In the moment:
pain flares (whole body)
GERD & digestive issues (gut pain)
shortness of breath when I climb stairs/hills and cramping calves
occasional flare of a symptom that used to irritate me
wonky temperature regulation
dry skin (have had my whole life) and hair loss
In January of 2015 - goodness - how far I've come!
some symptoms more on right side
Tremor -mild shaking in my left hand, sometimes my right
Extreme Fatigue – I run out of energy around 5:30 pm. In bed by 8:00 – try and stay up until 9:00.
Epileptic type body jerks
Sleep difficulties: sometimes trouble falling asleep, staying asleep, pain has been so bad at times it keeps me awake.
Extreme thirst -I have never been one to drink much H20, extremely thirsty, can’t seem to get enough liquid. Dry lips, dry inside of my lips.
Dry cough that seems to come and go, and isn’t attached to any sort of cold or anything.
Losing strength – trying my best to keep up exercises, losing strength and stamina. Not able to dance.
Winded easily – I began to notice this a year or two ago actually. Difficult to walk up hills/stairs, get winded really easily. Sometimes it feels like I am not able to take as full of a breath as I used to be able to.
Difficulty regulating temperature: Get really cold, can’t seem to get warm, get in bed to warm up. My temperature has been running 96.8-97.4 when I take it. Also get hot and itchy and sweaty that feels really different than the hot flashes I would get while going through menopause. I looked in the mirror the other day to see if my face is flushed when I am hot, and noted it is hot.
Skin -itchy on and off, different parts of body,dry, scaly skin
Dry inside of my mouth
Have noticed these tiny red dots that appear on my chest, belly.
Hair loss: head, under arm pits, legs, pubic hair
Very dry hair
Muscle spasms and tightness that goes around different parts of the body: right thigh underneath, left thigh on top and side, right calf muscle, left forearm, right forearm.
Joints: comes and goes – bilateral shoulder pain, pain in elbows, knees, fingers, puffy knees, wrist pain – both wrists.
Spine -Pain and cricks in mid-back, neck area, low back pain
Flank pain- for a number of years actually, pain in my upper right abdomen that wraps around the back, and under the ribs.
Feet – Soles of feet began to ache on and off now and then.
Balance- vertigo, dizziness, lightheaded, woozy – comes and goes. Fell flat on my face 2x this fall. When I was getting up from getting something from the fridge last week I had to hang on to the counter because I thought I was going to black out.
Cognitive Issues: I had four episodes of suddenly not being able to find words, when I spoke, I noticed my speech was slurred, my neck was tight, and the headache intensified. The slurring of the speech seemed to last for a day, then would clear up. I have difficulty with aphasia. Although I feel like there is some improvement, I have noticed difficulty processing information, and not being able to comprehend things as well. My short term memory is really poor. I also have thought I was writing one thing and when proving, see I substituted a different word – both typing and long hand.
Swallowing – I experience difficulty swallowing on and off
Jaw/Teeth pain – on and off – seems to be improving – gets more intense when headache is intense
Ear pain/pressure – on and off. More intense with right ear
Sensitive to sound – can’t stand the sound of my spouses piano playing.
Eyes – increased floaters, pain behind eyes, more strongly behind right eye.
Eyes sensitive to light
auditory hallucinations, hear blipping sound
anxiety and panic and my moods seem a bit like a roller coaster
depression and low mood
flashing lights in eye
Itching – itchy around joints. I observed an uptick when I added Cat’s Claw – especially my knees – hot and itchy. The itching around the knees has cleared. Then it moved to my elbows.
Crawling sensation- feels like something is crawling on my scalp, itchy.
Managing Stress -I can’t manage the type of activity I used to – I get irritated really easily, frustrated easily, and don’t have much patience, also tend to get a little weepy (which is REALLY unlike me). Both my Psychiatrist and therapist say I am not depressed.
Brain Power -Don’t have the ability to process information like I used to. Can only do so much admin work. Seems like mental exercise at times increases the headache.
Mild Bells Palsy -I noticed this when reviewing videotapes from rehearsal and I was demonstrating a new dance technique I have been developing and in a really relaxed state, my right side droops. My husband also has this! His is more pronounced.
Right Breast Pain-Comes and goes. Last week it felt as bad as the shingles pain I had when I had shingles. The pain seems to wrap into the ribs. Also felt some in left breast.
Tinea Versicolor -I have had this on and off over the years.
Poor sense of smell
Post Edited (multifacetedme) : 10/17/2016 8:24:04 AM (GMT-6)