Posted 8/17/2016 1:28 PM (GMT -6)
I know that this is long, but please bear with me and share ANY knowledge or opinions, all is welcome! Maybe source some articles you know of if you find they would be of benefit to me...
A couple of weeks ago I came across Chronic Lyme on the internet. I had come across Lyme Disease many times before while searching the internet tirelessly for what could be wrong with me, but every time I came across it on a website the website would always list flu-like symptoms so I quickly dismissed it. So about two or three weeks ago I came across it again, and once again flu-like symptoms were the only symptoms listed. For some reason I had the urge to google CHRONIC Lyme Disease, I had no idea that Chronic Lyme Disease existed, I just had a feeling. I came across a website that listed hundreds and hundreds of symptoms and I discovered that I have nearly every single symptom of Neuro Lyme among this endless list!
I got into a naturopath LLMD as soon as I possibly could, she did bio meridian testing (which I'm not sure I believe the validity of) and she diagnosed me with Lyme and one co infection (Bartonella Henselae). She suggested on holding off on the iGenex testing since apparently the stronger your immune system is, the stronger your results will be. I also went to see a new GP that week and he sent me for more than 20 blood tests including the standard testing for Lyme in Canada (Other tests included Syphilis and Mono, CBC, urinalysis, hemoglobin A1c, creatinine, electrolytes, lipid profile, alanine, albumin, alkaline phosphate, c-reactive protein, creatine kinase, gamma glutamyl transferase, iron, lipase, protein electrophoresis, protien, IgG, IgA, IgM, rheumatoid factor, LH,TH, anti-hepatitis A virus IgG, hepatitis B surface antibody).
I went to go see him today for my results and everything was normal, and some things were better than normal. One exception was that my IgA came back as 0.33 and is apparently supposed to be a 0.6-1, but he shrugged it off as normal or as a response to a cold, which I have not had recently anyway (I actually haven't been sick with a cold or flu since I went on a sugar free diet).
This left me extremely upset and confused... I realize that there are many false negatives to the standard like testing in Canada, or maybe I have a co infection instead of Lyme. But this doctor told me on my first appointment that the testing for Lyme disease in Canada had actually been updated in January and was now apparently the most accurate test you could get.
I am almost 100% convinced that I have Lyme because nothing has ever fit so perfectly with what I struggle with. When I went to go see that naturopath LLMD a couple of weeks ago she set me up with a treatment plan, I have been taking the Black Walnut formula that she had given me and I have been having Herx reactions when I take it, (anxiety, paranoia, random pains in different parts of the body, extreme fatigue, migraines, etc.) the other day the Herx was so bad that we had to run out to the store to get activated charcoal because the detox methods I have been doing just aren't doing the trick. After I take the charcoal my symptoms slowly start to get better and if not nearly dissipate.
However, now I am doubting myself... How could I have Lyme Disease if my body is so perfectly healthy? But then i go on to think how is my MIND so unhealthy if I have a perfectly healthy body? I believe that if you have a healthy body then therefore you should have a healthy mind. I eat sugar free, dairy free, grain free, soy free, organic, hormone free, antibiotic free, I drink over 3L of water a day, and the list goes on. I eat this way because of how bad my mental health has gotten, I adhere to this diet so well because I am scared to terrified to eat anything that could make it worse.
I am at a point, after 5 years of dealing with debilitating anxiety and depression, worsening cognitive function (confusion, forgetfulness, brain fog, slow thinking and problem solving, bad spacial awareness and depth perception, horrible sense of direction, bad reflex, struggle to form sentences verbally, and more) among many other things, that I refuse to believe the doctors anymore who want to push me on psych meds (which make me worse and which I am extremely sensitive to).
I'm thinking that maybe my immune system is so compromised that it just isn't producing antibodies anymore? But in that case wouldn't that mean that I would be sick all of the time? Or maybe the Lyme is just in my CNS and not my PNS? Or maybe I have had this disease for so long that my body found ways to work despite it? I am so utterly confused and frustrated...