Quick overview, my initial lyme test was ordered out of the blue by an Ortho, I saw (before even considering Lyme) for severe lower back pain and other pain issues. The lab reported a positive IGG screen, but the WB was negative, oddly with only IGM 41 reactive. He referred me to ID doc, which started the whole process of Lyme treatment. I've since moved on to a LLMD, had a positive IGM WB from IgeneX, and have been treating with oral doxy, 200mg/day for the first two months and now 300mg/day in third month. My main symptoms have been persistent with some worsening of the more severe symptoms coming and going, primarily the ones related to joint/bone pain.
The symptoms that persist daily or more frequently seem to be CNS related? I'm having severe bouts of anxiety out of nowhere. Continuous, unrelenting tinnitus that seems to be getting louder and multiple forms. Rage episodes, extreme fatigue, fogginess, trembling, internal buzzing feeling, muscle stabs out of nowhere, numbness/tingling, flushing spots on hands, face and feet, bulging veins on hands and wrists, momentary sweats, eye twitching, cold spots, cognitive...etc. etc.
The original ortho (who I only saw once) is now calling me to see if I was still interested in the EMG he prescribed (when he ordered the lyme and other blood work) but I did not get the EMG at that time. Would there be any value in getting the EMG done now? I know I've been dealing with Lyme, but could an EMG help determine the neuro impact? I am still not 100% sure I'm sticking with the current LMD, and will see him at the end of the month, but wondering what info the EMG could provide him or any other future LLMD I may see.
I don't see any point to an EMG at this point. You're having the symptoms that need to be dealt with. Symptoms many of us have had or still do.
I had massive amounts of that last year when I was on doxy for 3 months, but that was all I was taking, and not de-toxing what so ever. So it's no wonder I thought I wasn't going to live til the end of the year.
They actually let up when I decided to pulse the doxy, around times that I needed to feel part way normal. That worked fairly well, especially since I was close to the end of my doxy treatment anyhow, and the next one, Zithro, was pretty mild in comparison.
It was the herxing reactions from the massive die offs that were making me feel like I was dying.