What helped you the most with bartonella anxiety and panic attacks?

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jennydancingfish
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   Posted 10/18/2016 8:12 PM (GMT -6)   
Need to get them under control so I can see my llmd. I have limited funds so I cant buy everything. Ive tried a bunch of antidepressants, pasque flower, theanine, valerian root, gaba. All did absolutely nothing. Thanks guys.

My bart depression and anxety are just sliding out of control. My herxing is out of control no matter what i take and how much i try to detox. My llmd is out of town for three weeks and the only other one doesnt have availability until november in my state. I dont know whats wrong with my body. People are telling me maybe its mold or mthfr but i do not have the money to test for mold or fix mold or for 23andme or for b12 supplements.

Post Edited (jennydancingfish) : 10/18/2016 8:22:51 PM (GMT-6)


PeteZa
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   Posted 10/18/2016 8:47 PM (GMT -6)   
Jenny I had anxiety and depression at the same time. I finally went and talked to a doctor.

I came home with a paper for a prescription and it sat on my desk for months. I finally threw it away months down the road.

What really helped me was doing something. I had no energy and I was always taking naps but I would put one thing on my "to do" list and try and do it.

It made the day go by faster and it actually was so hard to concentrate on doing 1 simple task that I was so busy concentrating, I would forget about a lot of other "stuff."

I hope that made sense. Keeping busy but not overdoing it. That really helped me.

jennydancingfish
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   Posted 10/18/2016 9:30 PM (GMT -6)   
Ok peteza I will try to do this.
Currently with LLMD planning on doing modified Cowden Protocol and Buhner
Switched to this route after very bad herxing on rifampin
Diagnosed with Bartonella and Lyme. Twin has Bartonella and Mycoplasma and Lyme.
Twin improving on rifampin, zithromax, and tinidazole. Anger, rage, explosivity, emotional volatility, head and bone squeezing, sense of overheatedness all improved.

PeteZa
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Date Joined Jul 2015
Total Posts : 9729
   Posted 10/18/2016 9:46 PM (GMT -6)   
Jenny, I hope it is helpful.

Another thing I did was call my Mom, sisters and girlfriends. We would just sit and chat and it would distract me with the laughter we had.

Lymiemomster
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Date Joined Aug 2016
Total Posts : 192
   Posted 10/18/2016 9:49 PM (GMT -6)   
Hi jenny!

I am so sorry you are suffering!

My son had a massive panic/anxiety attack last night after I gave him 1/2 300 mg capsule of rifampin -he just can't do it. He finally fell asleep 7:30 this morning.

I am reading Dr. Marty Ross, I think I can mention his name, because he has his treat lyme website. He has weekly webinars where you can send in questions on Wednesday's -you have to sign up first though. I think he has old webinars on you tube.

Anyhoo, he says to reduce inflammation. With curcumin and glutathione. Then he is mentioning to reduce anxiety he prescribes very small doses of 5 mg 3/day of lithium orotate. i just saw you don't need a prescription for it and it has pretty high reviews.

Big hug!

Post Edited (Lymiemomster) : 10/19/2016 12:29:51 AM (GMT-6)


jennysetter
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Date Joined Mar 2015
Total Posts : 228
   Posted 10/18/2016 10:46 PM (GMT -6)   
At one point I took Xanax at night before going to bed. My anxiety was ramped up so badly that I wasn't able to sleep which had a terrible effect on me during the day. I've always been a "sleeper" my whole life and 8-10 hours has been my norm. With Lyme I found 10-14 hours was really ideal if I could and not sleeping enough almost pushed me over the edge. The Xanax was good to get me over the hump and kind of "re-set" my patterns. If you have health insurance, you should be able to get this pretty easily through your doctor. I'm a lightweight so would never have been able to take it during the day, but it helped me sleep at night nicely, which in turn scaled down my day time anxiety.

Hope that helps!

Jenny

bluelyme
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Date Joined Nov 2015
Total Posts : 4724
   Posted 10/18/2016 11:58 PM (GMT -6)   
Jenny ..get a bottle of thieves and lavender essential oils ...put a spot on on your collar in the moldy haus ...and on your wrist when it gets to be too much ...biotics has the lith orate natural ..and you can buy holy basil at health food store ...also pacific biologic has a formula called calm n clear it helped me when i was was having muscle wasting and dying symptoms
if you cant get zanax ..and benzos buid a dependence but help the shakes ...i really suggest the holy basil ...i have even forgot the zanniea in a crowd of 10000 and i was ok driving .......can you handle zith?...it may pause the bart ...a bart and riffy with bee venom is working for me ...i get to meet ellie lobel this weekend and will come back with loads of info on bvt its cheap and not abx ...its fun in weird sorta way ..talk about inflammation reduction ..i know glutithione and curcumin is a luxury iv but it really helped my vasculotis that bartonella caused ...gunna try de calcification with msm ,ala chanca piedra stuffs too...oil of oregano topacally gave me a goood herx yesterday too...i smell like pizza ..no offense peteza

Post Edited (bluelyme) : 10/19/2016 12:04:08 AM (GMT-6)


jennydancingfish
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Date Joined Sep 2016
Total Posts : 887
   Posted 10/19/2016 12:27 AM (GMT -6)   
Thanks lymmiemonster! I know its doable its just so painful. 😭 me and your son must have a lot of bartonella in us 😭
Thank you peteza! So practical! And thank you bluelyme i am writing all your suggestions down! Gotta get past this to help other lymies in the future.
Currently with LLMD planning on doing modified Cowden Protocol and Buhner
Switched to this route after very bad herxing on rifampin
Diagnosed with Bartonella and Lyme. Twin has Bartonella and Mycoplasma and Lyme.
Twin improving on rifampin, zithromax, and tinidazole. Anger, rage, explosivity, emotional volatility, head and bone squeezing, sense of overheatedness all improved.

Lymiemomster
Regular Member


Date Joined Aug 2016
Total Posts : 192
   Posted 10/19/2016 12:32 AM (GMT -6)   
Hi Jen!

Look up the lithium orotate. It's on Dr. Marty Ross a llmd's website. It looks interesting. I'm going to call around at health food stores tomorrow.

Hang in there!
15 year old son ill since Oct/15
Dx July/16
Headaches, brain fog, anxiety/ocd, extreme fatigue, insomnia/night terrors, extreme joint pain, stomach pain, visual problems, muscle spasms/twitching
Aug 3/16 started Doxy, Zithro and Beyond Balance Bab 2
Oct 5/16 Zithro and rifampin continuing with Bab 2
Massive anxiety/panic/rage attacks, had to quit rifampin.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32691
   Posted 10/19/2016 1:05 AM (GMT -6)   
Lymiemomster - Dr. C. offered lithium orotate to my husband...I don't know if he has it in his office...or what...but you could talk to him about it...maybe his receptionst would be able to help you.
(My husband chose not to use it...so he never did get any)
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14; added biaxin Sept. 26/14 Disc. amox,added Ceftin Nov. 20th.; Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin); Abx/herb break Apr-July/15; July-mino; Aug. added Rif; Nov. switched mino to biaxin.

Just Mike
Regular Member


Date Joined Aug 2016
Total Posts : 370
   Posted 10/19/2016 4:43 PM (GMT -6)   
jennydancingfish said...
Need to get them under control so I can see my llmd. I have limited funds so I cant buy everything. Ive tried a bunch of antidepressants, pasque flower, theanine, valerian root, gaba. All did absolutely nothing. Thanks guys.

My bart depression and anxety are just sliding out of control. My herxing is out of control no matter what i take and how much i try to detox. My llmd is out of town for three weeks and the only other one doesnt have availability until november in my state. I dont know whats wrong with my body. People are telling me maybe its mold or mthfr but i do not have the money to test for mold or fix mold or for 23andme or for b12 supplements.



My doctor, my primary care doctor asked me if I would try a drug that he thought may help with not only the depression and panic, anxiety etc but also with all my leg pain & neuropathy in both arms and both legs. I told him to pound sand but my wife begged me and agreed that if it did NOT help, she would relent and even give me her blessing to even end my life it nothing worked. Just PLEASE try this first is all she asked.... So I took this also expensive new drug called Duloxetine. I think Cymbalta is the non generic name? God only know what THAT must cost since this generic costs me $65.00 a month with great insurance. I swear. I took it about 7PM and when I woke up I was me again. The ME who had NO fear, had to reach into the depths of my horrible memory banks of War to even feel any sadness. NO fear, NO depression, NO anger. It was like I was born brand new. So it saved my life, it gave me BACK a life that was so broken I was worse than dead.
*NOTE: I cut the entire story about why & how I nearly committed suicide a few weeks ago OUT of this story in case the paragraph above sound "abrupt"? Bottom line is-I was and AM the nicest, most considerate, caring man alive. Until about 4 months ago when whatever Lyme or some co infection has done to me. I was borderline insane by the day I got the drug above and had sunk SO low I would not even be here if not for the medication. I do NOT believe in antidepressants. Never did. And yet here I am suggesting maybe it is the single greatest medication on Earth. Maybe because for ME, it is literally the only medication I have ever taken in my 67 year life that actually helped me? Too ashamed & embarrassed to go into what a jerk I had become from whatever disease inside of me turned me into for a few weeks....

bluelyme
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Date Joined Nov 2015
Total Posts : 4724
   Posted 10/19/2016 4:59 PM (GMT -6)   
Thanks mike careful with that cymbalta i had a buddy it backlashed on him ..but thank you for your honesty and testamony..
i apologize for riding you a bit its just that i want you to walk and enjoy your golden years with trish ...consider starting a gofundme account or doing something like bee venom or antibiotics ..you can order them online without a doctor .. both the bees and the abx

SnowAngel22
Regular Member


Date Joined Aug 2016
Total Posts : 221
   Posted 10/19/2016 5:04 PM (GMT -6)   
Jenny, I have tried a lot of things over the years for my anxiety, some work, most don't. The one thing that has definitely stuck though is peppermint tea... It doesn't do wonders but it really helps!
Diagnosed with Borrelia Oct 2016 through iSpot Lyme blood test, suspect Bartonella as well.

SnowAngel22
Regular Member


Date Joined Aug 2016
Total Posts : 221
   Posted 10/19/2016 5:11 PM (GMT -6)   
Also, if you're looking more towards the medication route, I have been taking one called propranolol for a couple of years now. You don't have to take it every day, I could somewhat compare it to the way benzo's work but it's definitely not a benzo. It lowers your norepinephrine levels so that your "fight or flight" response isn't so intense. It's actually used to lower blood pressure I believe. It's not addictive either which is a plus!
Diagnosed with Borrelia Oct 2016 through iSpot Lyme blood test, suspect Bartonella as well.

Girlie
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Date Joined May 2014
Total Posts : 32691
   Posted 10/19/2016 5:51 PM (GMT -6)   
klwxo95 said...
Also, if you're looking more towards the medication route, I have been taking one called propranolol for a couple of years now. You don't have to take it every day, I could somewhat compare it to the way benzo's work but it's definitely not a benzo. It lowers your norepinephrine levels so that your "fight or flight" response isn't so intense. It's actually used to lower blood pressure I believe. It's not addictive either which is a plus!


My LLND prescribed it for me, but I didn't take it. I have an overstimulated nervous system...no anxiety though. So, if there's something on tv that's exciting , or a song I really like, my body shivers.
He wanted me to take it for 30 days..thought it would stop the "cycle "

I was concerned about it lowering my blood pressure...it is already between 105-120 over 68-72. (Currently)

I also thought once on it, I might not be able to get off it.

I was told it had to be taken daily though...
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14; added biaxin Sept. 26/14 Disc. amox,added Ceftin Nov. 20th.; Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin); Abx/herb break Apr-July/15; July-mino; Aug. added Rif; Nov. switched mino to biaxin.

SnowAngel22
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Date Joined Aug 2016
Total Posts : 221
   Posted 10/19/2016 6:02 PM (GMT -6)   
Yes be wary of the blood pressure thing, mine sometimes would be very low. I used to take it every day but now I just take it when the anxiety is too hard to handle. I think it probably depends on what the goal of taking the medication is. I've been told by a couple of doctors that a lot of celebrities and other performers take it before they perform. I've had doctors tell me that I could take it every day or just when needed :)
Diagnosed with Borrelia Oct 2016 through iSpot Lyme blood test, suspect Bartonella as well.

Girlie
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Date Joined May 2014
Total Posts : 32691
   Posted 10/19/2016 6:08 PM (GMT -6)   
I don't have anxiety..except for the odd two seconds before my sweats hit me.

So not sure if it would work for these shivering spells I have.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14; added biaxin Sept. 26/14 Disc. amox,added Ceftin Nov. 20th.; Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin); Abx/herb break Apr-July/15; July-mino; Aug. added Rif; Nov. switched mino to biaxin.

SnowAngel22
Regular Member


Date Joined Aug 2016
Total Posts : 221
   Posted 10/19/2016 6:27 PM (GMT -6)   
Hmmm.... It could, I can imagine that norepinephrine would somehow contribute to your shivering spells because it also fuels excitement. I remember I used to be such an adrenaline junkie and then when my anxiety hit I just became scared of a lot of things that I used to enjoy. Sometimes you don't realize these things until you're sitting atop the "drop of doom" ride at the stampede having a panic attack while waiting to drop 40 meters to the ground LOL that was a fun experience!

The only other thing that I know about it is that it helps people who have PTSD. Something along the lines of it blocking bad memories.
Diagnosed with Borrelia Oct 2016 through iSpot Lyme blood test, suspect Bartonella as well.

jennydancingfish
Veteran Member


Date Joined Sep 2016
Total Posts : 887
   Posted 10/19/2016 6:30 PM (GMT -6)   
Thanks guys! I have propranol. Llmd says my lyme makes my heart race. And we tried cymbalta antidepressants dont work on me and my twin
Currently with LLMD planning on doing modified Cowden Protocol and Buhner
Switched to this route after very bad herxing on rifampin
Diagnosed with Bartonella and Lyme. Twin has Bartonella and Mycoplasma and Lyme.
Twin improving on rifampin, zithromax, and tinidazole. Anger, rage, explosivity, emotional volatility, head and bone squeezing, sense of overheatedness all improved.

SnowAngel22
Regular Member


Date Joined Aug 2016
Total Posts : 221
   Posted 10/19/2016 6:35 PM (GMT -6)   
What is your experience with antidepressants? Is it just that they don't work? Or do they make your anxiety worse?
Diagnosed with Borrelia Oct 2016 through iSpot Lyme blood test, suspect Bartonella as well.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32691
   Posted 10/19/2016 6:40 PM (GMT -6)   
jennydancingfish said...
Thanks guys! I have propranol. Llmd says my lyme makes my heart race. And we tried cymbalta antidepressants dont work on me and my twin


so, you haven't tried the propranolol yet, jenny?

You go first!
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14; added biaxin Sept. 26/14 Disc. amox,added Ceftin Nov. 20th.; Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin); Abx/herb break Apr-July/15; July-mino; Aug. added Rif; Nov. switched mino to biaxin.

Lymiemomster
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Date Joined Aug 2016
Total Posts : 192
   Posted 10/19/2016 6:59 PM (GMT -6)   
Hi Girlie!

Dr. C just suggested psy stabil and gaba pro for anxiety. Do you have any thoughts on those?

I think I tried gaba for him a while back but didn't seem to do much

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32691
   Posted 10/19/2016 7:03 PM (GMT -6)   
I have used Gaba - just to try and calm down my nervous system - can't say it did anything.

Dr. Chan also sent me the Psystabil - I tried it for a few weeks...and stopped...didn't notice any improvements.

Sometimes I just get tired of all the 'stuff' I've been told to take....I was swallowing way too many pills/capsules/tinctures each day...it was bothering my throat...that was already having issues from the minocycline/rifampin combo.

I've pared down my stuff - don't feel any worse...

I was just looking at the Gaba...may give it another try again.

And then there's the cost of all this = this pile in the supplement graveyard.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14; added biaxin Sept. 26/14 Disc. amox,added Ceftin Nov. 20th.; Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin); Abx/herb break Apr-July/15; July-mino; Aug. added Rif; Nov. switched mino to biaxin.

Lymiemomster
Regular Member


Date Joined Aug 2016
Total Posts : 192
   Posted 10/19/2016 7:21 PM (GMT -6)   
Oh great.

The supplement graveyard lol.

I try not to think of the cost. :(

jennydancingfish
Veteran Member


Date Joined Sep 2016
Total Posts : 887
   Posted 10/19/2016 7:34 PM (GMT -6)   
Ok girlie ill start it tomorrow ill let u know if i feel different!
And klw some make me depressed and others do absolutely nothing same with my sister.
My twin has tried like every antipsychotic, antidepressant, mood stabilizer etc on the market. They didnt do anything the antibiotics have started cracking into everything though yeyy
Currently with LLMD planning on doing modified Cowden Protocol and Buhner
Switched to this route after very bad herxing on rifampin
Diagnosed with Bartonella and Lyme. Twin has Bartonella and Mycoplasma and Lyme.
Twin improving on rifampin, zithromax, and tinidazole. Anger, rage, explosivity, emotional volatility, head and bone squeezing, sense of overheatedness all improved.
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