Posted 9/11/2016 10:03 AM (GMT -7)
Yes, I am thinking lyme treatment should come with a money back guarantee!
My friend said that her first appointment - APPOINTMENT ONLY was $5000. Testing was additional. She sticks with him because he got her well first round. He also got her son well. Son remains well. Incredible to me is that he charged her this amount when she came back to him after relapse. She had started treatment with her GP and a lyme naturopath but was not getting anywhere, after a year and a half was worse than when she started, so decided that she would bite the bullet and needed to spend this to get back to her original doctor who helped her to get well. I believe that she no longer has to crawl up the stairs. Feels like a corner is turning with Rocephin shots and autonomic nervous system drugs.
Sadly, and I am sure that we all know this all too well, I honestly feel that the money that is spent on lyme is NOTHING compared to the personal cost....I am so frustrated with the money that we have to spend for treatment and how the reimbursement has forced the lyme docs out of network. 5K seems like so much money. On the plus side, My friend says that her doctor never cuts her off and didn't charge her for all the time he spent on her disability denial paperwork.. He is wants to be compensated for his time,,,,,(as I suppose we all should be in our work) IT just seems excessive.
SPOILER alert :(insurance rant coming!)
I am stunned at how insurance is pretty much like not having insurance these days. There are so many politicians who are happy that more people are insured these days but having insurance really means very little since it feels to me like they cover LESS and LESS.
The policy that we have this year is horrible. We have to put out 18K before they start paying their 80% of "in network only " covered expenses (and we all know that they like to pick and choose what they cover even in network ) ... (This is supposedly a good policy through my husband's work and it is the only one that we can buy) While theoretically, the affordable health care has nothing to do with our private insurance, it became like this at the same time as OBAMACARE started so I wonder how the insurance companies get away with this. . We are just a few months into lyme we have spent thousands and thousands out of pocket..... cannot sustain this year after year. Before the affordable health care act, we had a policy that paid out of network bills at 90% (and yes, I did not know how good we had it)
Insurance kind of feels like we don't have insurance. Strangely I am worried about universal healthcare because I feel like for cost savings, they will just continue to cover less and less. Do they really cover everything in EUROPE or if you get something tricky and poorly understood (like lyme) or need other testing that then becomes out of pocket? My friend in ENGLAND says that she comes here for lyme because no one does anything for it there. Her mother pays out of pocket for a cardiologist because she cannot wait to see the one that she needs.... Are you in trouble over there if you have something out of the box too?
Sorry for the insurance rant ,,, I just dealt with them yesterday,,,!
Alternative treatments add up too.....
Robby: To get well the first round, I did everything that I knew to do. I did three years of abx (I think,over time, 14 of them but not huge combos - usually one or two at a time..,y liver was sensitive,,,,) also three months of Babesia treatment (without finding anything that I treated with that I felt was a game changer)
I tried many many many alternatives during the abx years and then for the next six years alternatives is all that I did.
I just gave up abx after three years and didn't get worse, so I just stayed off them,,,, I kept up with alternative treatments.... (Some nutty and crazy some conventional RAW FOODS, OZONE, CHIRO, HYDROGEN PEROXIDE, SUPPLEMENTS, MEDICAL INTUITIVE -who was actually really helpful) ) I kept up with regular acupuncture, ate a low glycemic gluten free diet, I didn't drink, exercised, herbs,supplements, functional med work ups and many other things along the way. I suspect that I was more tired than other people" and had some weird things that I am sure that other people never experienced but was actively living life and attributed them to having HAD the insult of lyme. I was pretty well and most periods did not think much about lyme......
The good years, I played a lot of ice hockey (with girls that were twenty years younger than I was). I skied, did Pilates, traveled....I napped! My life threw some pretty stressful events - death of both wonderful parents (one by medical malpractice), drug addicted child, tricky marriage, 3 surgeries, parathyroid tumor, 3 house sales, car accident with terrible law suit, family member suicide, broken shoulder, back injured by physical therapist, a second meniscus injury that still needs, surgery, dog being hit by a car :(, husband contracting lyme, So yes stress (a tad!) played into my life :) There were also many good things....Many! It was however the month that I said,,, WOW, I could get used to this....no big events happening ( After all that happening, I had always strived for BORING!)) Nothing that I had to deal with that I relapsed... GO FIGURE! I am pretty sure a relapse but can't say 100% .
I am not finding much Of the grit that I know I need to deal with this this round. I had hoped that I would be one (month) and done! (Another friend who relapsed did that!) Maybe I am just tired out and have not found my spunk,,,,,I also experience horrible depression when treated. scary...
Summertime flu in '91 Diagnosed July 98
3 years, eleven abx, minimal improvement by 2001
2001 off abc, many alternatives, good care, and lived life,
played hockey and skied on weekends, raised kids, maintained huge gardens, lived life, didn't think about lyme
June 2016 relapse hell.