I have treated at length Lyme and Bart.
I have had some symptom resolution, but am not totally well yet.
I've been thinking that perhaps babesia is holding me back.
just a summary of pertinent information:
A year ago I requested to go on Minocycline as I had some 'head' issues and i wanted something for good CNS penetration.
After a month, I added Rifampin for Bart.
The mino did help my head issues...and then after about
4 months, I switched from mino to Biaxin. This was after seeing a presentation by Dr. M. (bart guru) - who uses Biaxin and Rif for bartonella.
That was in November last year.
I had two really good days - Dec. 25/26
Then, over the next few months, I tried a few things - including CBD oil but I didn't seem to be making progress.
May I started doing rounds of Artemisinin - thinking maybe Babs is the 'missing piece' to the puzzle. I also started a pulsed approach of my antibioitics- M/W/F two abx, Th/F a different one. Sat/Sun off. Two weeks of this, then one week off.
During this time...my 'shivers' and sweats started to get worse.
My first round of Artemisinin - I herxed in the middle of the night - woke up very emotional/crying with terrible shivering.
I have been shivering all summer...even during the hot spell we had. The shivers weren't this bad last summer.
Recently I started to get the 'head ' issues back. Pressure behind my eyes...plus something new - pain on my forehead - left side -eyebrow area. Don't know if that can be considered a headache or not...it's not a dull pain.
So, three weeks ago, I added Tinidazole back in - pulsing on Thursday/Friday.
One week ago, I switched the biaxin to minocycline.
Yesterday evening I had serious burning nerve pain - body wide. I always have nerve pain, but this was different - more intense.
Went to bed...woke up this morning and did not wake up with the typical shiver and sweating episode along anxiety.
I also dreamt last night.
So, was the severe burning nerve pain last night a herx from the minocycline?
And, is that why I felt better this morning...the mino is doing 'something'?
It makes me wonder if maybe my suspicion that I have Babesia is incorrect.
Is it perhaps "just" lyme - and I have a lot of CNS driven symptoms - which the mino is targeting.
I know...it's a messy one to sort out.
I appreciate your opinions.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14; added biaxin Sept. 26/14 Disc. amox,added Ceftin Nov. 20th.; Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin); Abx/herb break Apr-July/15; July-mino; Aug. added Rif; Nov. switched mino to biaxin.
Post Edited (Girlie) : 9/1/2016 9:41:24 AM (GMT-6)