I thought someone might be interested in my son's progress since LLND appt Aug 3.
He had joint pain, brain fog, extreme fatigue, low BP, dizziness, Low appetite (lost 20 pounds in two months) high anxiety/ocd, insomnia, random nerve tingling, bad stomach upset.
Dr. Started him on doxycycline 100 mg in am, and 200 mg in pm with azuthromycin 500 mg twice/week. Also some supplements.
He also started beyond balance bab 2 midway through the month.
Well after 3 days, it was really hellish. His joint pain was extreme -maybe 8-9/10. He didn't leave the house for the month of August because he couldn't walk. At one point I was rolling him around the house on a computer chair. I was secretly planning on getting him a wheelchair -( he's 15 and I knew he would be devastated since the year before he was one of the fastest kids in our district and played volleyball competitively. )
He couldn't sleep, the pain kept him up all night. Some days sleeping at 5 am just from exhaustion.
I tried lots of things for detox. Epsom salts baths, lemon water, quercitin, Benadryl.
Things eased up maybe a bit, we stopped the am doxy because he wasn't getting up until 3 anyway so everything was messed up.
I got a little scared, because I didn't think I could take him to the dr. Because they don't believe in lyme. Someone told me to be careful because they might take him away if they think you are pushing medication on him. I was second guessing everything. Maybe he doesn't even have lyme.
But I emailed the LLND and he said this is not uncommon.
So then, the last day of August the hell stopped. Joint pain down to 3/10 in his knees! He did have a sore right eye and cheek for two days tho.
And yesterday and today no pain at all!!
He went to the gym yesterday, no exerting, just stretching and moving. He went to a homeschooling drop in for one hour! He did last years math for 1/2 hour!
I can't tell you how happy I am! I have been praying and hoping for him to have just one day with no pain and now we have it.
He still has extreme fatigue and his brain hurt with brain fog after 1/2 math but he was outside in the sun, walking, talking to other kids!
I just want everyone to hang in there and believe we can all have happy healthier days!
Hugs to all
Post Edited (Lymiemomster) : 9/13/2016 9:21:31 PM (GMT-6)