I LOVE visiting MA. I used to live in NYC and worked and vacationed all throughout New England. There is nothing like it. Oddly, while I spent weeks on Nantucket, Martha's Vineyard, Wellfleet, in/around Cambridge and Boston, often out in
open fields looking at potential construction sites, it was SALEM where I was likely infected.
I was there for a week for work and arrived early on Sunday afternoon so I could explore the historic sites. After 2 hrs walking the streets of touristy Salem, I was back in my hotel room and OUT. All of a sudden I developed a hortible flu (I never get the flu and haven't since), that evening was a blur, the next day a colleague had to cover for me - I couldn't function. This was 18 yrs ago. It all went very slowly downhill from there.
We all know how hard it is to relearn shat we have been taught about
Lyme. Each one of us has had to. Oddly, it's in the most endemic areas where people have had to relearn the most. There was a very powerful and effective "education" campaign a decade ago that stunted progress and true education, and now we have a serious epidemic.
The infection statistics you are referencing are likely based on surveillance criteria the CDC developed to track trends in infection rates - this is the CDC's primary function. But it is the worst and least accurate tool to use for identifying the presence of Lyme in populations.
The Council of State and Territorial Epidemiologists (CSTE) is the organization responsible for providing CDC disease surveillance guidance. For the surveillance criteria to be Functional for the purposes of identifying a trend (NOT for quantifying new cases) it must be extremely accurate, and therefore the criteria to qualify "new cases" is exceptionally strict so that it doesn't accidentally include some other infection.
This is all well and good and business as usual. Except that the CDC uses this surveillance criteria to determine "new cases" every year, when it's actually capturing only a fraction of them. So few, in fact, the CDC had to revise its estimate back in 2013 TENFOLD. Unfortunately, this still misses many many cases because the criteria is developed from this early, narrow definition of Lyme that have to meet several unrealistic criteria.
Additionally, the surveillance criteria depends upon proper reporting by State Depts of Health, who rely on proper reporting by physicians. But the reporting process is so cumbersome that most don't do it. Studies have shown that in some states, 70% or more of new Lyme cases go are unreported EVERY YEAR.
As was shared during a recent Lyme innovation conference to help address the current epidemic, according to Catherine Brown, DVM State Epidemiologist at the Massachussetts Dept of Public Health, 35% of new Lyme cases reported to DPH went unconfirmed(and therefore unreported to CDC). And again, those are only cases that qualify according to surveillance criteria (in order to be deemed Lyme and require reporting), which even the CDC has warned should not be used to diagnose, but the IDSA ignores this warning and the CDC ignores that the IDSA ignores it.
On top of that, the IDSA has insisted on using the CDC's surveillance criteria literally, despite the CDC's warnings, to force incredibly unreliable testing and treatment guidelines upon the public for decades now. The former CT Atty General, Blumenthal filed charges against the IDSA Board to bring to light many financial conflicts of interests held by he board and there have been numerous hearings held with Congress to try to resolve these issues.
This is why many states have slowly forced legislation to at least protect clinicians from being persecuted and sued for not following IDSA Guidelines and to require insurance coverage for adequate treatment. MA just passed such legislation - surely you noticed the debate.
Now is the time, while you're finishing up this last round, to explore a Lyme specialist who has a broader understanding of how Lyme manifests and can help guide you toward more effective treatment. A single antibiotic is likely not going to be effective in he long run and you could also be on a broader protocol to help your body process the antibiotics more safely and comprehensively, reduce inflammation and prevent further infection.
You might be interested in science journalist Pamela Weintraub's book Cure Unknown that not only chronicles the Lyme story and it's science evolved, how it developed into an epidemic and she also weaves through it her personal saga of moving her family to Chappaqua, NY where her entire family was struck down w/Lyme and how difficult it was to wade through the mess simply to get properly diagnosed and treated. Took years from her kids' lives. Eventually - she and her husband did what you're suggesting - moved to a downtown STamford, CT high rise and then to Brooklyn. Great book.
Post Edited (Pirouette) : 8/9/2016 3:46:06 PM (GMT-6)