking, maybe some minor internal vibrating and ringing ears. This is HUGE progress in this department. I used to herx horribly each time. Maybe I've tackled some biofilms!
I've got a serious methylation problem (genes done, etc), so I have to keep up with all those supplements. I tried a vitamin holiday one day and felt like crap. Most important has been NAC, B-multi, Magnesium, Trace Minerals, EPA, Vit D.
I'm still on some Buhner's herbs for Bart/Babs, but after the recent posts about them possibly interacting with the antibiotics, I am taking them only once a day 12 hours apart from the meds.
I'm in serious detox mode. I feel like the remaining 5% is biotin illness. I read on Lady of Lyme about biotoxins being trapped and forever reabsorbing if you don't bind them properly. These biotoxins, by the way, will cause the same herx symptoms as the original infection, which is why you feel like you might still be infected. She goes to great lengths to discuss cholestyramine and the need to add a binder after taking it. I had always wondered why I herxed on Cholestyramine. I quit it cuz it was awful.
Anyway, in an attempt to rid myself of the remaining toxins, I've restarted the cholestyramine and am doing it at 10am 3 pm and 8 pm. Then 30 mins later, following with either Charcoal/MCP or Bentonite Clay and MCP [Modified Citrus Pectin]. I'm also doing 2 "sauna" walks a day (its a 100 degrees here) so hopefully I can give my liver a break. It seems to be working. If I do feel a herx coming, I just pop (3) MCP, hoping to bind whatever I can...
So, I'm feeling pretty good, but still feel tied to protocols and treatments. My meditation helps with the feelings of hopelessness and frustration that pop up occasionally, as well as the anxiety if I think I will be doing all this stuff forever....
I hope this information is helpful to someone. As always, glad to have this board and the caring folks here to share this journey with.
Here's the article:
Oct 2015 Diagnosed with Lyme, Candida, Mold and Toxic Metals
Started Doxy 100mg 2x day and DesBio System in Nov 2015
Nov 2015 Diagnosed with Bartonella, Bacillus, Histoposmosis, Aspergillus, Mucor, Trichophyton, and Mycotoxin. Using Homeopathic solutions/herbs in conjunction with Antibiotics
Jan 2016 Minocycline pulse plus Nystatin,
Feb 2016 LDI (Mold), Added Tinidazole,Flucozinol