Anyone Tried Lyme-N via Nebulizer or have any feedback?

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Traveler
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   Posted 3/3/2017 2:23 PM (GMT -7)   
Kaylor91]The only chemical that showed to be present was Dietary Iodine. The woman from the said...
log site" told me that the "scientist" did in fact tell her that the product was Iodine but that he adjusted the "ions". If this isn't a huge crock of BS than I don't know what is.



Kaylor, you're new here, but we don't want members speaking to each other in this manner. We need to keep this a refuge for us, we have to 'fight' enough as it is 'out in the real world', and this is our 'safe place'.

While I do agree that it's not a product I would use without knowing what all is in it, we do prefer that our members treat each other/speak to each other well and kindly. We look at all types of treatments, protocols and supplements here, and while there are products out there that ARE scams, we also need to feel free to bring the information here and discuss it openly and with being kind to anyone that is asking about it or using it.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)

Kaylor91
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Date Joined Feb 2017
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   Posted 3/3/2017 4:23 PM (GMT -7)   
Sounds goodsmile

julymorning
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Date Joined Jul 2015
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   Posted 3/3/2017 5:49 PM (GMT -7)   
I wouldn't have to give any thought to Lyme N at all, even if the ingredients were disclosed. $3800 is 5 1/2 months worth of my disability checks.

Girlie
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Date Joined May 2014
Total Posts : 27867
   Posted 3/3/2017 5:58 PM (GMT -7)   
julymorning said...
I wouldn't have to give any thought to Lyme N at all, even if the ingredients were disclosed. $3800 is 5 1/2 months worth of my disability checks.


And up front? no way - if you have a bad reaction to it (since we don't know the ingredients...it's a possibility) - then you've lost $3800 - that's quite a chunk of money lost for future treatments.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

LymeNMom
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Date Joined Feb 2017
Total Posts : 12
   Posted 3/4/2017 10:19 AM (GMT -7)   
So she told you he told her it was iodine, yet she doesn't mention it anywhere in her blog. That seems strange to me.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 27867
   Posted 3/4/2017 11:28 AM (GMT -7)   
From the website:


"Igenex Lab and Largo Bio Science Lab tested patients before treatment for Lyme Disease. They did urine, saliva and blood tests. Only patients with a positive test were treated. After treatment, their tests were negative for Lyme and their symptoms went away over the following year as their bodies healed. For me, the proof is how my sons are healed! "

Really? We know testing isn't useful to know if treatment is successful.
This is suspect. Negative pcr - urine and saliva ...doesn't mean it's not there...it means it just isn't in that sample...and that's why a negative pcr isn't useful.
Only a positive one is.
...and WB? no antibodies after they were treated? That's also 'interesting' because antibodies often continue to be produced even after we're healed...
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

LymeNMom
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Date Joined Feb 2017
Total Posts : 12
   Posted 3/7/2017 8:42 AM (GMT -7)   
Believe me. It wasn't easy for me to find the money. We live on one income. I have been on antibiotics and herbs for a year. I was headed toward IV antibiotics next bc I wasn't responding to them anymore. I'm fortunate enough that my Dr does take insurance but it's $40 per office visit. Then add in all the herbs/supplements. Then chiropractors and massage. Who knows if my insurance would cover the IV antibiotics and for how long? This disease had added up. We got a health savings account this year to help pay for it, but WE"RE paying for it.

I've been on many forums that talk about being gluten-free, sugar-free, dairy-free, eat clean, eat paleo...(I'm not doing any of that crap..I'm a registered dietitian..food is my favorite thing in this world). I've seen so many protocols and NONE of them claim to be a cure. Call me crazy, gullible, stupid, whatever..but if you offer me something that allows me to skip years of suffering, I'm going to take the leap. In the grand scheme of life, I'm not going to regret it..it isn't THAT much money when you're looking at indefinite IV meds. l'm a mom, a former athlete, and I don't have the darn patience to stay sick. I'm DONE.

ChickNorris
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Date Joined Jan 2012
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   Posted 3/7/2017 8:54 AM (GMT -7)   
LymeNMom said...
Believe me. It wasn't easy for me to find the money. We live on one income. I have been on antibiotics and herbs for a year. I was headed toward IV antibiotics next bc I wasn't responding to them anymore. I'm fortunate enough that my Dr does take insurance but it's $40 per office visit. Then add in all the herbs/supplements. Then chiropractors and massage. Who knows if my insurance would cover the IV antibiotics and for how long? This disease had added up. We got a health savings account this year to help pay for it, but WE"RE paying for it.

I've been on many forums that talk about being gluten-free, sugar-free, dairy-free, eat clean, eat paleo...(I'm not doing any of that crap..I'm a registered dietitian..food is my favorite thing in this world). I've seen so many protocols and NONE of them claim to be a cure. Call me crazy, gullible, stupid, whatever..but if you offer me something that allows me to skip years of suffering, I'm going to take the leap. In the grand scheme of life, I'm not going to regret it..it isn't THAT much money when you're looking at indefinite IV meds. l'm a mom, a former athlete, and I don't have the darn patience to stay sick. I'm DONE.


Wait, you're a dietician and you don't believe in eating clean? The reason people recommend cutting gluten and sugar is (as I'm sure you know) they are highly inflammatory. And add in antibiotics to the mix and you are setting yourself up for potentially massive yeast issues. Perhaps your diet has held you back from progress. What we put into our bodies is so incredibly important. I'd say it is far more important than exercise for long term health. To get the most out of your treatments you may want to revisit diet. It's hard changing the way we eat! Ugh!! So hard! I am getting back on that wagon myself. But it can only help this protocol to address it. Hang in there! This Lyme business is a long road.
Igenex 9/2016 31-I, 39-I, 41-++, 58-+
CD57: 28
EBV, CMV, HHV-6, Mycoplasma Pneumoniae
Hashimoto's, endometriosis, alopecia areata, migraines galore


11/22/16 started Doxy 100mg/2x a day, Samento and Banderol 10 drops/2x a day
1/10/17 stopped Doxy, abx break
2/10/17 started cryptoleptis

PeteZa
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Date Joined Jul 2015
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   Posted 3/7/2017 8:55 AM (GMT -7)   
I wish you lots of luck LymeNMom and please keep us informed. I, for one, am very curious as to how this works.
____________
You will be the same person in five years as you are today except for the people you meet and the books you read. ~Charlie Tremendous Jones~

LymeNMom
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Date Joined Feb 2017
Total Posts : 12
   Posted 3/7/2017 9:12 AM (GMT -7)   
I've studied biochemistry and nutrition and, believe me, I know evidence based information when it comes to food. Eating clean (food is not dirty) and living on a restricted diet that has no solid evidence to back it up is not how I live. It isn't how most dietitians live. I eat healthy, so don't worry about that. I don't believe gluten is inflammatory in moderation. I don't have Celiac disease and I'm not gluten intolerant. I don't eat processes food.

Dr's get very little training in nutrition, so excuse me if I'm not jumping on the bandwagon. I eat a normal, balanced diet with lots of fruits and veggies. I'm not going to go on a restrictive diet when I don't think it's necessary. I have a healthy relationship with food and I believe in intuitive eating. We cannot outsmart our bodies. There's a reason you're hungry and a reason you want certain foods. My mental health requires I be able to eat for enjoyment as well as nutrients.

Also, thank you PeteZa!

PeteZa
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Date Joined Jul 2015
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   Posted 3/7/2017 9:21 AM (GMT -7)   
I am an eater and believe that FOR ME the best nutrition comes from food and not a pill. If I need more C, I love me my grapefruits! If I need more D, I sit outside and read a book in the sun. So I totally get where you are coming from about food. I love balancing the meals at our house and making sure we get a well-rounded variety. That's what a good chef does! LOL

Most doctors treat obesity, not nutrition - IMO.

I have a girl friend and the doctor told her she needed more fiber in her diet. So she ate a salad 3 times a day. I was surprised that she did not know that salads don't have much fiber. They have roughage, but not fiber. Anyway, now she has lentils or an artichoke.
____________
You will be the same person in five years as you are today except for the people you meet and the books you read. ~Charlie Tremendous Jones~

ChickNorris
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Date Joined Jan 2012
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   Posted 3/7/2017 9:40 AM (GMT -7)   
LymeNMom said...
I've studied biochemistry and nutrition and, believe me, I know evidence based information when it comes to food. Eating clean (food is not dirty) and living on a restricted diet that has no solid evidence to back it up is not how I live. It isn't how most dietitians live. I eat healthy, so don't worry about that. I don't believe gluten is inflammatory in moderation. I don't have Celiac disease and I'm not gluten intolerant. I don't eat processes food.

Dr's get very little training in nutrition, so excuse me if I'm not jumping on the bandwagon. I eat a normal, balanced diet with lots of fruits and veggies. I'm not going to go on a restrictive diet when I don't think it's necessary. I have a healthy relationship with food and I believe in intuitive eating. We cannot outsmart our bodies. There's a reason you're hungry and a reason you want certain foods. My mental health requires I be able to eat for enjoyment as well as nutrients.

Also, thank you PeteZa!


I used to think that way. In fact your views are the views of the majority of allopathic drs as well. I've read so many "articles" condemning cutting gluten as detrimental for those without diagnosed celiac. But then the health issues began to flow in. And my son developed fructose malabsorption. So we all cut gluten (and FODMAPs for him) and I found one of my migraine triggers! Gluten! Yes, I was now on the gf bandwagon and that is one I'm never tempted to get off. Often people won't know what they are sensitive to unless they eliminate it first for a few months. Grains get broken down into sugar. Wheat is a fructan and it has chains of glucose and fructose as it's building blocks. If it doesn't impact you personally it can still contribute to yeast issues if on long term antibiotics or if you have SIBO it can cause serious tummy pains. I l learned way more than I ever wanted to about food and what natural chemicals and sugars/sugar alcohols are in food because of my son's issues. But I had to because the dietitians around us didn't know about it. So I read books on the subject, sought the wisdom of other parents who have been there. And lots of trial and error. We settled into a mostly paleo diet but we are not rigid about it. But having cut sugars for so long, when my kids do ingest it the reaction hits within an hour. If it's hitting my kids, it surely hits me too just in different ways.
And clean eating means limiting processed foods so you are eating clean and have a leg up from the standard American diet. We all come at this from different experiences. I come from a place where I used to laugh at people who went gluten free or was choosy about what they ate. Then life happened and I realized that I didn't know as much as I thought I did! Ha! And I'm sure my views on food will continue to evolve as I get older and learn more.
Igenex 9/2016 31-I, 39-I, 41-++, 58-+
CD57: 28
EBV, CMV, HHV-6, Mycoplasma Pneumoniae
Hashimoto's, endometriosis, alopecia areata, migraines galore


11/22/16 started Doxy 100mg/2x a day, Samento and Banderol 10 drops/2x a day
1/10/17 stopped Doxy, abx break
2/10/17 started cryptoleptis

PeteZa
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Date Joined Jul 2015
Total Posts : 9156
   Posted 3/7/2017 9:49 AM (GMT -7)   
Chick, who knows what will come around and enlighten us.

Gluten free is so common that most restaurants now have many foods on the menu that are gluten free.
____________
You will be the same person in five years as you are today except for the people you meet and the books you read. ~Charlie Tremendous Jones~

LymeNMom
New Member


Date Joined Feb 2017
Total Posts : 12
   Posted 3/7/2017 10:06 AM (GMT -7)   
I'm actually surprised a Registered Dietitian wouldn't know about fructose malabsorption? Digestive disorders and food restrictions are reasons a client would visit you. Are you sure it wasn't a nutritionist? As RD's, our clinical training involves calculating IV nutrition and tube feedings on unconscious ICU patients..so dietary restrictions (even obscure ones), by comparison, aren't that difficult. If it was, they were NOT a good dietitian. I would expect much more from them. Glad you've gotten it figured out though!

Girlie
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Date Joined May 2014
Total Posts : 27867
   Posted 3/7/2017 11:32 AM (GMT -7)   
PeteZa said...
I am an eater and believe that FOR ME the best nutrition comes from food and not a pill. If I need more C, I love me my grapefruits! If I need more D, I sit outside and read a book in the sun. So I totally get where you are coming from about food. I love balancing the meals at our house and making sure we get a well-rounded variety. That's what a good chef does! LOL

Most doctors treat obesity, not nutrition - IMO.

I have a girl friend and the doctor told her she needed more fiber in her diet. So she ate a salad 3 times a day. I was surprised that she did not know that salads don't have much fiber. They have roughage, but not fiber. Anyway, now she has lentils or an artichoke.


Salads do have fibre - it depends on what's in them...mine have broccoli and avocado carrots and sometimes black beans.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9156
   Posted 3/7/2017 11:39 AM (GMT -7)   
Girlie said...
PeteZa said...
I am an eater and believe that FOR ME the best nutrition comes from food and not a pill. If I need more C, I love me my grapefruits! If I need more D, I sit outside and read a book in the sun. So I totally get where you are coming from about food. I love balancing the meals at our house and making sure we get a well-rounded variety. That's what a good chef does! LOL

Most doctors treat obesity, not nutrition - IMO.

I have a girl friend and the doctor told her she needed more fiber in her diet. So she ate a salad 3 times a day. I was surprised that she did not know that salads don't have much fiber. They have roughage, but not fiber. Anyway, now she has lentils or an artichoke.


Salads do have fibre - it depends on what's in them...mine have broccoli and avocado carrots and sometimes black beans.


Her salads were a tossed green salad and only had dressing on it.

You are correct, if made properly you can add fiber to your salad.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 27867
   Posted 3/7/2017 11:56 AM (GMT -7)   
PeteZa said...
Girlie said...
PeteZa said...
I am an eater and believe that FOR ME the best nutrition comes from food and not a pill. If I need more C, I love me my grapefruits! If I need more D, I sit outside and read a book in the sun. So I totally get where you are coming from about food. I love balancing the meals at our house and making sure we get a well-rounded variety. That's what a good chef does! LOL

Most doctors treat obesity, not nutrition - IMO.

I have a girl friend and the doctor told her she needed more fiber in her diet. So she ate a salad 3 times a day. I was surprised that she did not know that salads don't have much fiber. They have roughage, but not fiber. Anyway, now she has lentils or an artichoke.


Salads do have fibre - it depends on what's in them...mine have broccoli and avocado carrots and sometimes black beans.


Her salads were a tossed green salad and only had dressing on it.

You are correct, if made properly you can add fiber to your salad.


Thanks for clarifying - I was confused with your statement: " I was surprised that she did not know that salads don't have much fiber. They have roughage, but not fiber."
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Seeking More Answers
New Member


Date Joined Mar 2017
Total Posts : 3
   Posted 3/7/2017 6:21 PM (GMT -7)   
I'm surprised and fascinated by the assertion that Lyme-N was created by old men from MIT. I've done Internet searches starting with Largo Bioscience, looking for officers and directors, related companies, patents and trademarks held by the entities and individuals, and so on. Anyone who wants to learn more can simply search for what is known about Lyme-N and related companies and people, and draw their own conclusions.

Kaylor91
New Member


Date Joined Feb 2017
Total Posts : 7
   Posted 3/7/2017 8:25 PM (GMT -7)   
Here are the claims given to me from the woman who owns the blog, they seem slightly different than the woman on this board.

"Furthermore, the scientist that created Lyme-N has done some proprietary 'tweaking' to it on an atomic level. I am not clear what it is, as that is the proprietary part of it. He does not say that the ingredients are hard to get. He has told me that iodine is the main ingredient, and in fact, that is stated in my blog post back in like December of 2015. It looks and smells like iodine, so it is obvious to the casual observer that iodine is a main ingredient. However, that is not the only ingredient, and it's not just plain iodine. He has done something to it having to do with the positive and negative charges of ions, and it's the way it behaves in the body, passing over healthy cells and attacking the bacteria cells.
Whatever your test was, it was not able to show these differences between Lyme-N and plain iodine. If people had been having the same miraculous results with plain iodine as with Lyme-N, it would have been common knowledge by now, as people have been nebulizing iodine for years.
I hold the scientist that created Lyme-N in the highest regard, he has shown himself to be a caring and compassionate person, desiring more than anything else to help eradicate Lyme Disease. He is a NASA level scientist. He has had his work sent up on the Space Shuttle. He is going to China to work on Panda bears because he has developed a way to get them to ovulate more regularly/in sync with the males (something nobody else has been able to do). He has gone to Africa to work with wildlife issues there in the field of chemical biology. He has worked in all capacities in the military and on every continent."

Kaylor91
New Member


Date Joined Feb 2017
Total Posts : 7
   Posted 3/7/2017 8:32 PM (GMT -7)   
Not trying to be a conspiracy theorist, but both woman speak the exact same way and seemingly be the only ones that have inside knowledge of this "miracle drug". Anyone can create fake identity online but I can almost promise you that the human behind the curtain is none other than Glenn Gordan, or one of his employed family members. He owns the both entities that create and distribute the drug. Public record proves that. I doubt an acclaimed scientist is willing to release the cure without any owner ship. open your eyes people.

Seeking More Answers
New Member


Date Joined Mar 2017
Total Posts : 3
   Posted 3/9/2017 7:36 PM (GMT -7)   
Maybe LymeNMom or someone else in the know can answer a few questions for me:

1) ) Why does the information sheet request patients to "...brush their teeth regularly using standard grocery store baking soda during nebulizing and for one month thereafter....Periodic gargling, one to two times per week, with standard over the counter 3% hydrogen peroxide is also requested.? How does this change to dental care effect the saliva test that verifies the success of the treatment?

2) Is Lyme-N effective against co-infections? The information sheet says "Lyme-N is designed and purposed to kill spirochetes and to eliminate spirochetal infections. While Lyme-N may also eliminate other harmful bacteria, it should not be assumed that Lyme-N is effective in such elimination."

3) Are the post-treatment saliva tests that verify the success of the treatment sent to a lab affiliated with either Largo Bioscience or any of the officers or directors?

4) Do the doctors who oversee the Lyme-N treatment know what is in Lyme-N? I'm asking because the information sheet says "It is important to be under your Lyme-N literate doctor's supervision during this treatment and continue as you are undergoing to healing process.", and "Only Lyme-N literate doctors will understand the science, protocol, effectiveness and capabilities of Lyme-N. " Obviously, if the doctor does not know what is in Lyme-N, they cannot understand the science and capabilities of Lyme-N, and therefore they are not "Lyme-N literate".

5) Do patients have to sign any form of a non-disclosure agreement before obtaining Lyme-N?

6) Is Lyme-N sold to the patient? I'm asking because of the strange language in the information sheet that says "Largo Bioscience is a for-profit company and accepts payment in the form of contributions for the product." Legally, how is a "contribution for the product" different than a purchase of the product?

7) Who manufactures Lyme-N, and what assurances or guarantees are provided as to the products purity and conformance to specifications? If something is being nebulized into my lungs, I want to make sure it is what it is supposed to be, and not in any way contaminated.

Thanks!

julymorning
Veteran Member


Date Joined Jul 2015
Total Posts : 3808
   Posted 3/9/2017 7:48 PM (GMT -7)   
Those are good questions Seeking.

And welcome to the forum. Do you have Lyme, or think you do?
Moderator, Lyme Forum

Fibro diagnosed '85 Lyme (false?)positive '92,Osteoporosis, COPD, Hypertension, degen. disc disease, RMSF pos. Spring 2015, CHF, osteoarthritis. No LLMD. Used Doxy, Zithro and Flagyl since June '15, mono each time. Useless. Current treatment JK, Milk Thistle, kudzu for head fullness/pressure, avena sativa for nerves. Bragg's ACV, lemon water, Herbal de-tox tea.

Seeking More Answers
New Member


Date Joined Mar 2017
Total Posts : 3
   Posted 3/9/2017 7:59 PM (GMT -7)   
Thanks for the welcome!

As to your question, a family member is currently battling Lyme and asked me to look into Lyme-N for them. I'm glad to find this forum. Before this, the only information I could obtain was from those who had a financial interest in the success of Lyme-N. This forum is both helpful and refreshing.

julymorning
Veteran Member


Date Joined Jul 2015
Total Posts : 3808
   Posted 3/9/2017 8:05 PM (GMT -7)   
Seeking More Answers said...
Thanks for the welcome!

As to your question, a family member is currently battling Lyme and asked me to look into Lyme-N for them. I'm glad to find this forum. Before this, the only information I could obtain was from those who had a financial interest in the success of Lyme-N. This forum is both helpful and refreshing.


Feel free to share your family member's story if you think we can be of any help or support to them and yourself.

Also, just in case, you might want to(if you haven't already) looked over our intro "New to Lyme?...start here"
There is so much information that has been shared in there to ease people through this healing process.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 27867
   Posted 3/9/2017 8:54 PM (GMT -7)   
Welcome, Seeking More Answers!

Excellent questions you are asking.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
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