Declaring a moratorium

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Pirouette
Veteran Member


Date Joined Mar 2014
Total Posts : 6201
   Posted 8/4/2016 2:33 PM (GMT -7)   
I declare a moratorium on a scientific and medical phrase that does not serve us, the patient.

NONE of us has failed anything - we haven't failed diagnosis, we haven't failed antibiotics, we haven't failed treatment of any kind.

THEY have failed US.

From this point forward, I'm reversing this phrase, accordingly. I didn't fail treatment, the prescribed treatment FAILED ME.

-p

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9211
   Posted 8/4/2016 2:34 PM (GMT -7)   
I like it!
Lyme Moderator

1000Daisies
Veteran Member


Date Joined Apr 2016
Total Posts : 2059
   Posted 8/4/2016 2:38 PM (GMT -7)   
Perfect! :)
Kid#1: Extremely sick for several years, very difficult to treat, improved now but not fully well
Kid#2: Very sick now despite being treated for years
Kid#3: Doing very well (ironically had the least and shortest treatment)
Me: Adv Labs positive 2016 (suspected I passed to my kids) - not as sick as others, mostly battling fatigue and yeast issues

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35859
   Posted 8/4/2016 2:40 PM (GMT -7)   
You got it!!

Abx treatment failed me back in 2007.

How's that??? smilewinkgrin
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)

julymorning
Veteran Member


Date Joined Jul 2015
Total Posts : 3808
   Posted 8/4/2016 3:04 PM (GMT -7)   
Except for one thing, even if it only brought on herxes, with no cure, at least it confirmed there are bugs in us, if not specific bugs.
Fibro diagnosed '85 Lyme positive '92 untreated,Osteoporosis, COPD, Hypertension, degen. disc disease, RMSF pos. Spring 2015, Cong. Heart Failure, osteoarthritis. Treating PHY. an Internist, LLMD out of the question. Used Doxy, Zithro and Flagyl since June '15, self pulsed.

MA10
Regular Member


Date Joined Oct 2012
Total Posts : 380
   Posted 8/4/2016 3:22 PM (GMT -7)   
My favorite quote relating to this:

"Rocket science is tough, and rockets have a way of failing."-- Sally Ride

Lyme treatment is tough, and Lyme treatments have a way of failing. BOOM.
I have Hashimotos Thyroiditis and all that entails. I have chronic Lyme disease and all that entails. I'm currently taking Nature-Throid, Remeron, Tofranil, LDN, Propanolol and Byron White A-L formula. My biggest symptoms are depression, anxiety, memory loss, joint pain, GI symptoms, tachycardia, sweats, and fatigue. I'd love to help you in any way I can.

Krimpet 🍔
Veteran Member


Date Joined Apr 2016
Total Posts : 3274
   Posted 8/4/2016 3:35 PM (GMT -7)   
Very well said!!!!! I love it!
Lyme Moderator

August words of encouragement:
"F-E-A-R has two meanings:"
'Forget Everything and Run' or
'Face Everything and Rise'

The choice is yours.

bluelyme
Veteran Member


Date Joined Nov 2015
Total Posts : 4441
   Posted 8/4/2016 3:37 PM (GMT -7)   
Epic ...thanks for perspective ...i got invited to be on hospital advisory board cuz of my frequent flyer miles and i was thinking how best to put that they failed epically, 33 specialists later ..how to put it so it doesnt hurt there egos?

blueberrymuffin
Veteran Member


Date Joined Mar 2016
Total Posts : 1467
   Posted 8/5/2016 4:44 PM (GMT -7)   
This is so true. Thanks for sharing.

Pirouette
Veteran Member


Date Joined Mar 2014
Total Posts : 6201
   Posted 8/5/2016 5:07 PM (GMT -7)   
everyone -
Glad you're all on board!

bluelyme -
Anxious to hear how your experience on the Board goes!

-p
Lyme Moderator
Chronic late-stage lyme—likely infected in 2000; Clinically dx Mar'14 w/ Babs, + for Bart, CDC + for Bb. Multiple viruses & GI/immune treated first; started AL-Complex in May, A-Bart & A-Bab in July; Nov'14 IV port installed-started Rocephin; added vancomycin Mar'16
DETOX: Pinella/Burbur/Parsley/Milk thistle/Burdock root; cholestyramine / jap. knotweed L-5-MTHFR LMN-V-II probiotic
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