I am definitely way on the back burner. For sure.
The way I see it is im not sure how long I've even had Lyme. It could even be that I had it when pregnant with him. He was tested via regular lab for Lyme when he was two because he had had a tick on him for 12 hours at ten months old but his doctor hadn't treated or tested him because he said it would've had to have been on for at least 36 hours (which I now know isn't true) to have passed anything to him.
I also had already been nursing him before I had a positive Lyme test this summer so if he got it from me before I knew for sure I had it there's nothing I can do to stop it. So nursing is his favorite thing in the whole world. He nurses when he's sick, scared, hurt, happy, going to sleep, etc. He is such a highly sensitive and spirited baby/child - it would be hell to take away his nursies. When I tried to wean him to take doxy it was an impossible nightmare. He's just not ready in any way.
I'm just really hoping the amoxicillin can be enough. I know the infectious disease doctor only gives people 10-30 days of antibiotics and I've had months! I.D. doc says people will continue to have symptoms months to years after 30 days of antibiotics and that's normal and doesn't mean the bugs are still inside you. Says they're long gone by now for me. I don't believe that though I guess. I still don't understand though how there can be two such vastly differing medical opinions on it.
Part of me wonders could I.D. Doc be right? Are continued symptoms just CNS damage? Is all this continued antibiotic treatment most of us do unecessary? Would all of our symptoms just stop over time if we only took 30 days of antibiotics? Are there any people out there who stopped after 30 days and waited the year or years to see if it all just cleared up? I know it sounds crazy and even I chose to continue an antibiotic because it just seems like from everything I've read that's the best choice. I believe it's necessary. But some part of me still wonders how it's possible that there are two such hugely differing medical theories on Lyme disease.
If you know of anyone who did the 30 days of antibiotics and then stopped and went on to wait for months or years before getting further treatment I'd love to hear about
it. I guess I want proof that I have to keep treating. I'm not symptom free, but it would be much better if I didn't have to keep taking antibiotics. I know I probably sound like such an idiot but I also feel that long term antibiotics changes our gut flora and immune system possibly indefinitely. I just wish there was a better way. I won't breastfeed taking herbs btw. There aren't enough studies on their safety. I know it might come down to needing to wean him...I just have always believed in self weaning and full term breastfeeding and I know my son and want to do what's best for him...and he's just nowhere near ready to be done.
And thank you all so very much for your thoughts and info!!
Post Edited (H Mommy) : 10/26/2016 2:03:39 PM (GMT-6)